Hi, I am new here. I feel so alone and down. I spent many years being made to feel like a Hypercondriac, I had Transverse Myelitis in 2007. Then in 2013 I had Shingles followed by Bi Lateral Pneumonia with several Pulmanry Embolisms in each lung. Then a month after that I was outside in the sun and my whole body erupted into a raised (crusty in places rash). I had a large variety of what seemed like random illnesses in between the more serious problems. For years I was told it was the menopaus. Then in 2015 my face went numb and my blood tests showed I was anaemic. I was sent to a Haematologist who did some blood tests which showed positive markers (for what I was not told). I was sent to a Rheumatologist who performed more blood tests (plus other tests). In May this year I was told that I had SLE Lupus & Sjogrens Syndrome. Most of my tests came back positive. I am still on steroids,Hydroxychloroquine and Vitamin D/Calcium tablets. I have been desperate to talk to others with my conditions. I feel like nobody really understands how ill I feel most of the time. It seems to be a case of 'well she looks ok, therefore she is ok'. I am so exhausted. After 5 hours I hit a wall severe exhaustion. I work and to be honest it's killing me, but I would go mad if I didn't have my friends around me. Thank you for listening, sorry I went on a bit (a lot) x
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