Hello im Regina and i will soon be starting rituxan for my Lupus and i wanted to know how was your experience right now my lungs has gotton affected by lupus and my rheumatologist suggest i do the rituxan. You mentioned you felt wobbly how long did it take to finish and are you feeling some kind of relief and how often must you do the treatments.
Hi, I've only had one infusion but I think I have had some benefit. I'm told it hasn't kicked in yet - six months for real change. However, I think I'm a bit more able than I was. I'm told that I will have repeat treatment as needed and I think they sort of build as you get them.
Well that will be good if the one dose did it for you and as long as your energy level permits you to do what ever you desire then it was well worth it thanks for responding and best wishes with that let me know if you went in remission it sounds like you conquered it at the end we are all warriors.
Oh I'm sure it will help you a lot. You won't know yourself once it kicks in. I had many days in hospital and totally incapable and on Sunday past I groomed, tacked and rode my horse by myself. I served some customers in my shop today - upstairs!
Sounds like you have a the basics you need in life to be happy: an amazing partner, two cats and a horse!
A good health always seemed a basic to me as well but after five years if being sick with continuously new life quality diminishing symptoms I set a new goal: to survive.
Hope Rituximab kicks in.
Greets,
Patricia
UCTD diagnosis for two years now but I strongly feel it is SLE
Well, I am very grateful for all the positive things and I had not expected to be sick forever either. I know others are worse off and I'm doing all I can to be fitter and more able.
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