Sun sensitivity???

[Toastie-69]

Just a quick question I hope someone can help me with. I'm diagnosed with UCTD, possible emerging lupus as I'm positive for dsDNA of "reasonable titre" but don't yet tick all of the boxes to confirm diagnosis. I have never in the past been sensitive to sun or had any rashes but in recent days have felt my general symptoms have been significantly worse as we have had some sunny weather. Is this coincidental or can the sun have an adverse effect, despite no rash???? Thanks in anticipation x

[puneet123]

It seems like a cause of an underlying condition especially if you have never felt like this before.

[Toastie-69 in reply to puneet123]

Thanks very much for your reply puneet123 x

[Paul_Howard Partner LUPUS UK]

Not all people with lupus will get sun-induced rashes (roughly 60% do). A further 10-20% may also experience other clearly sun-induced symptoms. If you would like more information about sun sensitivity in lupus, we have a factsheet at lupusuk.org.uk/wp-content/u...

[milkwoman]

I never have gotten a rash but the sun definitely has an effect on me. If I stay in the sun for any length of time, I will feel exhausted, achy and overall, just unwell. I have SLE and Sjogrens.

it is so sad for me. I'm a summer girl who can no longer fully enjoy summer weather. 😞

[happytulip]

I have never had a rash in the sun but if if I am in the sun for any length of time (as I was today) I develop joint pain mostly in my jaw, ankles and wrists and tinnitus. I also get a bad headache if I don't wear a hat. It's such a shame because I love the outdoors and prior to getting ill I was always outside and very active.

[Toastie-69]

Thank you all so much for your replies, its reassuring to know that there is accurate info out there. Getting to grips with all of this can be quite lonely, it is reassuring to know that others are experiencing similar problems and that it is not just "in my head" Best wishes to you all xxx