Thought this was so right had to share! - LUPUS UK

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Thought this was so right had to share!

Jess_doyle profile image
6 Replies

I found this on the lupus awareness page on Facebook and thought it's exactly how I feel all the time, don't remember last time I could wear heels cause of the pain or boots longer then an hour not even! I don't talk about it cause I don't think people care, or understand what's happening inside! But this girl explained it so well.

" "But you don't look sick."

I hate when people say that. I don't want attention. I don't want pity. I want people to be AWARE. See, some people are looking for donors while others are losing hair. Y'all have no idea what it feels like to take more than 20 mins just to sit up in bed or try to work out and can't because after 3 mins you can't even trust your own legs. To try to be cute in heels but feel like your ankles are on fire. My memory ain't no where close to what it used to be.

NO matter how much sleep I get I'm still exhausted. Skin rashes that leave marks... headaches and photosensitivity. It's a chronic illness that isn't contagious, but your common cold could possibly kill me. I tell my family everyday "I'm fine" knowing my body is attacking itself. I walk around with a medicine cabinet in my purse...I wish I could feel as good as I make myself look. ---Diamond "

Shared by Diamond Gibson

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Jess_doyle profile image
Jess_doyle
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6 Replies
Johookway profile image
Johookway

Spot on! I'm so tired of having lupus! 😑

creaky profile image
creaky

That sums it up.

Buffy14 profile image
Buffy14

Exactly

Tre123 profile image
Tre123

Hi jess so true

larainehudson49 profile image
larainehudson49

I

larainehudson49 profile image
larainehudson49

I,m with you 100%

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