Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2017

Long term effects of being on steroids?

I am new to the forum and would like to know the long term effects of steroids.

Nadine_K

•7 years ago

17 Replies

Lupus awareness day

We attended Hampshire lupus awareness day on Saturday and it was excellent. Different professionals did talks and my hubby and me learnt so much about my...

We attended Hampshire lupus awareness day on Saturday and it was excellent. Diff...

Shelby1501

•7 years ago

3 Replies

Reminder West Midlands Cake Sale for World Lupus Day

Hi just thought I'd remind people about this event for anyone living in West Midlands UK. Please support this event held in Dudley UK, for World Lupus Day...

Hi just thought I'd remind people about this event for anyone living in West Mid...

fabwheelie

•7 years ago

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Please be careful when stopping drugs.

Hi I don't usually post but read everyday. I have lupus fibro and Parkinson's. I have just read dragonflys post re side effects and stopping drugs. I just want...

Hi I don't usually post but read everyday. I have lupus fibro and Parkinson's. I...

Bea6

•7 years ago

17 Replies

Felodipine and EM?

Have been given Felodipine to help lessen the chilblains I've developed on my toes as well as the Reynaud's. Wondering, though, if anyone has had experience...

Have been given Felodipine to help lessen the chilblains I've developed on my to...

bengali

•7 years ago

3 Replies

methotrexate

Got told the other day that i was starting methotrexate seen as azathioprine wasnt helping at all. Anybody have any side affects when taking this please let me...

Got told the other day that i was starting methotrexate seen as azathioprine was...

elliejo2103

•7 years ago

26 Replies

Mycophenolate begone!

Hi, was going to post on Barnclowns myco thread but decided that any negative reaction to mycophenolate probably should go somewhere else. Spoiler alert - not...

Hi, was going to post on Barnclowns myco thread but decided that any negative r...

Dragonfly4

•7 years ago

26 Replies

David D'Cruz at St. Thomas hospital

Has anyone seen this chap? I got referred to this hospital to see a cardiologist called Dr. Redwood after having several heart attacks last year (no heart...

Has anyone seen this chap? I got referred to this hospital to see a cardiologist...

Kimbobaggins81

•7 years ago

5 Replies

Prednisolone 'come down' vs flare?

Hi everyone, Just before Christmas, I experienced a bad bout of costochondritis, which ended up with me being off sick from work for a few weeks. My regular...

Hi everyone, Just before Christmas, I experienced a bad bout of costochondritis...

Nurseladybird

•7 years ago

6 Replies

Lupus and methotrexate

I have been taken methotrexate jabs for over a year,the nausea horrible and feel its put weight on me,has anyone elses weight increased with mtx?,got my bloods...

I have been taken methotrexate jabs for over a year,the nausea horrible and feel...

Jeffscott69

•7 years ago

1 Reply

Ana positive but not clear about the diagnosis

Hello first time to post. I went to the rheumatologist yesterday for the second visit. And I forgot to mention I get these clear blister type bumps on my...

Hello first time to post. I went to the rheumatologist yesterday for the second ...

Kfrankie

•7 years ago

4 Replies

Cannabis oil (cbd) for lupus

Hi. I have had lupus for many years and due to a prolonged period of stress I have had a flare now for many months with all the achy, fatigue and other...

Hi. I have had lupus for many years and due to a prolonged period of stress I ha...

Blueeyes57

•7 years ago

16 Replies

Red fingers and red and white mottling, all under skin- comes on when hands warm up. Throbbing, swollen feeling and burning type pain.

Hi, Can anyone identify with this? I don't get white or blue fingers. It happens often when I'm out walking or just when my hands start to feel warmer (I have...

Hi, Can anyone identify with this? I don't get white or blue fingers. It happens...

Poppyfields65

•7 years ago

47 Replies

Rashs elsewhere ?

Hi everyone I'm just wondering forby the face rash do you get rashs elsewhere? I have had marking on my legs the 2017 one was when I sat in the sun I had thick...

Hi everyone I'm just wondering forby the face rash do you get rashs elsewhere? I...

tobie

•7 years ago

7 Replies

Haemophilus Influenzae

Hi Had anyone ever had Haemophilus Influenzae? Been unwell for months with what everyone thought was a chest infection, couldn't get rid of it with 3 lots of...

Hi Had anyone ever had Haemophilus Influenzae? Been unwell for months with what ...

joannebond360

•7 years ago

16 Replies

One sided pulsatile tinnitus: visit to ENT

This may be a double post - thought I'd posted about it yesterday, but it can't find it, so please be gentle with me. I've been aware of rather annoying...

This may be a double post - thought I'd posted about it yesterday, but it can't ...

Lupiknits

•7 years ago

21 Replies

My sister has lupus

Hi everyone. I don't have lupus but my sister does. Is there an easy link that I can send her that will connect her straight to this site?

Hi everyone. I don't have lupus but my sister does. Is there an easy link that I...

katura

•7 years ago

3 Replies

Yay

Things looking up again . Almost back to my usual pains I just PASSED my theory . Half way there now 🙂🙂

Things looking up again . Almost back to my usual pains I just PASSED my theor...

LouLamb

•7 years ago

9 Replies

I'm new to this site

After a good few years being treated for sjogrens syndrome, I've now been diagnosed with SLE - after been rushed to hospital with difficulty breathing -...

After a good few years being treated for sjogrens syndrome, I've now been diagno...

taylo23

•7 years ago

6 Replies

Bruises and chickenpox

Hi everyone, I have two questions to ask. I had chicken pox has a child and have had shingles as an adult, my granddaughter has just gone down with chickenpox...

Hi everyone, I have two questions to ask. I had chicken pox has a child and hav...

Gillyg

•7 years ago

13 Replies

Soft tissue injury from a fall

Yesterday I fell...stupid accident but fell over my darling 6 month old puppy who was faithfully lying behind me. As I turned around, unaware that she was...

Yesterday I fell...stupid accident but fell over my darling 6 month old puppy wh...

VanK

•7 years ago

5 Replies

Lupus and PMR any Link

I have Lupus, APS, Hashimotos and sjrogens My father (83) had a sudden onset of crazy symptoms and has been hospitalised for a month with a CRP of 224 and ESR...

I have Lupus, APS, Hashimotos and sjrogens My father (83) had a sudden onset of...

riannabri

•7 years ago

14 Replies

pain in legs.

i thought i had a stroke last feb 2016. but it turned out not to be the case. instead i'm left with pains in the legs when i try to walk. the lupus clinic at...

i thought i had a stroke last feb 2016. but it turned out not to be the case. i...

robinson9

•7 years ago

4 Replies

Are you in worse condition when you are having period? Because I am

Hi! I noticed that my symptomps are worse when I have my period. I have more hairloss, I have more headache, and I feel more tired. Anyone experience this too?...

Hi! I noticed that my symptomps are worse when I have my period. I have more hai...

Babymilo

•7 years ago

3 Replies

Help

I have question... I've been having severe back pain and I've been super lightheaded all day today.... I don't know if I damaged anything last week had bad...

I have question... I've been having severe back pain and I've been super lighthe...

Mealfredo78

•7 years ago

4 Replies

Pericarditis and pleurisy

I'm interested to know how people have been diagnosed with pericarditis or pleurisy. Did the doctors hear something when listening to your chest? Abnormal ECG...

I'm interested to know how people have been diagnosed with pericarditis or pleur...

Poppyfields65

•7 years ago

14 Replies

Feel over dramatic

My pain is still there . It has started to ease up and is not as bad as Tuesday . Hopefully by Saturday it will be gone back to normal daily pains . I feel...

My pain is still there . It has started to ease up and is not as bad as Tuesday ...

LouLamb

•7 years ago

3 Replies

Recent blood test results?

Just checking if SLE can be the cause of low HDL cholesterol and RDW? I've never had a problem with cholesterol and noticed my HDL should be 1.3 mmol/L and...

Just checking if SLE can be the cause of low HDL cholesterol and RDW? I've neve...

MissFG

•7 years ago

4 Replies

ready to give up.....

Not feeling the best at the moment, having alot of sharp dull aches in my bones very hard to explain the pain. I feel like my rhumy is no longer interested, my...

Not feeling the best at the moment, having alot of sharp dull aches in my bones ...

Hidden

•7 years ago

12 Replies

Second Opinion Next Week 😓

Good morning my wonderful friends, Sorry been very quiet lately but I'm - to be blunt - knackered 😑 Still up and down the M6 to see MIL and I'm so tired that...

Good morning my wonderful friends, Sorry been very quiet lately but I'm - to be ...

Charliebear68

•7 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2017

Long term effects of being on steroids?

Lupus awareness day

Reminder West Midlands Cake Sale for World Lupus Day

Please be careful when stopping drugs.

Felodipine and EM?

methotrexate

Mycophenolate begone!

David D'Cruz at St. Thomas hospital

Prednisolone 'come down' vs flare?

Lupus and methotrexate

Ana positive but not clear about the diagnosis

Cannabis oil (cbd) for lupus

Red fingers and red and white mottling, all under skin- comes on when hands warm up. Throbbing, swollen feeling and burning type pain.

Rashs elsewhere ?

Haemophilus Influenzae

One sided pulsatile tinnitus: visit to ENT

My sister has lupus

Yay

I'm new to this site

Bruises and chickenpox

Soft tissue injury from a fall

Lupus and PMR any Link

pain in legs.

Are you in worse condition when you are having period? Because I am

Help

Pericarditis and pleurisy

Feel over dramatic

Recent blood test results?

ready to give up.....

Second Opinion Next Week 😓

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