Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for July 2019

Painful knees - MRI

Hi, I’ve had a painful right knee for several months, and was referred for an MRI scan prior to any possible lupus diagnosis - since then the other knee has...

Hi, I’ve had a painful right knee for several months, and was referred for an M...

Mabel1234

•5 years ago

4 Replies

Fatigue, or just being lazy?!

I've just VERY recently been diagnosed with lupus and Class III lupus nephritis. The diagnosis came as something of a shock since I was actually feeling pretty...

I've just VERY recently been diagnosed with lupus and Class III lupus nephritis....

November90

•5 years ago

18 Replies

Coffee and Chat

Hi everyone Just to let you know north Devon lupus group are having their coffee and chat get together on Tuesday 9 th July at 11am at the Barnstaple Hotel....

Hi everyone Just to let you know north Devon lupus group are having their coffee...

misty14

•5 years ago

10 Replies

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walking disaster

Hello! first time poster. i'm trying to figure out what exactly is wrong with me, this is gonna be a book so please bear with me. I'm 39 years old when I was...

Hello! first time poster. i'm trying to figure out what exactly is wrong with me...

Litha

•5 years ago

15 Replies

Tingly feet

Does anyone suffer from what i describe as tingly feet. They driving me mad, been like it all day. Not had for some time...

Does anyone suffer from what i describe as tingly feet. They driving me mad, bee...

Sallmell

•5 years ago

22 Replies

Study seeking participants: How could music be used therapeutically to help women express & process their emotions following a miscarriage?

THIS STUDY IS NO LONGER RECRUITING PARTICIPANTS. We have been approached by Katie Richards (Final-year MA Music Therapy student at UWE Bristol)...

THIS STUDY IS NO LONGER RECRUITING PARTICIPANTS. We have been approached by Kat...

Paul_Howard

Partner•5 years ago

9 Replies

Dry flaking skin

Good morning fellow lupies. I have Lupus with an overlap disease of Sjogren’s Having major issues at mo with dry flaking skin on arms and legs. So much so...

Good morning fellow lupies. I have Lupus with an overlap disease of Sjogren’s ...

Hollydebs

•5 years ago

29 Replies

DNA testing

Can you order a DNA test on someone who is already on your birth certificate as your father? If so how do I go about it,he wont just concent to it.and does...

Can you order a DNA test on someone who is already on your birth certificate as ...

4bre

•5 years ago

2 Replies

Weird marking

Hi guys me again sorry 😐 I have this weird marking on my skin same marking when this all happened my neurologist was annoyed I didn’t take a pic so have this...

Hi guys me again sorry 😐 I have this weird marking on my skin same marking whe...

Buckley123

•5 years ago

13 Replies

Losing weight

Hi,I’m on cortisone drug at the moment for ck muscles inflammation but why am I losing weight ? I’m a bit scared there’s something else going on , I’m going to...

Hi,I’m on cortisone drug at the moment for ck muscles inflammation but why am I ...

Melaxx

•5 years ago

6 Replies

Epo Injection

Due to go get bloods taken then get started on Epo injections very shortly, has anyone had any experience of this and if so can you shed any light on it...

Due to go get bloods taken then get started on Epo injections very shortly, has ...

Hidden

•5 years ago

3 Replies

Sun protective clothing - problem with odour

I am new at this forum and I don´t know if my question belongs here but I really need help. Now I am housebound due to sun sensitivity and am actually...

I am new at this forum and I don´t know if my question belongs here but I really...

Pink123ice

•5 years ago

9 Replies

Dry eyes and mouth now Dizzy then buzzing in ear now throbbing pain behind ear on bone

As from my eatlier posts ive been suffwring with dry eues and mouth. This week ive been going dizzy when moving my head out of the blue i got a buzzing noise...

As from my eatlier posts ive been suffwring with dry eues and mouth. This week i...

Yellow-Petal

•5 years ago

17 Replies

Ultrasound of hands

Hey, Today I was back at guys hospital to get the ultrasound done of my hands and wrists. The man doing the scan said there were no signs of active...

Hey, Today I was back at guys hospital to get the ultrasound done of my hands an...

LouLamb

•5 years ago

9 Replies

Struggling

Hi I'm really struggling dry cough worse than anything right down in my lungs, nothing is helping, my GP is very nice but does not know anything about Lupus or...

Hi I'm really struggling dry cough worse than anything right down in my lungs, n...

Kriss53

•5 years ago

2 Replies

Raynaud's treatment

Has anyone with Raynaud's been prescribed Amlodipine? I would be interested to hear experiences. I have it sat in my cupboard but am cautious as I keep being...

Has anyone with Raynaud's been prescribed Amlodipine? I would be interested to h...

Hidden

•5 years ago

25 Replies

First time ever akin rash ??

Hi guys I was sitting in the sun with jeans on and my legs where really really burning so much so I had to take them off. I’m normally completely fine in the...

Hi guys I was sitting in the sun with jeans on and my legs where really really b...

Buckley123

•5 years ago

15 Replies

Possible lupus in 4 year old?

Every summer since my daughter was 6 months old she has gotten this rash after being in the sun for an extended time. The rash is only on her face. she will...

Every summer since my daughter was 6 months old she has gotten this rash after b...

Meggdarce

•5 years ago

4 Replies

I think I might have shingles

Hi everyone I suspect that I may have shingles..I have SCLE n I had shingles in 2009 which I didn't get any treatment for..I hadn't been diagnosed with lupus...

Hi everyone I suspect that I may have shingles..I have SCLE n I had shingles in ...

Krazykat26

•5 years ago

29 Replies

LUPUS EUROPE’s ‘Kick Lupus’ 2019 Competition

LUPUS EUROPE’s ‘Kick Lupus’ 2019 competition is now open! What does ‘Kick Lupus’ mean? It means to do what makes you happy, live your life as best as it can be...

LUPUS EUROPE’s ‘Kick Lupus’ 2019 competition is now open! What does ‘Kick Lupus’...

Chanpreet_Walia

LUPUS UK•5 years ago

9 Replies

I think I broke my brain 😳

I'm from a small - somewhat isolated rural town in western Victoria - Australia and recently had an unsucessful chat to the CEO of our local hospital about not...

I'm from a small - somewhat isolated rural town in western Victoria - Australia ...

Freckle1000

•5 years ago

30 Replies

over the past 3 months the whites of my eyes have gone a blueish Colour has anyone else had this problem or should I got back and see my n

over the past 3 months the whites of my eyes both have gone a blueish Colour has anyone else had this problem or should I got back and see the neurologist

over the past 3 months the whites of my eyes both have gone a blueish Colour h...

Dpope01

•5 years ago

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Prednisone

I've been put on Prednisone for (suspected) lupus nephritis - still waiting for the biopsy results to come back, but the consultant I saw says he is 99% sure...

I've been put on Prednisone for (suspected) lupus nephritis - still waiting for ...

November90

•5 years ago

12 Replies

How can I own this disease instead of it owning me 😞

I have Lupus for 9 years and I’ve managed to live with it for most of the time but just lately I feel like it’s running my life instead of me running it. I...

I have Lupus for 9 years and I’ve managed to live with it for most of the time b...

Kelihunt41

•5 years ago

21 Replies

Trying to remain chronically happy and terminally optimistic in the face of chronic and teriminal illnesses.

I have a few medical Heroes whom I aspire to live and even die like. Micheal j Fox, Christopher Reeves, and an aunt who faced her stage four cancer with out...

I have a few medical Heroes whom I aspire to live and even die like. Micheal j ...

Roarah

•5 years ago

43 Replies

Burning hot hands and feet,ike got water filling them... 2/3 times a day?

I am having lots episode's of my hands and feet, often more the right, feel hot and like filling up with water... My hands feel tight.. Can't see anything, but...

I am having lots episode's of my hands and feet, often more the right, feel hot ...

Luppykate

•5 years ago

7 Replies

Annual Patient Event ‘The Big Three – Lupus, Hughes Syndrome & Sjögren’s Syndrome’

The Big 3 Annual Patient event for 2019 has now sold out. Please note change of venue due to high demand: Glaziers Hall, 9 Montague Close, London Bridge SE1...

The Big 3 Annual Patient event for 2019 has now sold out. Please note change of ...

Chanpreet_Walia

LUPUS UK•5 years ago

1 Reply

Insomnia on CellCept? Sleeping pills that helped?HELP

I have been on cellcept for around 1 month, I started it for lupus nephritis. I noticed sleep issues as I was titrating up from 500mg, I am now on 1gram BID...

I have been on cellcept for around 1 month, I started it for lupus nephritis. I ...

NewEngland3

•5 years ago

1 Reply

Dr Bickerstaff -London lupus centre

Hi there, I just want to put out there first that I’ve only recently discovered this resource and it has become a lifesaver-everyone is so helpful and...

Hi there, I just want to put out there first that I’ve only recently discovered ...

Waldo18

•5 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2019

Painful knees - MRI

Fatigue, or just being lazy?!

Coffee and Chat

walking disaster

Tingly feet

Study seeking participants: How could music be used therapeutically to help women express & process their emotions following a miscarriage?

Dry flaking skin

DNA testing

Weird marking

Losing weight

Epo Injection

Sun protective clothing - problem with odour

Dry eyes and mouth now Dizzy then buzzing in ear now throbbing pain behind ear on bone

Ultrasound of hands

Struggling

Raynaud's treatment

First time ever akin rash ??

Possible lupus in 4 year old?

I think I might have shingles

LUPUS EUROPE’s ‘Kick Lupus’ 2019 Competition

I think I broke my brain 😳

over the past 3 months the whites of my eyes have gone a blueish Colour has anyone else had this problem or should I got back and see my n

Prednisone

How can I own this disease instead of it owning me 😞

Trying to remain chronically happy and terminally optimistic in the face of chronic and teriminal illnesses.

Burning hot hands and feet,ike got water filling them... 2/3 times a day?

Annual Patient Event ‘The Big Three – Lupus, Hughes Syndrome & Sjögren’s Syndrome’

Insomnia on CellCept? Sleeping pills that helped?HELP

Dr Bickerstaff -London lupus centre

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