just wanted somewhere to voice my frustration with my pain today.
My leg muscles are so achey and sore this evening and I just feel like crying with the pain and the frustration of it all. The pain in my hands is so severe, I feel like I can pinpoint every single muscle in my hands and fingers at the minute.
I've been waiting 12 weeks so far for a referral and still no sign of it. I'm not eligible for the covid vaccine yet and the anxiety I have about getting it and my body not being able to fight it is so overwhelming. I'm not even able to get my referral isolated to an emergency appointment as my bloods came back clean.
I just have to sit here in pain and tired all the time and just WAIT. It's so frustrating and even though my partner is so understanding he just couldn't begin to actually understand the annoyance every day has become. I'm a young person and with restrictions lifting here in the UK, my social life is not recovering because of my anxiety, my tiredness and my pain. I can barely walk to the shop 10 minutes down the road at the minute and theres nothing I can do!
I know there's nothing anyone can do but I just needed to share my frustration with a group of people who would understand.
If you've read this far thank you and I hope you're having a nice week! <3
Written by
nim98
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I can relate to what you’re feeling and you have my empathy.
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Have you ever tried an Epsom Salt soak in the bathtub??
It’s great for muscle/connective tissue aches and it just might sooth some of yours as well.
Worth a try if you haven’t already.
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Have you ever tried lavender essential oil infusers to use as aromatherapy?? The scent is used to promote calmness and relaxation.
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Try listening to a soothing sounds CD like a trickling brook or birds chirping or whatever would be soothing to listen to?
I used birds singing myself.
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I’m sorry that you aren’t able to get your referral or your covid jabs. I fully understand your anxiety about the jab. So many people with various conditions do have a difficult time with the side effects.
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I just said a special prayer for you my friend. I hope that you will find relief soon and that everything will work out good regarding your referral jabs socializing and mobility as soon as possible.
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You can always chat with me if wish too. I’m now a disabled shut in so I’m always home.
Thank you 😊 for posting about Epsom salts . I remember soaking my hands and it really helped . Big hugs 🤗❤️👼xx You sent a lovely reply to nim98 .. loads of self help info which we can all use xxxxx
hi honeybug, Thank you so much for such a kind and thoughtful response. I will give epsom salts a go for sure!! I hope you have a lovely day and thank you for making mine 🥰🥰
You always have such understanding and also wonderful tips. You may be in the confines of your home but you are still able to provide amazing support and encouragement.
Oh hun I am sorry about your cancer. 98% of my family/relatives have had cancers of all kinds so I’m well aware of it.
If I may ask where is your cancer hun???
I’m so glad your almost through with your chemo and your PICC line will be removed. I know you’ll be ecstatic to get that out.
I pray you are cancer free and stay that way.
I’ve been praying 🙏 for you/everyone daily that your every need is met and as pain free as possible.
Thank you for the well wishes to escape the heat here. We’ve had temps well into the 90s for weeks with oppressive humidity. Also a short cold spell. We just got 3+ inches of rain in one night. Flooding occurred in or metro area but not right here. We were spared that nightmare thank God.
Sending you gentle fluffy hugs much support prayers and muck love Kay.
Oh sweetie I’m sooo very sorry that your cancer is colorectal.
How much pain you’ve been in…my Aunt Eva I’m named for had the very same thing.
Sorry I misunderstood that your PICC line was out last Friday. I’m so happy for you about that.
Down to eight radiation sessions. YAHOOO. 👏👏👏
I just prayed for you hun. 🙏I’m here for you just let me know.
Keep me updated on your
progress sweetie. 🤗
I miss our weather of my youth when the days were in the 70s with gentle breezes and occasional fluffy clouds that gently floated by.
Now we’re so humid and hot most days which is terrible for many of my conditions especially my inherited erythromelalgia and my hubby’s dad’s and brother’s serious heart conditions.
We have it good here compared to the Western States. I feel so badly for them.
I so sorry that you're heads ready to explode over the pain and waiting - while everybody else suddenly gets to get on with their lives.
I share your..........extreme emotions right now. I'm unwell and immuno - suppressed to the point where I've been told the vaccines wouldn't work - so pretty much trapped in the house - with odd sessions of sitting alone in the middle of nowhere right now.
I also understand how concerned you are about the anxiety and how you'll come through this in the end.
This is something I always forget - and have to constantly remind myself of - but these situations really are temporary- so don't loose sight of the fact that one day you're life will be normal and happy.
Its hard not to compare yourself to healthy people- but try try try not to right now.
I don't want to get all Buddist on you but - 'craving' or concentrating on what others have and you don't - is what can create the greatest misery of all for us.
If you can eliminate this craving thingi - as in literally train you're mind not to do it - It will go a long way to help.
Concentrate on what ever small good things you have that can help get you through this............
It really is a kind of - just how the ***k do I survive this thing until it's over in the best way possible.......like micromanaging misery- shuffling through it to find the things that will keep you from going insane until it's over.
It will get better.
💕
ps. sadly - If you have some extra money - praps part with it to see a Doctor earlier.
Hey Freckle, this was such a lovely response, thank you for taking the time to reply 😊I'm sorry you are also going through a tough time right now. The advice you give is so true and I will definitely try and focus less on other people now. Extra money is sadly not an option for me as a student but as you said, this is temporary so I will find a way through! Thank you again for your kind words. I hope you have a lovely day!😊😊💛
hi lovely so sorry to hear things are so rubbish. We do all understand and you've had some good useful responses.
Boring i know but definitely keep taking pictures of joints and rashes. List of all the symptoms too so that you are armed when you go for your appointment.
Maybe try speaking to GP about some additional pain relief?
I so wish I had a magic wand for all of us here that suffer from fatigue as I personally think its the worse thing ever and no one understands unless they've had it. It;'s like walking through treacle with lead boots.
Sending you so much love and things will get better. Self love is soooo important, even if that means just creaming your hands and feet . If you suffer from the cold and pain at night a heated electric blanket is fantastic . They are cheap on electric and about 20.00 to buy. honestly its changed my life (while at night anyway lol).
xxxx
Well done on your rant, it’s true that sharing helps us deal with bad days and sad days. Good days will come again and yes as you’re young it’s frustrating and you must feel like you’re missing a lot, I understand.The good thing is YOU ARE YOUNG, so years and years to catch up once your medication sorts you out. Each bad day is one you won’t have to do again and each new day will be different. Chin up 😉😉
Wow! What a painful and frustrating experience. Keep fighting! You are the one in pain, so grab all the info you can and be assertive. My husband had open-heart surgery and as they came to get him for surgery one of the docs mentioned x-rays. They did not take X-rays as I was with him the whole time they claimed the x-rays
were taken. Confronted two aggressive docs and one nurse. Very upsetting, but I won. They had the wrong patient. Scary.
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Small rant!
Newly diagnosed just a rant!!
Is drinking a big no no seems to be a new thing for me 
Huge Boil And then Meds Dispensed. Rant! 
