Another effort at making sense of this new (for me) experience....
I've been on hydroxy since diagnosis 4-5 months ago, and 20mg prednisilone for about 6 weeks.
There's been no improvement yet - in fact, things have got worse, and I have been off work for months. Last week i was reviewed and started on mycophenolate - which I am told will take 3-4 months to kick in.
Having given up one of my part-time jobs, my other employer is about to reduce my sick pay to 1/2 pay, so i will be living on an income that is 25% what it was a year ago. By the time the mycophenolate is working, I will be on the verge on going to zero sick pay i.e. no income whatsoever!
My question is this: is it realistic to imagine i might return to work?If so, when? Or should I cut my losses now and negotiate early retirement?