I’ve just been given a prescription for mepacrine to add to my drug cocktail of hydroxycloriquine, mycophenolate, prednisolone and flecainide. The goal is to get a joint pain flare under control. Anyone have any success with this?
Mepacrine for Lupus Joint Pain?: I’ve just been... - LUPUS UK
Hi Shannon I’m a bit confused 🤷♀️ 🙂.. I thought that was hydroxychloroquinine? X
It’s another anti-malarial that apparently is sometimes taken alongside hydroxycloriquine although my pharmacy called to say they can’t get it from their suppliers?!
Ooh that’s interesting ... I expect someone else will post to say they take it
I have uctd and was allergic to hydroxycloriquine, so have been taking mepacrine daily for 6 years.
It has helped with joint pain and skin issues but if I'm honest, I think I'm getting more pain relief from a private prescription of ldn - low dose naltrexone.
Hope the mepacrine helps you xx
Hi there, I take Mepacrine along with hydroxy and mmf. I find it really helps. I have to get my tablets from the hospital pharmacy and if I miss a week whilst waiting for a new prescription I really notice the difference in the way I feel. Hopefully they will help you too x
Oh that’s great to hear. Thank you for replying ❤️🤞
Hi, if anyone is having problems with the supply of mepacrine - I used to get mine from Boots, supplied by BCM Limited Registered 2741673, D10, Thane Road, Nottingham, England, NG90 2PR but the supply was halted last year due to a batch containing possible particles of glass and rubber.
This was the batch I'd been using for at least 6 months.
BCM were kind enough to give me the details of another supplier in the UK:
Ascot Pharma Ltd
Address: Unit 1, Olds Approach, Tolpits Lane, Watford WD18 9TD
Telephone: 01923 711 971
Fax: 01923 710 388
24hr Emergency Number: +44 7952 992 395
At first, I could only get these through independent local chemist but for the last couple of months this brand has been obtainable from Boots.
Hope this helps x
Hi Shannon, I was on prednisolone for ITP in my teens and then again for a massive flare in my 20’s. It did the trick, however has left me borderline osteoporotic, so I have been on HRT since 1995. Thankfully, I don’t suffer from joint issues so haven’t been on the cocktail you have described.
Hi Shannon, I used to take mepacrin it was great for me for years worked really well. I used to have problems with hydrochloride and was put on it instead and it was night and day better. The downside is it has horrible taste I used to take a small drink keep it in my mouth and tilt head back drop tablet into mouth and swallow straight away then take another drink to wash it right down worth it though as was very effective. Unfortunately not as effective for me now but would recommend to anyone, hope it helps you.
Thanks currently on 400mg of hydrochloride daily helps a bit but i suffer from photosensitivity now pretty much on permanent lockdown. Haven't actually been seen at all since covid started hopefully the clinics up and running again soon.