I have just been diagnosed with Lupus. My ANA and Anti Ro was also +. Anti DsDNA was neg. Rhemo factor also neg. I dont have any outward signs of any illness like rash , joint pain etc. Also no issues with dryness with eyes etc
I did however have fever for a long time and the cause could not be found. at the time the WBC count was very low and still low. Also protein in urine was found. Also very little water on the walls of heart and lungs.Also had Herpes virus at the time.
I was on cortisone and antibiotics and antiviral while in the hospital.
Now i am fine and dont see any issues at all.
Is this really Lupus ? I am not fully convinced.
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GodsGlory
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It sounds like me to be honest - I have never had skin symptoms or joint pain either, but also had low WBC and kidney involvement. My Ana and Anti-Ro were also + but I also had Anti-Sm +. It could be that you now just have remission and you'll be one of the lucky ones who doesn't experience a lot of problems day-to-day? On the positive side, at least having the diagnosis means that you will get the right treatment if problems do arise. Good luck! x
My Protien - Kreatin ratio in urine is in normal range
but just protien level is a bit high.
So which value is to evaulated for protenuria ?
Hi,
“...Now i am fine and don't see any issues at all.
Is this really Lupus ? I am not fully convinced.”
Yes and no🤔!?
Yes, you seem to have lupus according to the diagnostic criteria which many who have numerous issues plus GP are left scratching their heads for a frustratingly long time.🤔...But?
As November90 says you may be in remission?..but for how long but please take care as there are many “triggers” that can INDUCE a flare! Sunlight, stress, life events, medication, later genetic expression?
...and there are many grades of flare: mild, moderate, severe, serious etc etc...
Who knows? Current dormancy, latency?🤔
As most agree lupus is a relapsing/remitting disease which can affect/involve ANY organ and many here have the most awful of personal experiences and suffering including a lot of pain😥😰.
Note that we all have different lupus signs and manifestations which confound many medics but getting a a diagnosis is one big hurdle which gives a sense of relief?
The immune system and body are truly complex and who knows when, where and how it (lupus) will start to attack itself or manifest?
Keep well, continue with the optimistic thoughts but as a “loopie “ myself I am always nervous of what could be around the corner (for no apparent) reason. God knows???
It’s essentially about levels/percentages of autoantibodies and different interpretations by the medics. Hence we have different interpretations of the lab test results for different patients and different ranges as to what is seen as “normal” vs “abnormal”?
“...The results of an anti-dsDNA test are usually considered together with a person's medical history, signs and symptoms, and results of other autoantibody tests.
A high level of anti-dsDNA is strongly associated with SLE and is often significantly increased during or just prior to an SLE flare-up. If the anti-dsDNA is positive and the person tested has other clinical signs associated with SLE, then there is a strong possibility that this is due to SLE.. This is especially true if an anti-Sm test is also positive.
A very low level of anti-dsDNA is considered negative but does not exclude a diagnosis of SLE. Only about 50-60% of those with SLE will have anti-dsDNA. Low to moderate levels of the autoantibody may be seen with other autoimmune disorders, such as Sjögren syndrome and mixed connective tissue disease (MCTD).
Anti-dsDNA tests are semi-quantitative and may be performed using different assays. Many laboratories use an anti-dsDNA ELISA test (enzyme-linked immunoabsorbent assay), a very reliable and sensitive test...”
With my definite lupus nephritis diagnosed by a hospital consultant nephrologist including my conveyed symptoms, the letter to the GP reads,”...a ‘full house’ ? indeed of autoantibodies to dsDNA...”
Hence as lupus patients we need continual monitoring, diagnosis, management and treatment by specialist physicians plus having to live with remissions, relapses, ignorance etc but...
reassurance from the genius Albert Einstein tells us,
HI, I too do not have more than an age related number of skin issues, aches and pains and negative RA factor but I have systemic lupus with Antiphospholip syndrome. My only symptoms are less painful but more life threatening, i.e. Kidney issues and strokes. When I was diagnosed marlar rash, fever, protein in the urine and organ involvements(heart) were the symptoms doctors looked for rather than fatigue and arthritis when testing specifically for lupus. Back than, almost thirty years ago , those were the only reasons to run the ANA test it seemed. You should be followed and treatment to get your kidneys and heart functioning again is important.
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