Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,928 members • 28,257 posts

All posts for November 2016

Ginkgo biloba

I seen this herb chart in my chemist and it said this herb is good for blood flow for raynaud's syndrome, with the cold winter coming in, and being off aza...

I seen this herb chart in my chemist and it said this herb is good for blood flo...

Jess_doyle

•8 years ago

5 Replies

Fibro or lupus

I saw my osteo surgeon the other day.i have had osteoporosis and osteoarthritis for some time.i had several operations on my knee including vpartial...

I saw my osteo surgeon the other day.i have had osteoporosis and osteoarthritis ...

Leyland154

•8 years ago

21 Replies

Shoulder; rib; breast;SI joint pain

Hello - for the past 6 months I have been getting shoulder pain (described by personal trainer as extremely tight scapula); that goes into my breast; rib pain...

Hello - for the past 6 months I have been getting shoulder pain (described by pe...

Meandwiz

•8 years ago

21 Replies

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Pip claim

Does anyone with lupus SLE receive PIP ? I have been advices to apply and was woundering if anyone with lupus SLE actually gets it? Thanks

Does anyone with lupus SLE receive PIP ? I have been advices to apply and was wo...

Charl1503

•8 years ago

17 Replies

Worst flare up, can't cope please help!!!

Hi, I was diagnosed with lupus SLE this time last year when I spent 3 weeks in hospital bed bound due to my joint pain and extreme weight loss, head aches that...

Hi, I was diagnosed with lupus SLE this time last year when I spent 3 weeks in h...

Charl1503

•8 years ago

7 Replies

Symptoms

Hi all hope all are as well as can be. I've not yet been diagnosed with anything but I've been referred to a rhumy been told I could be waiting upto 18 weeks...

Hi all hope all are as well as can be. I've not yet been diagnosed with anything...

Ems666

•8 years ago

12 Replies

Lupus

I've had lupus for a long time almost thought I have been in remission but now not to sure.today is a bad day don't feel good glands swollen,very tired, legs...

I've had lupus for a long time almost thought I have been in remission but now n...

Tmoritz

•8 years ago

1 Reply

Hypothyroidism and lupus

Hi, ive been treated for hypothyroidism for 20 years and rhumatoid arthritis for about the same maybe longer. My doctor put all my symptoms down to one or the...

Hi, ive been treated for hypothyroidism for 20 years and rhumatoid arthritis for...

bluesmum

•8 years ago

14 Replies

Leg pain

I have lupus and aps and have this terrible leg pain which happens now and again and more frequently when am having a flare. It's a really strange pain feels...

I have lupus and aps and have this terrible leg pain which happens now and again...

Sara_A

•8 years ago

5 Replies

Seasons

Does anyone's symptoms seem to be worse at certain times of the year?

Dalollies

•8 years ago

7 Replies

Christmas Cards!

Christmas is coming (soonish), the goose is getting fat, (so am I on these steroids)! But more importantly I have bought my Christmas Cards from Lupus UK and...

Christmas is coming (soonish), the goose is getting fat, (so am I on these stero...

happytulip

•8 years ago

2 Replies

Lupus CTD AND URETHRAL/ bladder problems??

Hi there just a quick question to anyone suffering from Lupus CTD MCTD OR UCTD. I suffer from undifferentiated connective tissue disease . Amongst many weird...

Hi there just a quick question to anyone suffering from Lupus CTD MCTD OR UCTD. ...

Cherrywerry

•8 years ago

3 Replies

👣👣👣👣👣👣👣👣👣👣👣Lupus Rash/Blisters Still Barefoot

Hi everyone; Laura and I are still taking care of my Mom & Dad, so I don't get to visit with my friend here as much as I did. My blisters and rash...

Hi everyone; Laura and I are still taking care of my Mom & Dad, so I don'...

Tiras

•8 years ago

5 Replies

Cold burning sensation

Hi everyone lately I've been having a burning sensation in random spots on my body but it's like a cold burn if that makes sense? I'm wondering if anyone else...

Hi everyone lately I've been having a burning sensation in random spots on my bo...

Linorandthewolf

•8 years ago

14 Replies

Rheumy Update

So pretty much my labs came back good even though my last labs all pointed to lupus. My doc thinks I was going through a flare and that she is putting me on...

So pretty much my labs came back good even though my last labs all pointed to lu...

LucyK5821

•8 years ago

4 Replies

Advice please

Hi It's been a while since I last posted but I need some advice. I was diagnosed with lupus nephritis in Jan 2015, I was treated with cyclophosphamide,...

Hi It's been a while since I last posted but I need some advice. I was diagnosed...

ajanjua

•8 years ago

3 Replies

Appointment

I had my follow up rheumy app yday and all my blood tests are apparently perfect. She stated categorically that I do not have lupus but had no explanation for...

I had my follow up rheumy app yday and all my blood tests are apparently perfect...

Suecon

•8 years ago

7 Replies

October's Topic of the Month - Coping with Raynaud's Phenomenon

We have just published our (slightly belated) blog article for October about Raynaud's phenomenon. http://www.lupusuk.org.uk/coping-with-raynauds/ Thank you so...

We have just published our (slightly belated) blog article for October about Ray...

Paul_Howard

Partner•8 years ago

3 Replies

Suspected Heart Attack or not

I've written a few times on this post about the shortness of breath and chest pain in walking not even far which has got steadily worse. After 2 ECG that's...

I've written a few times on this post about the shortness of breath and chest pa...

Gillyg

•8 years ago

17 Replies

In crisis

Had a total melt down on Saturday. Anxiety became so overwhelming that I couldn't stop thinking on how I could end my life. I couldn't escape those thoughts. I...

Had a total melt down on Saturday. Anxiety became so overwhelming that I couldn'...

Hidden

•8 years ago

10 Replies

Flu jab

Hi.I was wondering if anyone has had a side effect from the flu jab.I had a chest infection just before I had it, and the infection came back, and feel more...

Hi.I was wondering if anyone has had a side effect from the flu jab.I had a ches...

mousey1

•8 years ago

20 Replies

Red bumps

I woke up this morning finding a red small bump on my arm and legs it hurts and itches when I turn my legs or arm a certain type of way I can see a rash...

I woke up this morning finding a red small bump on my arm and legs it hurts and ...

Jfauly

•8 years ago

1 Reply

Dismissal from work for being very ill...?

Hi, Been back 2 work (office work)for 4 months after being of sick for 10 months. Diagnosed Sjogerns, cervical radiculopathy, nerve damage right arm, disc...

Hi, Been back 2 work (office work)for 4 months after being of sick for 10 months...

Dani83

•8 years ago

15 Replies

HLA-B27 - what do you know about it?

Hi All, I'm posting on this forum as don't really know where else to post but as HLA-b27 is auto-immune related, the lupus forum seemed most apt and as I have...

Hi All, I'm posting on this forum as don't really know where else to post but as...

Hidden

•8 years ago

15 Replies

Immunology

Hi all,i have lupus,reumy thot maybe weganers as had 4 sinus ops,to get biopsy on sinuses and possibly get them obliterated,rhemy took 4 viles blood 2 wks...

Hi all,i have lupus,reumy thot maybe weganers as had 4 sinus ops,to get biopsy o...

Jeffscott69

•8 years ago

7 Replies

Got to stop my azathioprine... Gutted!!

Hi, I've recently had my dose of azathioprine increased and was finally after 8 months starting to feel better. Had my monitoring bloods done today and my...

Hi, I've recently had my dose of azathioprine increased and was finally after 8...

Sara_A

•8 years ago

9 Replies

Waiting Game

Finally been booked an appointment with Rheumotology, but not until the 28th December :( I know I should be grateful it is booked, but I am so gutted and...

Finally been booked an appointment with Rheumotology, but not until the 28th Dec...

Sophie1304

•8 years ago

2 Replies

Should Lupus UK be trying to get involved re plans for those on long term sickness benefits

It's in the news again about changes to disability benefits...

fabwheelie

•8 years ago

11 Replies

Good news...i think.

Hey Everyone. I had my appointment with my rehumy, and, they've come to the conclusion that, although some of my bloods which were positive are seen in lupus,...

Hey Everyone. I had my appointment with my rehumy, and, they've come to the conc...

stacieann1989

•8 years ago

2 Replies

PoTS/Chronic Fatigue

Hello, I am posting again with yet another worry! Although my interstitial lung disease and joint pain seem to have improved somewhat on hydroxy and...

Hello, I am posting again with yet another worry! Although my interstitial lung ...

whisperit

•8 years ago

19 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Ginkgo biloba

Fibro or lupus

Shoulder; rib; breast;SI joint pain

Pip claim

Worst flare up, can't cope please help!!!

Symptoms

Lupus

Hypothyroidism and lupus

Leg pain

Seasons

Christmas Cards!

Lupus CTD AND URETHRAL/ bladder problems??

👣👣👣👣👣👣👣👣👣👣👣Lupus Rash/Blisters Still Barefoot

Cold burning sensation

Rheumy Update

Advice please

Appointment

October's Topic of the Month - Coping with Raynaud's Phenomenon

Suspected Heart Attack or not

In crisis

Flu jab

Red bumps

Dismissal from work for being very ill...?

HLA-B27 - what do you know about it?

Immunology

Got to stop my azathioprine... Gutted!!

Waiting Game

Should Lupus UK be trying to get involved re plans for those on long term sickness benefits

Good news...i think.

PoTS/Chronic Fatigue

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