Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,928 members • 28,257 posts

All posts for November 2016

Provide your input to the Government Green Paper on Work & Health

I'm aware that this is a hotly discussed topic at the moment and so I wanted to make you aware of an engagement webinar specifically for service users. It is...

I'm aware that this is a hotly discussed topic at the moment and so I wanted to ...

Paul_Howard

Partner•8 years ago

8 Replies

ANA blood test results

Hi all I am just wondering if an ANA test sis a definite test for lupus. I have been having the odd aches and pains along with the odd headache, fatigue, weird...

Hi all I am just wondering if an ANA test sis a definite test for lupus. I have ...

chelsealouise33x

•8 years ago

11 Replies

Rituximab??

Hi everyone it's been a while since I posted. Hope all doing ok. Quick question. I have just been told that my next treatment will be the rituximab infusion as...

Hi everyone it's been a while since I posted. Hope all doing ok. Quick question....

Carbar

•8 years ago

5 Replies

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Lupus Rash Continued

can anyone relate? those dark spots come and go spread over my whole leg both sides ankles too. Not the best picture sorry

can anyone relate? those dark spots come and go spread over my whole leg both si...

Jtrowers

•8 years ago

1 Reply

Lupus Rash?

I get random bumps like that on my legs and even smaller reddish purple ones that appear like bruises then disappear. Anything common or similar??? I know one...

I get random bumps like that on my legs and even smaller reddish purple ones tha...

Jtrowers

•8 years ago

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Finally started initial blood tests to find out what is wrong with me. Any advice?

Hi Everyone So for the past couple of years I've been suffering from quite a large variety of symptoms which have been gradually getting worse as time goes......

Hi Everyone So for the past couple of years I've been suffering from quite a lar...

Nat1291

•8 years ago

7 Replies

Autoimmune consultants - Manchester

Hi friends, do you know of a good consultant in Manchester. Currently under rheumatologist, but I don't think he specialises in autoimmune. Thanks Babs x

Hi friends, do you know of a good consultant in Manchester. Currently under rhe...

babssara

•8 years ago

6 Replies

Lupus and epilepsy

I would love to know if any other lupus sufferers are struggling with epilepsy too. I struggle on with the pains and almost constant fatigue of lupus and have...

I would love to know if any other lupus sufferers are struggling with epilepsy t...

fifibee

•8 years ago

3 Replies

Been here a while, reading and sympathizing

I had miscarriages in 97 & 98, they diagnosed me in 98. I was on baby aspirin & heperin shots 3x/day!! But lost my baby at 5 1/2 months! The first one was 6...

I had miscarriages in 97 & 98, they diagnosed me in 98. I was on baby aspirin & ...

Tkt3699

•8 years ago

1 Reply

Is this yet another symptom, feel like someone is crushing my ribs.

Awful, when I exert myself (by that I mean climb the stairs) my stomach muscles feel like I've done hundred sit ups. The pain makes me bend double. This has...

Awful, when I exert myself (by that I mean climb the stairs) my stomach muscles ...

LottieD

•8 years ago

4 Replies

Dredded esa medical

Hi folks. looks like it's going to b a long nite for me.my nerves r shot to peices as I have one of these medical for my esa. I was on 3yearly review ? I'm in...

Hi folks. looks like it's going to b a long nite for me.my nerves r shot to peic...

Mandagee

•8 years ago

8 Replies

👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣Living With Lupus👣👣👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 As I have said before, lupus has changed my life but, I will not let it control my life! As you know I have to go...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 As I have said before, lupus has changed my lif...

Tiras

•8 years ago

19 Replies

Severely photosensitive - lighting advice needed

Just a little background, I was recently diagnosed with solar urticarial after phototesting at Guy's and discovered that this is to ALL visible light across...

Just a little background, I was recently diagnosed with solar urticarial after p...

Mifford

•8 years ago

14 Replies

Unsure even on a good day

I've been off work for over a week the fatigue and joint pain so bad I've had to use a stick for support and I've kept my outings very short. during this I've...

I've been off work for over a week the fatigue and joint pain so bad I've had to...

Dan30cr

•8 years ago

3 Replies

Unsure

Hi i'm new here. My Rheumatologist said i suffer with undepreciated connective tissue disease and i suffer with Pericarditis, episcleritis, Myalgia, Gout,,...

Hi i'm new here. My Rheumatologist said i suffer with undepreciated connective t...

fayeno1

•8 years ago

6 Replies

Lupus Rashes?

I often get a butterfly rash across my nose and cheeks but it gets so hot and makes me feel flustered! Anyone experience the same and have any tips re what...

I often get a butterfly rash across my nose and cheeks but it gets so hot and ma...

Dancingc21

•8 years ago

4 Replies

Update on Meds and Diagnosis

I had to go back to my Rheumatologist because since stopping the Leflunomide, my symptoms seem to have got worse. Because of my neutropenia, she was not keen...

I had to go back to my Rheumatologist because since stopping the Leflunomide, my...

InnerBeauty

•8 years ago

3 Replies

Feeling sick after I eat

Hi there does anyone else suffer as I do Its like I've got a constant stomach bug as every time I eat I immediately feel like I'm going to throw up but not...

Hi there does anyone else suffer as I do Its like I've got a constant stomach b...

Tre123

•8 years ago

12 Replies

Fighting lupus with my almighty Father the son and holy spirit

I was diagnosed with lupus in 2014, I am taking all kinds of medicine and under the care of the doctor aslo have mixed connective tissue disease and raynurd ,...

I was diagnosed with lupus in 2014, I am taking all kinds of medicine and under ...

Canam11

•8 years ago

4 Replies

PIP request reconsideration

Has any body applied for a reconsideration. I had Assessment after being on DLA for 10 years was a Awarded top mobility and middle rate care ....

Has any body applied for a reconsideration. I had Assessment after being on DLA ...

suzierwp330

•8 years ago

20 Replies

Lower back pain, a symptom?

Hi, I have had lupus for years but recently been experiencing terrible lower back pain that is so bad that it has reduced me to tears (I usually cope well with...

Hi, I have had lupus for years but recently been experiencing terrible lower bac...

Johookway

•8 years ago

8 Replies

Diagnosis

Hi there can anyone advise about having someone take you seriously to have lupus looked at? I've been told I have fibromyalgia, arthritis and patella femoral...

Hi there can anyone advise about having someone take you seriously to have lupus...

Minnie101

•8 years ago

21 Replies

Strange sensations in hands

Past 2 days I've developed strange sensations in my hands. It's like tingling/burning all over skin feels so dry and pains in all my fingers...any1 else had...

Past 2 days I've developed strange sensations in my hands. It's like tingling/bu...

Karen1983

•8 years ago

4 Replies

Thought this was so right had to share!

I found this on the lupus awareness page on Facebook and thought it's exactly how I feel all the time, don't remember last time I could wear heels cause of the...

I found this on the lupus awareness page on Facebook and thought it's exactly ho...

Jess_doyle

•8 years ago

6 Replies

Hello

Hi, I'm new here just saying hello. Looking around and seeing how things go here. Lots of good info so far.

Hi, I'm new here just saying hello. Looking around and seeing how things go here...

Loopydroopy

•8 years ago

5 Replies

Cant runaway from steriods

Hi everyone, i am back in hospital because i have a terrible flarup. i just started a belimumab treatment and had 2 courses of it then i began to have rashes...

Hi everyone, i am back in hospital because i have a terrible flarup. i just star...

ijeasike

•8 years ago

26 Replies

Lupus profundus/panniculitis

In August the fat disappeared from my right cheek. I've been to several specialists and they are reluctant to diagnose lupus because I never had lesions, only...

In August the fat disappeared from my right cheek. I've been to several speciali...

Marg777

•8 years ago

10 Replies

In response to buffy 14 regarding ESA.

Following buffy14 post about contacting the MP for work and pensions regarding his recent declaration that; those on support groups with the most severe...

Following buffy14 post about contacting the MP for work and pensions regarding h...

johare

•8 years ago

6 Replies

Sjögren's Syndrome

Sjögren's Syndrome Do you have or know someone with this condition? We are looking for people with this condition to take part in a short 20-minute...

Sjögren's Syndrome Do you have or know someone with this condition? We are looki...

stepstell

•8 years ago

31 Replies

Well done, LupusUK Forum!

Hello, People will be tired of hearing the saga of my most recent problems (sweating, nausea, chest pain, exhaustion). My respirorologist, rheumy and GP have...

Hello, People will be tired of hearing the saga of my most recent problems (swea...

whisperit

•8 years ago

20 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Provide your input to the Government Green Paper on Work & Health

ANA blood test results

Rituximab??

Lupus Rash Continued

Lupus Rash?

Finally started initial blood tests to find out what is wrong with me. Any advice?

Autoimmune consultants - Manchester

Lupus and epilepsy

Been here a while, reading and sympathizing

Is this yet another symptom, feel like someone is crushing my ribs.

Dredded esa medical

👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣Living With Lupus👣👣👣👣👣👣👣👣👣👣👣👣👣👣

Severely photosensitive - lighting advice needed

Unsure even on a good day

Unsure

Lupus Rashes?

Update on Meds and Diagnosis

Feeling sick after I eat

Fighting lupus with my almighty Father the son and holy spirit

PIP request reconsideration

Lower back pain, a symptom?

Diagnosis

Strange sensations in hands

Thought this was so right had to share!

Hello

Cant runaway from steriods

Lupus profundus/panniculitis

In response to buffy 14 regarding ESA.

Sjögren's Syndrome

Well done, LupusUK Forum!

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