Discoid lupus advice needed

[Monkeypants]

Hi. I need some advice. My partner was diagnosed with discoid lupus 6 years ago. His sister has systemic lupus for 15 years and hers it managed by anti malaria tablets. Weve seen specialists and been to lupus clinic at st.thomas hospital in london. He has flare ups where he will have full blown systemic lupus symptoms for a few days. They have tried him on steroids and anti malaria tablets and he was physically sick on these meds and vomiting. The flare ups have reduced but he has now been diagnosed with high blood pressure, given meds and sent for blood test. Blood test revealed issues with cholesterol and liver. Receptionist told him this and booked him in for phonecall with Gp in a weeks time.im not having that and will get him appt with gp on monday. He does need to lose a bit a weight but only around 20 pounds. Im worried that issues with blood pressure, cholesterol and liver may all be connected with the lupus. Diet wise its very healthy.

Any advice would be greatly appreciated. Specialists have always said that if his blood was tested during flare up it may show systemic.of course its not that easy to get blood test when he does have a flare up.

[Winz]

I’ve had discoid lupus for around 30yrs. Have found steroids have never been effective no matter what dose (including IV administered over 24hrs)

Was given anti malaria (plaquenil) but limited success..eventually seen a consultant and he informed me that whilst this drug is similar in each brand, some people react better on particular brands...

After trial and error, I found the Zentiva brand is the one that works best for me. Consequently I’ve mentioned this to a few other people who have found they can tolerate this brand and that it has been more effective. May be worth a try if this isn’t the brand he’s currently on. Good luck x

[Monkeypants in reply to Winz]

Hi winz. Thankyou so much for taking the time to reply. I never thought of that re different brands. That is really reassuring for me to know this as have thought that no drugs would help. Thankyou ever so much xx

[Winz in reply to Monkeypants]

Yeah I know the frustration and to be honest I was somewhat sceptical When consultant said it but, he was right.

Everyone is unique and respond to different treatments. Stay positive and keep going, you’ll get there xxx