Hi there can anyone advise about having someone take you seriously to have lupus looked at? I've been told I have fibromyalgia, arthritis and patella femoral joint dysfunction. For years I have had issues with recurrent mouth ulcers (some so big they've ulcerated my throats and spread down my windpipe and I've ended up in hospital) and cold sores.. I have also, during flare ups had to go for cream for the rash on my cheeks which I am told is rosacea, except o only get the rash on my cheeks and nose and chest! I feel constantly run down and have constant flare ups of thrush (oral and vaginal) so it's almost every month I have these things. I'm 43. The last couple of weeks I've started to get to the stage I can barely move I am so tired and have swollen joints in my hands and knees. Someone pointed out lips to me recently and I really feel this could be a possible issue. However my dr said I've had auto immune tests and they came back fine!(the first one came back inconclusive so had to go back again and said fine) but they weren't specifically looking at lupus. Everyone else with fibro doesn't seem to get the joint swelling and rheumatic type pains and they have good weeks; I seem to feel like my body is contatnatly under attack and degenerating rather than having any good days. I feel like giving up because I get fobbed off with everything is fibro but surely the constant ulcers, thrush and sores shows something is going on with my immune system? Should I give up and accept the answer this is fibromyalgia or push for why this has been ongoing for years? In the sun my skin gets hive like rashes and most my childhood pics were of severely ulcerated mouths and sores all over me with red rash on my cheeks when I went into the sun. It's gotten better as I get older but I can leave the house without high sunscreen and hats
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