Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,937 members • 28,265 posts

All posts for November 2016

Red itchy lumps

In July I went to see my Gp as I had red itchy lumps on my arms, legs and body, over the months I have been given different creams a lotions and now due to a...

In July I went to see my Gp as I had red itchy lumps on my arms, legs and body, ...

AlysAudrey

•8 years ago

8 Replies

UV Rays at work

Hi all My new office has fluorescent tubes and after 30 minutes under them I started to feel awful. They are very bright and hurt my eyes but also I started...

Hi all My new office has fluorescent tubes and after 30 minutes under them I sta...

Poliya228

•8 years ago

5 Replies

Bath problems

Hello Everyone........I have strayed into the Lupus site although I 'only' have Sjogren's. You are the most active site and from what I have seen before we...

Hello Everyone........I have strayed into the Lupus site although I 'only' have ...

bones-bones

•8 years ago

12 Replies

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Vitamin B6 supplementation not good for peripheral neuropathy...

Just another little insight my doctor gave me this week that might be a help to some...

Just another little insight my doctor gave me this week that might be a help to ...

1985mum

•8 years ago

13 Replies

Prednisolone 1mg Gastro-resistant - does it even exist? YES!

I've been taking 5mg and 2.5mg gastro-resistant prednisolone tablets because the ordinary ones give me heartburn. As part of stepping down, I've been...

I've been taking 5mg and 2.5mg gastro-resistant prednisolone tablets because the...

whisperit

•8 years ago

34 Replies

Blood clots and SLE

I am wondering if anyone else is on warfarin due to having blood clots. I have to stay on warfarin for life I have been told . They say if you have 2 or more...

I am wondering if anyone else is on warfarin due to having blood clots. I have t...

Buffy14

•8 years ago

23 Replies

Confused about email

I am very confused I have just had an email from healthunlocked telling me the leukaemia community might be of interest to me , says it's for people with blood...

I am very confused I have just had an email from healthunlocked telling me the l...

Buffy14

•8 years ago

11 Replies

Stomach pains

Sorry for all the questions - but I have another one. Are stomach pains and generalised bellyache a feature of lupus flares?

Sorry for all the questions - but I have another one. Are stomach pains and gene...

Suecon

•8 years ago

12 Replies

How many people here have Sjogrens Syndrome?

Having noticed a few posts recently which have mentioned Sjogrens, I was wondering just how many people in the Lupus UK community have been diagnosed with the...

Having noticed a few posts recently which have mentioned Sjogrens, I was wonderi...

SjogiBear

•8 years ago

85 Replies

Getting a prescription for an unapproved treatment

As I've put in other posts I was recently diagnosed with severe photosensitivity with solar urticaria to all visible light and a separate lupus...

As I've put in other posts I was recently diagnosed with severe photosensitivity...

Mifford

•8 years ago

10 Replies

Sensory changes

Hi, I've just found this group having recently being diagnosed with Lupus. Ive got many of the symptoms and whilst I'm taking lots of medication don't seem to...

Hi, I've just found this group having recently being diagnosed with Lupus. Ive g...

SCS23

•8 years ago

12 Replies

working from home?

Does anyone actually work from home, if so what is it you do? Im desperate to find a job from home, I got refused my pip, struggling to work my part time job...

Does anyone actually work from home, if so what is it you do? Im desperate to fi...

Hidden

•8 years ago

5 Replies

BBC Radio Northampton seeking local person from BME community for an interview this Sunday evening.

BBC Radio Northampton's Afro Caribbean show on Sunday evening (13/11) is planning to include a feature about lupus. If you are from the Black and Minority...

BBC Radio Northampton's Afro Caribbean show on Sunday evening (13/11) is plannin...

Paul_Howard

Partner•8 years ago

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Eye tests and plaquenil

Hello I just want to check how frequently you should get your eyes tested when taking plaquenil. I think its yearly but I am not sure, i hope someone here...

Hello I just want to check how frequently you should get your eyes tested when...

weathervane

•8 years ago

19 Replies

Tofranil?

Has anyone here had experience taking Tofranil and what should I expect? My lovely new doctor is finally coming around to deciding that I may have some form of...

Has anyone here had experience taking Tofranil and what should I expect? My love...

1985mum

•8 years ago

10 Replies

Slightly elevated IgG and IgA

A blood test result showing slightly elevated IgG and IgA. Any one has this problem as a side effect of Lupus? Thanks :)

A blood test result showing slightly elevated IgG and IgA. Any one has this pro...

Littlegrass

•8 years ago

17 Replies

What does 'mild fever' mean?

I have an odd symptom which appears at least once or twice a week, would really like to know if others have this. I suddenly (within minutes) start to feel a...

I have an odd symptom which appears at least once or twice a week, would really ...

LuckyJC

•8 years ago

14 Replies

Depo Medrone - Does it help with Fatigue?

Hi, I'm new here. I have been having symptoms for about 2 years. After two bouts of shingles. It was manageable, until about 6 months ago. The pain and the...

Hi, I'm new here. I have been having symptoms for about 2 years. After two bou...

dotty2203

•8 years ago

7 Replies

Butterfly rash/mark

For those of you with a butterfly rash, do you find it's stronger or more noticeable when you are warm? Thanx x

For those of you with a butterfly rash, do you find it's stronger or more notice...

Suecon

•8 years ago

30 Replies

Brain fog ? What is it

Hi folks I have heard several people on here say they have brain fog , what is it ?. I have a terrible memory i do things and then have no memory of doing them...

Hi folks I have heard several people on here say they have brain fog , what is i...

Buffy14

•8 years ago

11 Replies

HELP!!!! Side effects from starting Plaquenil???????

Hi everyone!!! I've been on Plaquenil now for about 2 weeks now. My doc is on the fence if I have Lupus or not but she is seeing if I respond to the meds and...

Hi everyone!!! I've been on Plaquenil now for about 2 weeks now. My doc is on th...

LucyK5821

•8 years ago

3 Replies

November's Topic of the Month - Getting the Most from Medical Appointments

Our ‘Topic of the Month’ in November is, ‘Getting the Most from Medical Appointments' One of the most important ways you can stay healthy is to be an active...

Our ‘Topic of the Month’ in November is, ‘Getting the Most from Medical Appointm...

Paul_Howard

Partner•8 years ago

10 Replies

Esa medical

hi, I have an was medical coming up and want some advice, I originally got an appointment through the post and I changed it so the examiner would come to my...

hi, I have an was medical coming up and want some advice, I originally got an ap...

clairelm

•8 years ago

2 Replies

Winter again !

hi folk its been a while . Back to winter gloves are out and thick clothes ..joints aching always got a cold .. And now have psorias on scalp very itchy and...

hi folk its been a while . Back to winter gloves are out and thick clothes ..joi...

barbdockeray

•8 years ago

2 Replies

Hair loss STILL!

Hi All, I have been treated with plaquenil for 6 months now and been on imuran and 5mg prednislone for just over two months. My hair has been falling out for...

Hi All, I have been treated with plaquenil for 6 months now and been on imuran ...

Emily00

•8 years ago

52 Replies

Rheumatologist appt gone wrong

Very disappointed. I switched rheumatologist bc my old one basically told me i have Sjogren's and gave me meds but didn't tell me what it is or what all I...

Very disappointed. I switched rheumatologist bc my old one basically told me i ...

Ratana21

•8 years ago

11 Replies

Move to English countryside

Hi my fellow Brits. American Natura here looking to move out of the US. LOL! Where is it pretty and seasonal. Spring, fall, winter, summer kind of deal! Thank...

Hi my fellow Brits. American Natura here looking to move out of the US. LOL! Whe...

Natura

•8 years ago

36 Replies

Good news not so great...and I'm really angry.

Hey.... So, if you didn't see me last post, I was excited to share with you all that the rehumy said that I didn't have lupus, (after a year of going back and...

Hey.... So, if you didn't see me last post, I was excited to share with you all ...

stacieann1989

•8 years ago

12 Replies

New to the site

Hello, I am 61 years old and for the last 6 years have been hoping for a diagnosis for my symptoms. I go to a hospital Eye Clinic, I have very dry eyes...

Hello, I am 61 years old and for the last 6 years have been hoping for a diagnos...

rm14dp17

•8 years ago

4 Replies

Research Study in need of participants with Sjögren's syndrome

Do you have or know someone with Sjögren's syndrome? A medical translation company are looking for people with this condition to take part in...

Do you have or know someone with Sjögren's syndrome? A medical translation compa...

Paul_Howard

Partner•8 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Red itchy lumps

UV Rays at work

Bath problems

Vitamin B6 supplementation not good for peripheral neuropathy...

Prednisolone 1mg Gastro-resistant - does it even exist? YES!

Blood clots and SLE

Confused about email

Stomach pains

How many people here have Sjogrens Syndrome?

Getting a prescription for an unapproved treatment

Sensory changes

working from home?

BBC Radio Northampton seeking local person from BME community for an interview this Sunday evening.

Eye tests and plaquenil

Tofranil?

Slightly elevated IgG and IgA

What does 'mild fever' mean?

Depo Medrone - Does it help with Fatigue?

Butterfly rash/mark

Brain fog ? What is it

HELP!!!! Side effects from starting Plaquenil???????

November's Topic of the Month - Getting the Most from Medical Appointments

Esa medical

Winter again !

Hair loss STILL!

Rheumatologist appt gone wrong

Move to English countryside

Good news not so great...and I'm really angry.

New to the site

Research Study in need of participants with Sjögren's syndrome

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