Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for September 2016

Frustrated with the system! All I want is some help

Since being diagnosed with DLE I have only seen the dermatologist twice. 2 separate DR's. Went to walk in clinic over 2 months ago to get referral to see my...

Since being diagnosed with DLE I have only seen the dermatologist twice. 2 separ...

Lara4228

•8 years ago

2 Replies

Thanks for those who offered help! Learning all the time about Prednisolone - a Flare up is Not a Dare up!

A flare up used to be a dare up to me. In the sense of there's another flare, almost like a dare, and I would respond, in the sense of, 'I can fight this with...

A flare up used to be a dare up to me. In the sense of there's another flare, al...

Stkeyna

•8 years ago

3 Replies

Very sensitive skin

Hi all About ten days ago my skin down the neck was like having sun burn without being in any sun! Super tender to touch, it's now traveled down on my right...

Hi all About ten days ago my skin down the neck was like having sun burn without...

Matt7235

•8 years ago

3 Replies

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Hi all need some prayers

Hi all not wrote post for a while please can you pray for me that I can get through this my 36 yr old son has unexpectedly died aged 36 in suspicious...

Hi all not wrote post for a while please can you pray for me that I can get thro...

Maria1958

•8 years ago

30 Replies

Medicine for Itching

There is a drug called Doxepin that my dermotogist prescribed for my Lupus that works really well on itching. I did not know that the Hydroxy was causing the...

There is a drug called Doxepin that my dermotogist prescribed for my Lupus that ...

imrightbell

•8 years ago

3 Replies

Now presenting mrs. And mr. Ryan & Sarah Farley Picture number 5

Single picture that my friend had made with my shoes that are something blue. Fighting a lupus flare throughout the night this is one of my best pictures wear...

Single picture that my friend had made with my shoes that are something blue. Fi...

Julietsmombless2015

•8 years ago

26 Replies

Our wedding day finally it was a very emotional sentimental ceremony

So if you're planning everything about this wedding all the way down to every detail of what everyone wants everything got turned around the wedding got pushed...

So if you're planning everything about this wedding all the way down to every de...

Julietsmombless2015

•8 years ago

6 Replies

Hi All

Hi, I am new here. I feel so alone and down. I spent many years being made to feel like a Hypercondriac, I had Transverse Myelitis in 2007. Then in 2013 I had...

Hi, I am new here. I feel so alone and down. I spent many years being made to fe...

Meganx3

•8 years ago

22 Replies

Picture of right hand

Sorry this was only way I could figure out how to put picture on. Hands, thighs, scalp, and sometimes face, upper arms , feet, backside. These break out...

Sorry this was only way I could figure out how to put picture on. Hands, thighs...

missyc73

•8 years ago

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Hello - so good to know I'm not alone!

Hello everyone, I'm new having just discovered this very site just half an hour ago. I'm a 49 year old teacher, diagnosed with Mixed connective tissue disease...

Hello everyone, I'm new having just discovered this very site just half an hour ...

Ellieb123

•8 years ago

13 Replies

New sjogrens symptom?

been extremely tired past two days. Yesterday stayed home and rested. Today went into work and not too long after started getting burning sensation in both...

been extremely tired past two days. Yesterday stayed home and rested. Today went...

wsjkcj1

•8 years ago

24 Replies

Positive result to ANCA?

Recently diagnosed with SLE, today my rheumy told me I have a positive result for ANCA which I think is indicative of Vasculitis. She said don't worry you...

Recently diagnosed with SLE, today my rheumy told me I have a positive result f...

Tripitaka

•8 years ago

4 Replies

Low lymphocyte count

Hi. I'm not a lupus sufferer but I have an auto-immune eye condition. I was prescribed cell cept which I took for approx 2yrs. My lymphocyte count was always...

Hi. I'm not a lupus sufferer but I have an auto-immune eye condition. I was pres...

Hidden

•8 years ago

1 Reply

Possible autoimmune progesterone dermatitis

Good morning, new to this forum. I have been having some medical issues which have brought me to doing a lot of personal research on the internet. I have...

Good morning, new to this forum. I have been having some medical issues which h...

missyc73

•8 years ago

11 Replies

First post - waiting for some sort of diagnosis

Hi all, I've been following this community recently. I have been suffering worsening anaemia for the 1-2yrs. I have had various tests and scopes via gastro...

Hi all, I've been following this community recently. I have been suffering worse...

Trigger2

•8 years ago

2 Replies

Lupus and dents in your legs

Ive notice over the past month, that i have a small dent right above my knees in each leg anyone else seen this before with lupus

Ive notice over the past month, that i have a small dent right above my knees in...

faithnhm333

•8 years ago

1 Reply

Another work day missed!

So, today iwoke up feeling so weak and exhausted. Attempted to get up and get ready for work but couldn't even brush my teeth let alone shower. My body was in...

So, today iwoke up feeling so weak and exhausted. Attempted to get up and get re...

kareng74

•8 years ago

7 Replies

Prednisilone - how long do the effects last?

Hello, I'm only 20mg a day, but, at my consultant's instruction, had a go at tapering down to 15mg by first taking 20mg, then 15mg on alternate days. Does...

Hello, I'm only 20mg a day, but, at my consultant's instruction, had a go at ta...

whisperit

•8 years ago

6 Replies

Indian holiday

Well, I said I would let Paul H and all of you know how my nostalgia trip to Calcutta went. There were many surprises, health wise...for one, twenty minutes...

Well, I said I would let Paul H and all of you know how my nostalgia trip to Cal...

Musicteach

•8 years ago

21 Replies

Oh help! What do I do?

Morning everyone. I'm sure you've all been here at this time of the morning asking yourself "do I phone in sick or battle through?" I'm trying to make that...

Morning everyone. I'm sure you've all been here at this time of the morning aski...

happytulip

•8 years ago

4 Replies

2 bruises

Also woke up with 2 dot bruises across with pain on left knee and it locks and hurts to kneel on the left knee

Also woke up with 2 dot bruises across with pain on left knee and it locks and h...

Mealfredo78

•8 years ago

2 Replies

And today is a reminder

Of how unpredictable lupus can be. I woke up feeling ok. Went to lunch. Came home and somehow I noticed 2 bruises on the front left and right side of my...

Of how unpredictable lupus can be. I woke up feeling ok. Went to lunch. Came ...

Ratana21

•8 years ago

4 Replies

Being realistic about recovery v retirement

Another effort at making sense of this new (for me) experience.... I've been on hydroxy since diagnosis 4-5 months ago, and 20mg prednisilone for about 6...

Another effort at making sense of this new (for me) experience.... I've been on...

whisperit

•8 years ago

13 Replies

My period disturbed

Hi every one.I had normal period in all my life (I'm 30 ).But this mouth I didn't period, today it's 49 days of last my period... I'm nervous becous of that. I...

Hi every one.I had normal period in all my life (I'm 30 ).But this mouth I didn'...

asma1364

•8 years ago

2 Replies

First Rhuemy Appt advice pls

Hello I had thyroiditis at the beginning of year and am now hypo. Levels are good now I'm on levo but I'm still very poorly. My Endo has referred me to a...

Hello I had thyroiditis at the beginning of year and am now hypo. Levels are goo...

MissFG

•8 years ago

6 Replies

Ladylizz

Hi What is myco ?

Hidden

•8 years ago

4 Replies

Lupie Talk - Starting Women Only Chat Group & Book/Film Group (Men and Women)

Good evening, everyone. I've written a few posts over the last few years whilst undergoing diagnosis and treatment for CNS Lupus. I've had lupus nephritis for...

Good evening, everyone. I've written a few posts over the last few years whilst...

Bellaflowe

•8 years ago

11 Replies

Veins and Lupus?

Ok, im suppose to have mild lupus..I also am hypothyroid.....Rhumetologist last visit in january said my lupus isnt very active (Dont come back unless...)Im...

Ok, im suppose to have mild lupus..I also am hypothyroid.....Rhumetologist last ...

dgleds

•8 years ago

20 Replies

What was your first rheumy consultation like?

Went to first rheumy visit 2 days ago. Salford. Got up at 5.30am to get there for 9.30 appointment. Felt hopeful. Hubby came with me. Decided because neuro...

Went to first rheumy visit 2 days ago. Salford. Got up at 5.30am to get there fo...

LottieD

•8 years ago

14 Replies

Is it the drugs, the condition, or something else?

Hello, I will be seeking medical advice on Monday, but would appreciate any thoughts from the experienced bunch here in the meantime. Briefly, i have a...

Hello, I will be seeking medical advice on Monday, but would appreciate any thou...

whisperit

•8 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2016

Frustrated with the system! All I want is some help

Thanks for those who offered help! Learning all the time about Prednisolone - a Flare up is Not a Dare up!

Very sensitive skin

Hi all need some prayers

Medicine for Itching

Now presenting mrs. And mr. Ryan & Sarah Farley Picture number 5

Our wedding day finally it was a very emotional sentimental ceremony

Hi All

Picture of right hand

Hello - so good to know I'm not alone!

New sjogrens symptom?

Positive result to ANCA?

Low lymphocyte count

Possible autoimmune progesterone dermatitis

First post - waiting for some sort of diagnosis

Lupus and dents in your legs

Another work day missed!

Prednisilone - how long do the effects last?

Indian holiday

Oh help! What do I do?

2 bruises

And today is a reminder

Being realistic about recovery v retirement

My period disturbed

First Rhuemy Appt advice pls

Ladylizz

Lupie Talk - Starting Women Only Chat Group & Book/Film Group (Men and Women)

Veins and Lupus?

What was your first rheumy consultation like?

Is it the drugs, the condition, or something else?

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