Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,394 posts

All posts for May 2021

Can your pharmacy still get Sunsense?

Morrisons are telling me their suppliers can’t get Sunsense until 2022. My GP surgery have substituted a Uvistat cream which I loathe. I have bought a 500ml...

Morrisons are telling me their suppliers can’t get Sunsense until 2022. My GP su...

Cathyan

•3 years ago

9 Replies

Newly Diagnosed Flare Up Question

Hi there. Diagnosed in December 2020. Im a PE teacher so obviously the fatigue has hit me hard. My question is about sun related flare ups. What exactly am i...

Hi there. Diagnosed in December 2020. Im a PE teacher so obviously the fatigue h...

ManiKochar

•3 years ago

1 Reply

2nd blood test positive

Hi hope all are ok Ice just received by 2nd blood test results, Ana dsdna positive so I'm now waiting confirmation from my dr , I have most of the other...

Hi hope all are ok Ice just received by 2nd blood test results, Ana dsdna positi...

Admiral59

•3 years ago

1 Reply

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Photo sensitivity

Hi again , not that I've been outside much in this dreadful UK weather but I'm new to all this and still learning, so can I please ask what you all use on your...

Hi again , not that I've been outside much in this dreadful UK weather but I'm n...

Sevenstar

•3 years ago

14 Replies

A big fat rant!

Hi all, just wanted somewhere to voice my frustration with my pain today. My leg muscles are so achey and sore this evening and I just feel like crying with...

Hi all, just wanted somewhere to voice my frustration with my pain today. My l...

nim98

•3 years ago

20 Replies

Sometimes spelling it out gets a response with Rheumatology!

Hello, Well , we are all guilty of getting on with things, when confronted with the wall of trying to get referrals to our own doctors, bloods let alone see...

Hello, Well , we are all guilty of getting on with things, when confronted wit...

BeeHoneyB

•3 years ago

1 Reply

Plaquenil and hairloss... will it stop?

Hello, I was diagnosed in October 2020 with Lupus STE, started on prednisone 5mg and two months later plaquenil 200mg once a day. Hairloss started a month...

Hello, I was diagnosed in October 2020 with Lupus STE, started on prednisone 5mg...

Lobos75

•3 years ago

11 Replies

Azathioprine replacing steroids cause nausea?

Hi all! I hope you’re well. So ive been trying to get off steroids for about three years now and the lowest ive ever gotten is 6mg. Time has come around again...

Hi all! I hope you’re well. So ive been trying to get off steroids for about th...

Sandy1212

•3 years ago

11 Replies

Lesions on tongue with whiteness

Does anyone suffer with lesions and whiteness on their tongue during a flare up. Its really sore. I have discoid lupus. Thank you for your support.

Does anyone suffer with lesions and whiteness on their tongue during a flare up....

SunshineFarm

•3 years ago

12 Replies

Diagnosed with lupus 18 months ago

Hi, I’m not new to this forum , though this is the first time I have posted. I have spent the last 10 months since signing up reading all your posts and...

Hi, I’m not new to this forum , though this is the first time I have posted. ...

YellowLego

•3 years ago

17 Replies

Finally given a diagnosis of Mixed Connective Tissue Disease

Hi guys, Been posting on here for a while, and everyone has been super helpful and provided much needed support and advice :) Just to give you an update, I see...

Hi guys, Been posting on here for a while, and everyone has been super helpful a...

Michellear

•3 years ago

26 Replies

Missed prednisone doses ?

I’ve been on a 6 course of prednisone which has now been extended to a low 5mg maintenance dose for the next 3-4 months whilst I get started on Azathioprine....

I’ve been on a 6 course of prednisone which has now been extended to a low 5mg m...

SashaT64

•3 years ago

8 Replies

Anyone taking MMF - Mycophenolate?

Hi everyone Im in a bad flare this past 12 months and my Rheummy has started me MMF to try to control things. Has anyone any experiences of this drug, all...

Hi everyone Im in a bad flare this past 12 months and my Rheummy has started me...

Shann07

•3 years ago

21 Replies

New to lupus

Hi all I was diagnosed with lupus and lupus N 4 weeks ago so its hard to get my head around it so much fear and anxiety of whats going to happen and whats...

Hi all I was diagnosed with lupus and lupus N 4 weeks ago so its hard to get my...

Hidden

•3 years ago

66 Replies

CIDP look it up could MASK LUPUS

I have 1) CIDP (link following) 2) anemia and 3) positive ANA However my neurologist say NO LUPUS (NOT enough symptoms) CIDP is also a complex...

I have 1) CIDP (link following) 2) anemia and 3) positive ANA However my neur...

dawiz

•3 years ago

1 Reply

Making appointment for SLE specialist

Hi everyone, Nice to meet you all here. I suffered from SLE for 10 years and the situation fluctuated every 3 to 4 years. I am going to move to UK from my...

Hi everyone, Nice to meet you all here. I suffered from SLE for 10 years and the...

HKGAL

•3 years ago

19 Replies

Special cutie pic

Hello everyone This week's cutie pic is a special edition for Spottyewe, Stormy and anyone else recovering or feeling ill after an operation or hospital stay...

Hello everyone This week's cutie pic is a special edition for Spottyewe, Stormy ...

misty14

•3 years ago

37 Replies

Another rash pic

Please guys does this look like a lupus rash , it's predominantly on my neck and chin but not across my nose or cheeks . It comes up and down throughout the...

Please guys does this look like a lupus rash , it's predominantly on my neck and...

Sevenstar

•3 years ago

7 Replies

AstraZeneca Vaccine 2 (Oxford)

I just had vaccine 2 and thought I'd post on how I get on with it. So far so good, but I'll edit this post with any updates over the next few days. I have...

I just had vaccine 2 and thought I'd post on how I get on with it. So far so goo...

Insomniacette

•3 years ago

7 Replies

Updates on ovaries and floppy nose

For background, had ovarian cysts and enlarged ovary. Been having endometriosis type symptoms and pain as well. Saw Gyn last week. Started progestin only birth...

For background, had ovarian cysts and enlarged ovary. Been having endometriosis ...

Jmiller623

•3 years ago

25 Replies

Blood Results

Hi all, Just wondering if anyone has had their bloods Checked for Lupus and it’s come Back clear even though your experiencing and have all the signs that’s...

Hi all, Just wondering if anyone has had their bloods Checked for Lupus and it’...

MaggieCrow

•3 years ago

7 Replies

Hey

hey can I ask does anyone notice a flare up around the time of their period currently waiting to be diagnosed and really looking to also ask about pregnancy is...

hey can I ask does anyone notice a flare up around the time of their period curr...

carleighsmum

•3 years ago

6 Replies

How has the Moderna (or any) vaccines been for you guys?

I got my first one as soon as I could in April, and I just got my second one today. I've heard things from other friends who don't have Lupus, and I'm kind of...

I got my first one as soon as I could in April, and I just got my second one tod...

nellie_4132

•3 years ago

13 Replies

Eyes

I had two days of a slight relief on hydro forte seems my body has now said I’m used to you now so do one. I’m going crazy with itching burning watering I am...

I had two days of a slight relief on hydro forte seems my body has now said I’m ...

Stellawillow

•3 years ago

23 Replies

A spoonful of love

Seen this in a charity shop, wanted to share it with you all xD

April2018

•3 years ago

12 Replies

Malar rash? Or somthing else?

Does anyone know if this looks like a Malar rash x

BabyOleg

•3 years ago

20 Replies

Mepacrine for Lupus Joint Pain?

I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine, mycophenolate, prednisolone and flecainide. The goal is to...

I’ve just been given a prescription for mepacrine to add to my drug cocktail of ...

ShannonB

•3 years ago

15 Replies

If you have some time to spare, I need your help!:)

Hi Everyone, This is my first time posting on here and strangely it has nothing to do with lupus itself. Yes I do have lupus, I was diagnosed with lupus...

Hi Everyone, This is my first time posting on here and strangely it has nothing ...

vasiliki_v

•3 years ago

13 Replies

Possibly Lupus

Hi Everyone, I am new to this forum and looking for some advice. Since November last year I have been suffering from a range of different symptoms. I have 3...

Hi Everyone, I am new to this forum and looking for some advice. Since November...

Running30

•3 years ago

40 Replies

Covid vaccine caused flair

Has anyone experienced a flair after the covid vaccine? I’ve been in remission for two years and since the covid vaccine, everything has flared up!

Has anyone experienced a flair after the covid vaccine? I’ve been in remission f...

joannebond360

•3 years ago

30 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2021

Can your pharmacy still get Sunsense?

Newly Diagnosed Flare Up Question

2nd blood test positive

Photo sensitivity

A big fat rant!

Sometimes spelling it out gets a response with Rheumatology!

Plaquenil and hairloss... will it stop?

Azathioprine replacing steroids cause nausea?

Lesions on tongue with whiteness

Diagnosed with lupus 18 months ago

Finally given a diagnosis of Mixed Connective Tissue Disease

Missed prednisone doses ?

Anyone taking MMF - Mycophenolate?

New to lupus

CIDP look it up could MASK LUPUS

Making appointment for SLE specialist

Special cutie pic

Another rash pic

AstraZeneca Vaccine 2 (Oxford)

Updates on ovaries and floppy nose

Blood Results

Hey

How has the Moderna (or any) vaccines been for you guys?

Eyes

A spoonful of love

Malar rash? Or somthing else?

Mepacrine for Lupus Joint Pain?

If you have some time to spare, I need your help!:)

Possibly Lupus

Covid vaccine caused flair

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2021

Can your pharmacy still get Sunsense?

Newly Diagnosed Flare Up Question

2nd blood test positive

Photo sensitivity

A big fat rant!

Sometimes spelling it out gets a response with Rheumatology!

Plaquenil and hairloss... will it stop?

Azathioprine replacing steroids cause nausea?

Lesions on tongue with whiteness

Diagnosed with lupus 18 months ago

Finally given a diagnosis of Mixed Connective Tissue Disease

Missed prednisone doses ?

Anyone taking MMF - Mycophenolate?

New to lupus

CIDP *look it up* could MASK LUPUS

Making appointment for SLE specialist

Special cutie pic

Another rash pic

AstraZeneca Vaccine 2 (Oxford)

Updates on ovaries and floppy nose

Blood Results

Hey

How has the Moderna (or any) vaccines been for you guys?

Eyes

A spoonful of love

Malar rash? Or somthing else?

Mepacrine for Lupus Joint Pain?

If you have some time to spare, I need your help!:)

Possibly Lupus

Covid vaccine caused flair

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

CIDP look it up could MASK LUPUS