Hi guys as a lot of you know my bloods are all negative but I do have some organ involvement (brain) and lymph nodes go up and down like a yo-yo.
My question is how will I ever get a real diagnosis? With no blood work ?
Surely with inflamed lymph nodes in my scan is a sign of inflammation yet all my markers are negative even in the brain apparently the white lesions are inflamed then they turn to scarring I have many of those but no bloods.
How can you tell if your aps negative or lupus negative I generally believe it a mixture of aps as Doctor kaul suggested and lupus as my neuro was so certain before my negative bloods and as doctor Cruz told me my neurologist is hardly ever wrong.
I’m sure my emg nerve test was negative yet my muscles move around a lot twitching all the time
my lumber puncture was also negative
I have another brain scan in a few days so will be interesting to see if I have anymore new lesions, if I do I’m in trouble because nothing else is backing me up and I I know from my mum that the scarring can not be undone xx