Went to first rheumy visit 2 days ago. Salford. Got up at 5.30am to get there for 9.30 appointment. Felt hopeful. Hubby came with me. Decided because neuro spoke to him instead of me I would go in alone. Wrong move! Prof C decided that from me walking into office he wouldn't look at me or interact in any way. Said hello no response. Woah really rude! Said I'd brought list because I wanted to make sure I didn't leave things out. Here I go again. Tell me the main things. When you have so many debilitating symptoms what do you start with ? No nurse present, separate room. Get undressed to underwear use gown as blanket, don't get into it as that will be harder for me! I'm stupid and of the era you don't doubt doctors. Didn't look in mouth , blisters etc. Swollen glands etc. Maybe he's so clever he doesn't have to exam me properly. Closing sentence don't give up, If you don't use them you'll lose them. That's what I say every day!! See you in 8 weeks, have neuropathy small nerve test on 26 Sept. Getting no where fast. As this all goes on my, life is going down hill fast. Keep going,don't give up is probably the only advice he gave me. We may have a couple of other avenues to go down. So let down. Talking through list of symptoms. Said I was l reading through symptoms to make sure I hadn't missed anything. I asked was he listening, he said NO Then said I'm doing both. So glad he bumped his head on a lamp when going into examining room. I swear I didn't laugh! All this and won't be seen for 8 weeks. At the moment my life is horrendous, as he said don't give up! I would like to hear if anyone has had the same experience So tired of it all.
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