People will be tired of hearing the saga of my most recent problems (sweating, nausea, chest pain, exhaustion). My respirorologist, rheumy and GP have all been baffled, even after 1000s of bloods, ECGs, echocardiogram, CT scans and two emergency admissions to hospital.
The conclusion was that it was an unusual reaction to mycophenolate, and i should stop taking it and wait.
So I was stopped, and waited. Unfortunately, the symptoms didn't.
On Wednesday morning, I was browsing older posts here and came across some that described POTS (postural tachycardia syndrome). Someone suggested trying the 'stand test' and taking the result to my GP.
I did that this morning, After looking through my home made notes and the POTS UK guide for GPs, she said, "Yep. You've done some really good detective work there. I think you might well have POTS".
Result - an urgent referral to a POTS specialist.
I still feel ghastly, of course, but also hopeful.
Many, thanks to everyone who posts here. Reading your experiences has really helped me.