Making appointment for SLE specialist: Hi everyone... - LUPUS UK

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Making appointment for SLE specialist

HKGAL profile image
19 Replies

Hi everyone,

Nice to meet you all here.

I suffered from SLE for 10 years and the situation fluctuated every 3 to 4 years.

I am going to move to UK from my country. I did some research in web and also learn about the NHS. But i still have no idea about the real situation in UK.

Could you please give me some advise on the procedure on making the appointment for Specialist or diagnostic test ?

Thank you so much for your help.

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HKGAL profile image
HKGAL
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19 Replies
Spanielmadlady profile image
Spanielmadlady

Hi.Here you either have to pay for a private dr or register with an nhs gp who can then do some tests and refer accordingly.i dont know if it depends on your immigration status .due to covid there is a backlog

HKGAL profile image
HKGAL in reply to Spanielmadlady

Thank you for your reply.Before i arrive in UK, i need to pay for IHS. So i think i am able to see GP.

Spanielmadlady profile image
Spanielmadlady in reply to HKGAL

That's good 👍 I guess not many of us need the deal with it on the immigration front. I hope it's a smooth transition for you. Are you coming from Hong Kong ? I hope you settle and enjoy living here.best wishes x

HKGAL profile image
HKGAL in reply to Spanielmadlady

Yes, i am coming from HK. Thank you

Spanielmadlady profile image
Spanielmadlady in reply to HKGAL

Safe journey when the time comes xx

Tiggywoos profile image
Tiggywoos

Hi

I live in Somerset and the wait time to see a rheumatologist is 52 weeks .

If you pay for private referral be very careful as the appointment itself isn’t really expensive but the blood tests are . All referrals private or nhs have to come from the General Practitioner . Some private hospitals like Nuffield do have their own private gp service .

Take care

Pmeh profile image
Pmeh in reply to Tiggywoos

The waiting list is the same in Cardiff:(

Tiggywoos profile image
Tiggywoos in reply to Pmeh

Oh that’s a shame 😟... I’m in limbo land at mo as saw consultant privately but says I need to be under NHS rheumatology clinic 🙄. Take care 😗

HKGAL profile image
HKGAL in reply to Tiggywoos

Woo! such a long queue.So does it mean I may need to wait for long time before i can transfer from GP to specialist?

The main problem for me is the kidney. Hope the waiting queue would not be too long.

Tiggywoos profile image
Tiggywoos in reply to HKGAL

Well I think it can depend on where in the county you live and also your GP . We do have Accident and Emergency departments but they will often refer you back to your own GP

Tiggywoos profile image
Tiggywoos in reply to HKGAL

Great that you’ve got medication ! And as other posts have mentioned I don’t see how they can argue with that x

HKGAL profile image
HKGAL in reply to Tiggywoos

Sorry i didn't read all the post here. What is it about? Argue with doctor?

Tiggywoos profile image
Tiggywoos in reply to HKGAL

I’m sorry I didn’t explain very well .. what I meant to say is if you are already taking medication the doctors here in the UK will be happy with that I’m sure x

LalSD profile image
LalSD

Hello, If you have a diognosis, please take the medication and confirmation with you. Upon arriving into UK, you must register with a local GP(google is great to help you identify one). Depending on your visa, you will be asked to provide your status in the UK (private patient?). Please ask the local GP to help you with relevant information. Your first appointment will be with a nurse and please book to see the GP to talk about access to your medications and referral to a hospital for close monitoring of the SLE. If you chose to go private, Royal Free in London had a set of brilliant doctors and offers private health option. Consultations are around £300 but blood tests and other treatments could cost a lot unless you have a private insurance which pays the bill, either self insured or by your company! It is always good practice to register with a local GP. It would do you more good than harm, and allow you to have a safety net, incase you need help, it can help you find your way around a new system. With best, Lale

HKGAL profile image
HKGAL in reply to LalSD

Thank you for your reply.I will prepare the medical record and latest diagnosis test result and bring it to the GP.

Probably i will bring long 10 months dose of medicine with me.

LalSD profile image
LalSD in reply to HKGAL

HKGAL, please note that the GP or any doctor should not dispute a diagnosed illness if you respond well to it’s treatment. It’s your life, and the medication that works is your right to be prescribed, not to be disputed (again unless there are valid health reasons).

That very brave of you, good luck and I wish you success x

Nadwana profile image
Nadwana

I left my country South Africa to UK in 2004,. My Rheumatologist wrote a referral letter which I presented to my GP in the UK who referred me to a Rheumatologist there. I wss hzppy with the consultants there. I have now relocated back to South Africa in December last year. All the best

HKGAL profile image
HKGAL

thank you Nadwana.So you got the referral letter from your own doctor in South Africa before you same to UK?

I think i should get one before i come too.

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