Sore tongue : Hello My daughter is nearly 5 years... - LUPUS UK

LUPUS UK

31,597 members28,006 posts

Sore tongue

yang profile image
yang
6 Replies

Hello

My daughter is nearly 5 years old, since 8 months ago her tongue frequently started getting different symptoms... some times get ulcers, some times get strawberry tongue, but most of time it has very small Blisters and small white Spikes. It is very very painful.

We have had 4 blood tests already so far, everything is normal apart from ANA 1:320. The consultant gave her antibiotics firs then prednisolone, none of them was working, especially when she took prednisolone her symptom got worse, so we stopped it after 3 days.

The GP, Consultants, NHS, Private, we have tried absolutely everything, nobody seems has a answer for my little girl's tongue problem.

Have researched a lot recently, a lot people is talking about B12, but the GP says my daughter's B12 level is normal, should I give it a try anyway?

Please please help if anyone here has a idea or had a similar problem.

I am hoping some reply this message.

Thank you.

Written by
yang profile image
yang
To view profiles and participate in discussions please or .
Read more about...
6 Replies
janetfmauk profile image
janetfmauk

I have a permanaently sore mouth and its not just my tongue along with a dry mouth. I got a referral to a Sjogren's specialist at the Royal London Dental Hospital (under Bart's Hospital). My Sjogren's was confirmed by an ultra sound scan and she suggested I try diluted Difflam - I have but it 'zings' my mouth and only seems to deaden the good parts. I have persevered with it but it hasn't really helped the soreness. She has prescribed a drug Polycarpine but this has unfortunate side effects and I may not be able to cope with it, however at present I can't even try it as it is out of stock!! I am not allowed to chew gum due to the state of my teeth.

yang profile image
yang in reply to janetfmauk

Thank you Janetmauk, my wife took her to Dentist today and he is referring us to see a specialist, just have to try everything and anything.

Thank you for the reply.

Purpletop profile image
Purpletop in reply to janetfmauk

Jane, may I ask who the specialist was at Barts that dealt with Sjogrens effect in the mouth? And how did you find them? It's always worth knowing for future reference!

Cas70 profile image
Cas70

I find that Vit D plus B12 helps keep this at bay. Speak to Doc about child dose of Vit d - we all need it and she could be low on this. Also live yoghurt just a spoonful or two - not the sweet stuff - proper live yoghurt - Greek ones are good. Good luck

yang profile image
yang in reply to Cas70

Thank you very much Cas70.

Definitely going to ask doctor about Vitamin D and try the yoghurt trick.

Thank you for the info.

All the best

janetfmauk profile image
janetfmauk

I spelt the drug incorrectly it is Pilocarpine. I hope the specialist can help.

You may also like...

sjogren's syndrome and sore/swollen tongue

very swollen and sore, has been for some time now and I was just wondering if anyone else gets...

Query pins and needles in lips and tongue

January. Reading some of the posts here there seems to be a lot of pins and needles, has anybody...

Red painful sores on fingers

diagnosed, with many symptoms being dismissed. I am also wondering if the injury has caused my...

Lesions on tongue with whiteness

anyone suffer with lesions and whiteness on their tongue during a flare up. Its really sore. I have...

Help: How to treat cold sores?

Hello all. I have a nasty but relatively small cold sore in the corner of my mouth...am a bit run...