Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2016

pip

i was getting full care part of pip just been assessed and have cut my money down saying i dont need a lot of help has this happened to any one else i going to...

i was getting full care part of pip just been assessed and have cut my money dow...

carollesley

•8 years ago

5 Replies

WONDERFUL Facebook Video link re "I don't look sick, & you don't look stupid..looks can be deceiving!"

https://www.facebook.com/Themightysite/videos/610914232389661/ ENJOY (🙄 I hope the link works...have never posted a link like this before) 🍀😘🍀😘🍀😘 coco...

https://www.facebook.com/Themightysite/videos/610914232389661/ ENJOY (🙄 I hope...

Barnclown

•8 years ago

12 Replies

TMJ pain

I was diagnosedreturnewith SLE a year ago & around March suffered chronic pain in my TMJ. Gp said eara were fine, dentist said teeth were fine. Pain has...

I was diagnosedreturnewith SLE a year ago & around March suffered chronic pain i...

anner40

•8 years ago

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Can anyone help me with this

Does anyone on here get the ligament running under the knee cap sore and clunking and inside ankle pain like it's going to collapse on the ankle know mater how...

Does anyone on here get the ligament running under the knee cap sore and clunkin...

Minka1

•8 years ago

4 Replies

Why oh why do Rheumatologist's NOT seem to understand Poriatic Arthritis!

If you have RA you go on the TRACTISS trial but not if its PsA. You look in books on Sjögren's and Lupus everything is RA psoriasis barely gets mentioned. You...

If you have RA you go on the TRACTISS trial but not if its PsA. You look in book...

New47

•8 years ago

3 Replies

Garden

This post has nothing to do with Lupus. Well maybe it does. I have felt good enough lately to do things in the garden. I still have rashes/blisters and yes,...

This post has nothing to do with Lupus. Well maybe it does. I have felt good eno...

Tiras

•8 years ago

9 Replies

Primary sclerosing cholangitis

I have Lupus and PSC which is a rare disease of the bile ducts. My specialist states I will soon get colitis and then I can be put on a trial drug. My gut is...

I have Lupus and PSC which is a rare disease of the bile ducts. My specialist st...

Evaj3

•8 years ago

2 Replies

Looking Forward

2 weeks ago on monday i got a phone call saying i got the apprenticeship i applied for. It is for a position as a teaching assistant at a school for children...

2 weeks ago on monday i got a phone call saying i got the apprenticeship i appli...

LouLamb

•8 years ago

18 Replies

Relative Newcomer

Hi guys, I was finally diagnosed with SLE last June after finally becoming UV sensitive and my GP eventually referred me to Dermatology Professor. The very...

Hi guys, I was finally diagnosed with SLE last June after finally becoming UV se...

les61

•8 years ago

4 Replies

Plaquenil

Hi all, I haven't posted here for a long time, but I have a question, has anyone just stopped taking plaquenil? And if so what are the effects. I feel that it...

Hi all, I haven't posted here for a long time, but I have a question, has anyone...

Harold123

•8 years ago

18 Replies

Hey guys, why can't we collate our own findings?

Just a thought. So many permutations of our symptoms. No one is making sense of it all. Would setting up a site we can all contribute to, naming our symptoms...

Just a thought. So many permutations of our symptoms. No one is making sense of ...

Footygirl

•8 years ago

15 Replies

Lupus nephritis

I have been in a flare for quite a while now. Had chemo not helped now on on new meds and then they say I will be having fusion... Rhummi says my kidneys are...

I have been in a flare for quite a while now. Had chemo not helped now on on n...

Donnygirl

•8 years ago

1 Reply

What is going on ??

I was diagnosed with Lupus last August. Since Christmas I have been having some weird symptoms. It seems a 3 week cycle. The left side of my face and lips...

I was diagnosed with Lupus last August. Since Christmas I have been having some ...

MarcelaS

•8 years ago

2 Replies

Went to Manchester to see the Prof on Wednesday...

Hi All. Well, here I am, back from the MRI in Manchster. Bit daunting at first, small entrance, millions of people but Rhuematology and the Lupus centre were a...

Hi All. Well, here I am, back from the MRI in Manchster. Bit daunting at first, ...

Footygirl

•8 years ago

15 Replies

Muscle cramps?

Hi I am new to the group and pretty sure I have lupus. I have a positive ANA with a speckled blood pattern and have been quite symptomatic over the last few...

Hi I am new to the group and pretty sure I have lupus. I have a positive ANA wit...

Taylmarl

•8 years ago

8 Replies

On the NHS hamster wheel

Hi there I'm new to the group and could do will some advice as to where to go and what to do regarding booking a private consultation. Appologies in advance...

Hi there I'm new to the group and could do will some advice as to where to go an...

KELC

•8 years ago

15 Replies

Has anyone had severe thigh pain with their lupus?

Hi, I suspect I have lupus and am endeavouring to get tested for it as I have many of the symptoms, e.g. skin rashes, light and heat sensitivity, red flushing...

Hi, I suspect I have lupus and am endeavouring to get tested for it as I have ma...

Spicer21

•8 years ago

17 Replies

Advice needed re what private blood tests I should opt for to try to prove to GP that my symptoms are probably lupus & need investigating?

Hi everyone, I feel very ill and suspect that I have lupus. Many of my symptoms fit, but I know that I will face an uphill battle to get my GP to refer me to...

Hi everyone, I feel very ill and suspect that I have lupus. Many of my symptoms...

Spicer21

•8 years ago

31 Replies

Just need to vent

First thing that came out of my mouth this a.m. was a groan and an ouch. Did not want to move but I knew I had to in order to start easing the pain. Legs...

First thing that came out of my mouth this a.m. was a groan and an ouch. Did no...

JenInCali

•8 years ago

3 Replies

Jaundice

My lupus seems to of had quite a significant flare considering ive been fairly stable since starting the meds. But now it has sprung to life and ive had quite...

My lupus seems to of had quite a significant flare considering ive been fairly s...

Dan30cr

•8 years ago

2 Replies

how to cope with dry mouth at night

Hi...I dont often post asking for help but the dryness in my mouth at night is getting me down. I sleep with my mouth open, which doesnt help, and the dryness...

Hi...I dont often post asking for help but the dryness in my mouth at night is g...

chrisj

•8 years ago

35 Replies

Diagnosed this morning

Finally got my SLE diagnosis today. After over a year of being fobbed off and lots of tests. Not sure how to feel. There was also protein in my blood which...

Finally got my SLE diagnosis today. After over a year of being fobbed off and lo...

stacieann1989

•8 years ago

17 Replies

ESA APPEAL HELP

I was looking for some advice from fellow Lupus patients. I've had Lupus since 2010 and I've been on ESA since 2012 as until that time I was in college. Over...

I was looking for some advice from fellow Lupus patients. I've had Lupus since 2...

tashasiian

•8 years ago

4 Replies

What medications might skew thyroid test results?

As I am on low dose prednisalone, 2.5 alternate days ,plus a ten weekly injection of Depot Medrol 80 mg I wondered whether it could alter thyroid test results...

As I am on low dose prednisalone, 2.5 alternate days ,plus a ten weekly injectio...

cuttysark

•8 years ago

3 Replies

Moles

Evening all. Just like to pick your brains. I'm 40 diagnosed with sle last year and on lots of different meds. Over the past few months I've been developing...

Evening all. Just like to pick your brains. I'm 40 diagnosed with sle last year ...

Neiluk75

•8 years ago

3 Replies

Sweating

The past few months I sweat on my face and neck. It just pours off me and I have to carry a wash cloth around. I am menopausal but I think this might be...

The past few months I sweat on my face and neck. It just pours off me and I have...

JenInCali

•8 years ago

4 Replies

Just diagnosed with Lupus after being diagnosed with leukemia in December 2015!

Hello I was diagnosed with Leukemia (CLL) in December and had to start chemo right away due to really swollen lymph nodes. About half way through my chemo, I...

Hello I was diagnosed with Leukemia (CLL) in December and had to start chemo rig...

momof12

•8 years ago

11 Replies

Dry Eye Syndrome: comprehensive info @ NHS Choices WOW

hello all 👋👋👋👋 i was messing around looking at NHS Choices when i found this & thought of you! E.G.: Lupus is listed among the medical conditions that...

hello all 👋👋👋👋 i was messing around looking at NHS Choices when i found this...

Barnclown

•8 years ago

13 Replies

Giving up

Hi I'm just wondering if anyone has given up with medication as it makes things worse not better and tries to manage symptoms in other ways thanks

Hi I'm just wondering if anyone has given up with medication as it makes things ...

jilly60

•8 years ago

12 Replies

itchy skin

how does anyone cope with itchy skin i feel like i have blisters under my skin i"m on losartan potassium and hydroxychloroquine is there anything that...

how does anyone cope with itchy skin i feel like i have blisters under my skin ...

carollesley

•8 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2016

pip

WONDERFUL Facebook Video link re "I don't look sick, & you don't look stupid..looks can be deceiving!"

TMJ pain

Can anyone help me with this

Why oh why do Rheumatologist's NOT seem to understand Poriatic Arthritis!

Garden

Primary sclerosing cholangitis

Looking Forward

Relative Newcomer

Plaquenil

Hey guys, why can't we collate our own findings?

Lupus nephritis

What is going on ??

Went to Manchester to see the Prof on Wednesday...

Muscle cramps?

On the NHS hamster wheel

Has anyone had severe thigh pain with their lupus?

Advice needed re what private blood tests I should opt for to try to prove to GP that my symptoms are probably lupus & need investigating?

Just need to vent

Jaundice

how to cope with dry mouth at night

Diagnosed this morning

ESA APPEAL HELP

What medications might skew thyroid test results?

Moles

Sweating

Just diagnosed with Lupus after being diagnosed with leukemia in December 2015!

Dry Eye Syndrome: comprehensive info @ NHS Choices WOW

Giving up

itchy skin

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