Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for July 2019

Hair loss

My niece has had long term lupus - now hair is very thin on top of her head and also scalp very red. I would like to buy her a good quality wig so she is less...

My niece has had long term lupus - now hair is very thin on top of her head and ...

Morvich

•5 years ago

2 Replies

Planquanil/Hydroxy Brands

I was given Quinoric 2 years ago and had a very bad reaction to it but want to retry a different brand, what brand is best please with any experiences or...

I was given Quinoric 2 years ago and had a very bad reaction to it but want to r...

riannabri

•5 years ago

2 Replies

Hair laser Helmet

Hi dose any one know if hair laser Helmets are helpful or harmful for Lupus patients who suffer with hair loss ???

Hi dose any one know if hair laser Helmets are helpful or harmful for Lupus pati...

Mozart12

•5 years ago

1 Reply

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Lupus UK Membership

Today, I applied for a one-year membership. I would like to know how soon will I get my welcome pack in the post and other membership information? Thanks

Today, I applied for a one-year membership. I would like to know how soon will I...

SLE-Warrior

•5 years ago

5 Replies

Pain in the sole of my foot

I have somtimes pain in the sole of my foot!! I also have somtimes cramps in my legs.. I just take MTX (7.5mg). I do nt know, what does this pain mean? Is it...

I have somtimes pain in the sole of my foot!! I also have somtimes cramps in my...

Tala59

•5 years ago

2 Replies

Hot hot hot

Sorry winging again had to come home today the sun has done me I’m absolutely knackered got to get my head down why dose the sun do this ????? Ps the wife got...

Sorry winging again had to come home today the sun has done me I’m absolutely kn...

Ianrussell69

•5 years ago

20 Replies

pains in feet

Hi All, I have stabbing pains in my feet but not too often, i didnt realise that this is related to lupus , the pain has caught me off guard a few times...

Hi All, I have stabbing pains in my feet but not too often, i didnt realise that...

jazband

•5 years ago

2 Replies

Has anyone had this?

Morning everyone, over the last few days I have been getting really painful feet and now the pain is moving round my body. Joint and muscle. This morning when...

Morning everyone, over the last few days I have been getting really painful feet...

Mocking

•5 years ago

1 Reply

Itchy scalp and thinning hair

Anyone recommend treatments for itchy scalp and dry brittle hair which is thinning. I get episodes of this from time to time but worse this time. Had Lupus for...

Anyone recommend treatments for itchy scalp and dry brittle hair which is thinni...

Doreen2014

•5 years ago

14 Replies

Update on second toe pain

Hello everyone, as promised here's an update as I went to podiatry today. He was very thorough, asked a lot about the pain and second toe and said its the two...

Hello everyone, as promised here's an update as I went to podiatry today. He was...

misty14

•5 years ago

25 Replies

Sixth Anniversay 🎂🍰🍾🍷😳

Happy Birthday Prince George! The night your mother went into labour with you, I was awake with the first symptoms of what has worsened over the last six...

Happy Birthday Prince George! The night your mother went into labour with you, I...

Lupiknits

•5 years ago

18 Replies

Confused with results

I am so confused with my blood results that are coming through?! I went to see the rheumatologist last Thursday and she diagnosed me with Lupus based on my...

I am so confused with my blood results that are coming through?! I went to see t...

Cyprusgal

•5 years ago

9 Replies

Hydroxychloroquine Availability - 22nd July 2019 Update

Hi everyone, As many of you will be aware, over the past few months we've been receiving an increasing number of enquiries from people who are struggling to...

Hi everyone, As many of you will be aware, over the past few months we've been ...

Paul_Howard

Partner•5 years ago

24 Replies

Hydroxychloroquine

I've just been diagnosed with discoid lupus the consultant has advised that I start taking this medication. Has anyone any experience with this ??

I've just been diagnosed with discoid lupus the consultant has advised that I st...

Gemllo

•5 years ago

7 Replies

Some items in the news.

Some people have reported sensitivities to electromagnetic fields. Here are 2 news items I have seen that i thought it worth sharing. There may be many more....

Some people have reported sensitivities to electromagnetic fields. Here are 2 ne...

overnighthearingloss

•5 years ago

5 Replies

Should I see a immunologist and neurologist privately as my dr is refusing to send me to one.

Am really struggling to cope on a daily basis with a very long list of symptoms of which the list lately is just simply never ending the latest is severe...

Am really struggling to cope on a daily basis with a very long list of symptoms ...

Hidden

•5 years ago

10 Replies

Armpit/chest pain

Wondered if anyone else with lupus experiences pain in left hand side of chest/armpit area. Rheumatologist sent me for Echo and heart etc looks ok but it’s a...

Wondered if anyone else with lupus experiences pain in left hand side of chest/a...

Jmcb123

•5 years ago

4 Replies

48 hours of mutations. Evening rashes are worse 🤷‍♀️ Or in my head

Literally my body has been going through something so strange. It started with small blisters on fingers, some not all that spread to the side of both arms....

Literally my body has been going through something so strange. It started with ...

Lisalou19

•5 years ago

25 Replies

Hi guys only me 🤦🏼‍♀️❤️

I was wondering dose anyone else get pressure in the face Ie teeth jaw nose neck it’s like it’s all joined that and my swallow plays up my eyes become well...

I was wondering dose anyone else get pressure in the face Ie teeth jaw nose neck...

Buckley123

•5 years ago

33 Replies

Lupus and Walking

I am having aches and pains in my feet because of the Lupus. I was thinking of getting a walking stick to reduce some of the pain I am feeling. What are some...

I am having aches and pains in my feet because of the Lupus. I was thinking of g...

SLE-Warrior

•5 years ago

7 Replies

UV light

Hello, I have lupus and I’ve been on methotrexate for 18months pus hydroxy and folic acid. My eyes have recently become more susceptible to outside uv light...

Hello, I have lupus and I’ve been on methotrexate for 18months pus hydroxy and f...

Sin123

•5 years ago

13 Replies

NEVER NEVER GIVE UP 👍🌈🎯😀X

We are all routing for you... Go girl, be 💪 strong x

hopegalore20

•5 years ago

Be the first to reply

How I feel right now!!!! A medical dart board waiting for the bulls eye 😔

This road is just far too long and too many bends!!!! I actually don’t care anymore what it is I just want to be normal and live a normal life with my...

This road is just far too long and too many bends!!!! I actually don’t care any...

Lisalou19

•5 years ago

38 Replies

Lupus and Hair Loss.

Since I have been diagnosed with Lupus from July 2019. I have been on strong steroid medication such as prednisolone and hydroxychloroquine and azathioprine. I...

Since I have been diagnosed with Lupus from July 2019. I have been on strong ste...

SLE-Warrior

•5 years ago

12 Replies

Update on is it a flare or hydroxy side effects? post

After being off the hydroxy since the beginning of the week due to possible side effects, I have seen my GP and have managed to get a pack of the Blackrock...

After being off the hydroxy since the beginning of the week due to possible side...

Genealogy66

•5 years ago

14 Replies

Are we there yet?

So my daughter saw the Paed rheumatologist at a Lupus centre of excellence yesterday. She was diagnosed as hypermobile at 8 and with "primary raynauds"...

So my daughter saw the Paed rheumatologist at a Lupus centre of excellence yeste...

Mom2Danni

•5 years ago

14 Replies

Shingles with your CTD anyone?

Hi all, It's been ages since I've been able to post. Life seemed to get hit with a bomb. Things are still not right yet, but I'm finding ways to pull focus...

Hi all, It's been ages since I've been able to post. Life seemed to get hit wit...

panda2

•5 years ago

52 Replies

Fluttering in chest

I have been told I have a heart murmur, but that it didn't sound serious. I'm not sure the Dr even "officially" diagnosed me with one. It only made an unusual...

I have been told I have a heart murmur, but that it didn't sound serious. I'm no...

Biloxi

•5 years ago

4 Replies

Now on Humira and MTX and a week of Steriods

Not liking having to get back on steroids but my Iritis flared back up on MTX and my joints are hurting like nobody's business. Also had a slew of bloodwork...

Not liking having to get back on steroids but my Iritis flared back up on MTX an...

OneLove2019

•5 years ago

3 Replies

Side effects of radiotherapy on patients with SLE

Hi I was diagnosed with lupus 11 years ago. I've been really lucky in that, aside from the initial flare (bilateral pleural effusion with a very small amount...

Hi I was diagnosed with lupus 11 years ago. I've been really lucky in that, asid...

Neontiger2203

•5 years ago

22 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2019

Hair loss

Planquanil/Hydroxy Brands

Hair laser Helmet

Lupus UK Membership

Pain in the sole of my foot

Hot hot hot

pains in feet

Has anyone had this?

Itchy scalp and thinning hair

Update on second toe pain

Sixth Anniversay 🎂🍰🍾🍷😳

Confused with results

Hydroxychloroquine Availability - 22nd July 2019 Update

Hydroxychloroquine

Some items in the news.

Should I see a immunologist and neurologist privately as my dr is refusing to send me to one.

Armpit/chest pain

48 hours of mutations. Evening rashes are worse 🤷‍♀️ Or in my head

Hi guys only me 🤦🏼‍♀️❤️

Lupus and Walking

UV light

NEVER NEVER GIVE UP 👍🌈🎯😀X

How I feel right now!!!! A medical dart board waiting for the bulls eye 😔

Lupus and Hair Loss.

Update on is it a flare or hydroxy side effects? post

Are we there yet?

Shingles with your CTD anyone?

Fluttering in chest

Now on Humira and MTX and a week of Steriods

Side effects of radiotherapy on patients with SLE

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