Just a note to say how much I love everyone on here. Even when there are disagreements we manage to disagree agreeably and support each other.
I know the advice on here has likely saved my life as it got me to get better care and when I'm low or scared of the future I always find people on here to remind me I'm not alone in this.
Just wanted to take a moment to say how much I appreciate everyone here.❤️💕
Lupus is a lonely disease. I have lupus sle for 13 years yet i only discovered this site during covid shielding lockdown last year. There is another lupus uk site on facebook but i find this site more friendly. On here, i feel more a part of the "lupus family ". I am off work sick with flaring awaiting face to face rheumatologist appointment , when i was off work last year one of my colleagues said " oh' lucky you to be off work shielding and been paid while we have to work on the front line ". I was so upset to been made to feel i was skiving because i "don't look sick ". This forum has been the saving of me as i know i am not alone.
I get what you say Londongigi. People with mental health issues are also judged because nobody can see their disability. I’m Australian, and I can assure you it’s the same here- probably all over the world. But thank you for being part of a community who understands and cares. Wish you the best always
Too right Insomniacette! I only found this community in the last day, and I already feel less alone. This is a place of love and compassion and I want to thank you all for being here for others in need.♥️
I also love our forum - it’s the best and has bought me much comfort these last few months ❤️
Hello Insomniacette this forum has helped me so much. I felt very lonely when I was first diagnosed. It was during the first lockdown and I had a telephone call telling me I had lupus sle , I had no one to talk to I felt terribly alone but now I feel that I have a great big extended family. So caring and thoughtful. Thank you to everyone on here. X
Well said Insomniacette 🤗We all stumble into this forum in complete disarray..worried..asking questions etc and there's always someone to help!! 💜
Then in turn as one gets further on in there own journey..they in turn give advice n tips that worked for them for others who come here..in complete disarray..worried etc!! 😹
That's the beauty of this forum..we share lived experiences!!
It's my birthday today and my youngest daughter is coming for an overnight stay..she was thirty two days ago..so we've put up a couple of happy 30th birthday banners..so today I'm 30 (again)!! 😹 🌈😽😽Xx
Happy birthday KK have a fab time with your family 💝 x
Thank u SML 🤗🌈😽😽xx
🥳🥂🎂💐 xx
Daughters done her covid test this morning so we're good to go!! 👍😹🌈😽😽Xx
Great news now you can relax and enjoy ...have a drink for me xx
Happy Birthday Kat. I wish you a day filled with love and laughter and lots of cake. Have a fabulous day that you so deserve my friend 🎂🍾🥂💐🎉🎈xxx
Aww thank you Cecily 🤗This will be the last time I see my daughter for a good while as she's due to complete on buying a cattery!! 😻So I'm gonna make the most of it!!
I'll be in touch soon lovely..take care 💜🌈😽😽xx
She shared her Mum’s love of kitties then? Hopefully you can go and visit when the car arrives lovely. In the meantime enjoy your day xxx
Happy Birthday KK - ENJOY!!
🎂🎁🎉🎂🎁🎈🎉
Thank you Megs 🤗💜🌈😽😽xx
Wishing you a very Happy Birthday Krazykat26 enjoy your day 💖💐 🤗 xxx
Thank you 🐝🍯🐝We had a fab time 🌈😽😽xx
Yay! KK! And many more Happy Returns! Have a lovely time with your daughter on you Birthday 🎂🥂🌸💐🌹🤗😘🤗
Thanks 🐎We had a great time n when she left yesterday I was holding it together pretty well..until I went to bed n she'd left a note under my pillow!! 😭😭😭Happy tears though! 🌈😽😽Xx
Wishing you a happy birthday KK 🥳🎂🙌🏻🥳 I hope you’ve had a good one so far, and enjoy your evening , two birthday gals together 👍🙏😘🤗xx
Thanks Stiff 🤗We had a marvellous time!! There was a little blip when she was 'pinged' by the track n trace service at 9.30 in the evening!! She lives 150 miles away n had had a drink so couldn't really go anywhere. However the next morning she found out that a member of the team she works with has tested positive for covid. It was a relief coz she's been on holiday all week n had done a lateral flow test before she came to visit so thankfully we could relax n hug again!! We're all double jabbed but it was still a bit of a worry!!
U replied to me on a different post a few days ago.but I can't find it..I read it quickly n was going to respond n then I was sidetracked.sorry 😔🌈😽😽xx
Wow yes that was a bit of a worry , thank goodnesss she’d been off work all week . Glad all ok despite the worry and hope it didnt marr a great time, it doesn’t sound like it did 👍🤣
No worries , have a good weekend 👍🙏😘🤗xx
HAPPY BIRTHDAY Krazycat26!!!! Wishing you the best day ever!!!! 30 was a great year for me! Relive away!! 🤣Xxxxx
😹 Thirty was a great year for me too!! So I'm gonna forget these rickety old bones today..then rest for a few days afterwards!! 😹😴Thank you 💜🌈😽😽xx
I love it to, it has helped me a great deal, my granddaughter found this site for me and I'm so glad she did 🙏
Great post. I love this forum. I have “ met” some of the nicest, funniest, kindest people here. I never feel judged or patronised. This is our safe space xxx
Ditto that - this forum is the best!❤️
I second that , I’ve spoken to lovely supportive people here, care, advice knowledge, shared sadness and laughter and loves and dislikes, agree and disagree like you said. The journey is less lonely with friends along the road. 🤗
Medication stopped 
A Quick poem...
describe it/explain it
Anyone with a lupus specialist they love Surrey/Berkshire/West London?
