Sore on finger

[SamRigs]

Over the last week a blister like sore has appeared on my finger. At first I thought it was glass or a splinter but it spread over the course of the week. It’s like a cluster of the three little blisters together. Has anybody else with lupus had anything like this and would you say it is lupus related? Because I do know there is such a thing as chilblain lupus…

[Ingrid1234]

Hi,Just read your profile. Lupus nephritis, SLE etc diagnosed in 18 m. If it’s any consolation some here have had years of “toing and froing “ to get a lupus diagnosis. The trouble with lupus, there are all sorts of manifestations 😩.

This looks like a skin one possibly inflammation of the capillaries under your skin eg vasculitis which can go with lupus nephritis. I get these red bumps on my fingers and steroid cream helps to calm things down. Chilblain lupus? That’s a strange one on me?🤔

Just looked at your cheeks in the photo. Wondering whether you’ve got the classic lupus butterfly shape face rash? Cell cycles are fast in lupus. With me I produce lots of dead, dry skin on feet, face and hands.

I’m always frightened of getting any skin infection so I wash hands frequently.

[SamRigs in reply to Ingrid1234]

Hello Ingrid, thank you very much for your reply to my post. It’s always reassuring to hear of others symptoms etc with lupus - with it all being new to myself. 😊

[EOLHPC in reply to Ingrid1234]

👍 Yes! my experience is that strong topical steroid helps my version of these lesions too: the minute I sense any of these coming on I use ultra strong Dermovate ointment (I react less well to the cream) - prescribed by my Dermatologist & gynaecologist. I try hard never to let these lesions get going...once they are as severe as these in your photo, i’ve had to wait months for them to settle down.

Am glad you’re taking photos - hope you’ll let us know what your doctors say about this

I’m diagnosed with both SLE & the even rarer CLE aka Chilblain Lupus Erythematosus, with the usual secondaries inc small vessel vasculitis, sjogrens, severe raynaud’s etc. Here’s a link to my fav source of info re CLE

dermnetnz.org/topics/chilbl...

🍀❤️🍀❤️ Coco

[SamRigs in reply to EOLHPC]

Bless you, thank you so much for taking the time out to reply to my message. The information really helps me. x

[EOLHPC in reply to SamRigs]

V glad if something in there helps...took my rheumy & dermy ages to figure my version of this out...well, maybe 18 months 😉...Am right by your side, Sam! 💞💞💞💞

PS sorry, I kept adding bits to my first reply..am not v well at the mo..so even less great at expressing self than usual 🤷🏼‍♀️

[stiff19 in reply to EOLHPC]

🤗 hoping you feel better soon 🙏x

[Krazykat26 in reply to EOLHPC]

U rest up Coco 🤗 🤡🧜🌈😽😽xx

[EOLHPC in reply to Krazykat26]

😻👋👋👋👋💞💞💞💞

[SamRigs in reply to EOLHPC]

Thank you very much for all your advice. I have taken it all on board. x. Really hope you’re feeling lots better soon x🌈💕

[MrsMarigold]

Hello. My husband does not have any disease and in last 6 mo he has had several fingers look like that. Dr. Told him they are a result of arthritis in the joints. The inflammation pushing outward. Dr. Lanced one off very carefully but said it would Probably come back. It did. Not sure what

My husband will do about it. 3 fingers

Have blisters now at same joints as you.

Dr did say to not pop them or try anything

I can’t remember why only that it will

Make things worse. Best, Titters

[SamRigs in reply to MrsMarigold]

Thank you very much for your help and advice x

[Krazykat26]

Hi Sam 🤗 I get these too so I really feel for u.Same as Barnclown I use Dermovate ointment at the first sign of them appearing..I'm on lots of treatment n thankfully they're easier to manage now..but ouch ouch ouch!!

At one time mine were so bad and on 8 fingers out of 10!! I shudder at the memories of that time in my life! 😖

Please make sure you're wearing gloves when u do any washing up or cleaning etc. You've got this pic which is a good one to show the doc..write any symptoms down and include how your feeling generally.

Have u been out in the sun recently? I'm UV sensitive n I have to wear gloves even in the summer.

The link that Barnclown gave u is THE best site I've found to research my particular rashes n oddities 🌈😽😽xx

[SamRigs in reply to Krazykat26]

I am so grateful for all the help and advice I have been given. I really appreciate you taking the time out to reply to me. xx

[Villagelife]

Hi I've heard of chilblain lupus but don't know much about it. I'm undiagnosed. I have chilblains on my toes every year but last winter they were constant & nasty, I also developed chilblains on my fingers. Strangley they weren't on the finger ends but on the section on finger furthest away from the nails. They ulcerated . I had abnormal blood test results which led the Gp to suggest I have lupus. Im currently waiting for a rheumatologist appointment.

[SamRigs in reply to Villagelife]

Hi. Thank you for your post. I hadn’t heard of chill blain lupus until my daughter showed me some pictures on google, I thought it looked similar to mine. I’ve shown it to my renal consultant who has taken photos to show my rheumatoid consultant … I’m just awaiting their comments now. 😊

[Villagelife]

I would be interested to know what your rheumatologist says if you are happy to share.

[SamRigs in reply to Villagelife]

No problem - my next appointment isn’t until October unless they want to see me before. 😊

[Villagelife in reply to SamRigs]

Thank you, hopefully your finger won't get worse & you don't develop anymore sores.

[SamRigs in reply to Villagelife]

Thank you 😊

[Jmiller623]

Make sure it isn’t herpetic whitlow aka herpes of the fingers. That’s what it looks like to me. Your PCP can prescribe Acyclovir if they think it’s a viral exanthem.

Sending hugs. ❤️xx

[SamRigs]

I showed it to my renal consultant last week and he has taken photos of it to forward on to my rheumatologist.. hopefully they will be able to diagnose what it is. 😊

[Tykle]

Yes, I have what looks like this regularly. I was given Dermovate for it years ago but it didn't seem to help so I've just got used to it over the years. It's made worse by sudden changes of temperature e.g. if I'm pulling weed out of the pond so if yours is the same, it's a good idea to avoid jobs like that, especially involving water. I hope it clears up soon.

[SamRigs in reply to Tykle]

Thank you for your reply - I’ve been to see my pharmacist today who was unsure as to what it is. Did they say yours was lupus related and do you happen to have any pictures you can upload please? 😊

[Tykle in reply to SamRigs]

I don't have any pictures and don't have a camera that can take clear close-ups I'm afraid. A couple of weeks ago, I had a cluster of blisters on my middle finger in just the same place as yours, which are just scabs & hard skin now. I had skin biopsies over 20 years ago at St Thomas' which were inconclusive. The dermatologists said it was most likely lupus related as they'd ruled other things out and passed it on to rheumatology. I know the rash is affected by heat, cold and humidity but that's not always clear. Cotton gloves can be useful for keeping hands protected when the skin is broken, especially these days.I hope you manage to find more answers and something that works for you.

[SamRigs in reply to Tykle]

Morning, thank you so much for replying. It is interesting to hear you have had the same and they said it was more than likely lupus related. This morning it’s still very sore and seems to have scabbed over a little now - I’ve taken a picture for you. I left a message for my consultant yesterday to contact me as my renal consultant took pictures last week and said he would forward on to my rheumatologist. I haven’t heard anything back yet though. Hope you have a lovely day and thank you again for replying to me.

Picture of my finger

[Tykle in reply to SamRigs]

It's always interesting to read about similar symptoms so thank you for sharing. There are so many different rashes associated with lupus that ruling other things out is often all they can do. I hope you get to the bottom of it.