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LUPUS UK

31,744 members • 28,102 posts

All posts for August 2013

Gallbladder lupus and fibromyalgia crp

I had my gallbladder removed in October and was so ill afterwards. That's when the started to discover the lupus and fibromyalgia. Just wondering if...

I had my gallbladder removed in October and was so ill afterwards. That's when ...

Mrsoliver

•11 years ago

13 Replies

Operation done!

Well folks, had my gallbladder removed yesterday - took over 4 hours as my breathing stopped twice! Not sure why? Feeling at my worst probably and now the...

Well folks, had my gallbladder removed yesterday - took over 4 hours as my breat...

Carolha

•11 years ago

18 Replies

Does hair loss worsen when being in a sunny climate?

I'm currently on holiday with my family in the south of France ( holiday was booked before I was diagnosed and didnt want to spoil it for the kids by not going...

I'm currently on holiday with my family in the south of France ( holiday was boo...

Belee

•11 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Hi. Iv been told last week I have lupus, fibromyalgia and Sjögren's syndrome. I also have poly cystic ovary syndrome.

I'm struggling with the new diagnosis as I had a positive ANA test but negative lupus test. Yet the rheumatologist still says its lupus and has prescribed...

I'm struggling with the new diagnosis as I had a positive ANA test but negative ...

Mrsoliver

•11 years ago

11 Replies

Contant severe mouth ulcers, what do you use to help?

Lupus is responding to MMF so now reduced sted's which I am due to finish 29th Aug (currently taking 2.5mg every other day) - for the past 2 months severe...

Lupus is responding to MMF so now reduced sted's which I am due to finish 29th A...

Lulabelle

•11 years ago

16 Replies

Hydroxychloroquine

Seen my Rheumy today and defo have Lupus, he wants me to think about whether I should take Hydroxychloroquine, given me a leaflet to read and have to let him...

Seen my Rheumy today and defo have Lupus, he wants me to think about whether I s...

jackjack2

•11 years ago

11 Replies

Does anyone take Hydroxychloroquine, and do you feel the benefits of it?

jackjack2

•11 years ago

28 Replies

anyone on acetylcysteine?

lowicklady55

•11 years ago

1 Reply

I'm new to this site

Had to find a forum to ask people who have the same condition , but at the moment I am having unbearable pains n my feet , is this normal it's normally my hips...

Had to find a forum to ask people who have the same condition , but at the momen...

Calmityjayne

•11 years ago

7 Replies

Mesentric vasculitus with lupus sle. Does anyone else suffer this.

Its been 2 months now since i last went to see my rhuemy and ive been in the most excruciating pain which hits me like a bolt of lightning, every few days ive...

Its been 2 months now since i last went to see my rhuemy and ive been in the mos...

willowwag

•11 years ago

4 Replies

Blue Badge Assessment - What do I do????

I have my assessment for my blue badge next week and I am really worried. Not really sure what I will be required to do or how I should act. Normally I take...

I have my assessment for my blue badge next week and I am really worried. Not r...

wotshernameagain

•11 years ago

17 Replies

fighting for pension

hi, is there an information sheet to download with how lupus affects us? I have been fighting for 5 years now for ill health pension- long story but wrong...

hi, is there an information sheet to download with how lupus affects us? I have ...

jayfer

•11 years ago

7 Replies

Plaquenil 400mg taken at once or split into 200mg twice a day?

Hi. I have been on plaquinal for 3 months and since upping the dose to 400mg I just take them in one go but have read that many people split the dose!...

Hi. I have been on plaquinal for 3 months and since upping the dose to 400mg I j...

joannebond360

•11 years ago

15 Replies

Whats everyones target inr rate when on warfarin?is it different when you have lupus?

My target is 2.5 at present but ruemy doctor says he may want to increase it sometime after my lung op not sure why.

My target is 2.5 at present but ruemy doctor says he may want to increase it som...

crankyme

•11 years ago

3 Replies

heart palpatations/irregular beats

hi all,anyone else suffer with episods of irregular heart beats? ive had these for many years before dx with lupus,doctor has said its anxiety to eptopic beats...

hi all,anyone else suffer with episods of irregular heart beats? ive had these f...

poodlegal

•11 years ago

10 Replies

Operation

Well folks, sorry for not being on here for a while. It's taken me a while to get used to it and still learning to find my way around. I've got a date for the...

Well folks, sorry for not being on here for a while. It's taken me a while to g...

Carolha

•11 years ago

9 Replies

Im off to China any advice.

Hi folks, just briefly my brother has been stuck in Beijing for the last 20 days, he was on his way home back to the UK, as he teaches out there, he has...

Hi folks, just briefly my brother has been stuck in Beijing for the last 20 days...

uzi41

•11 years ago

6 Replies

What alternative therapies have folk found helpful & effective in managing their Lupus symptoms & flares?

I am currently in flare & awaiting rheumatology appointment. I have had a fair amount of joint pain relief from herbal remedies & pulsed biomagnetic therapy. I...

I am currently in flare & awaiting rheumatology appointment. I have had a fair a...

MrsNewfy

•11 years ago

14 Replies

Just sent for the forms for pip does anyone have experience of this process and how did you get on?any advice please.

Not entitled to esa or anything as my fiance works full time. Its crippling us having to pay for all the prescriptions every 3 wks or so and hospital travel...

Not entitled to esa or anything as my fiance works full time. Its crippling us h...

crankyme

•11 years ago

7 Replies

Turned down for Mobility

I have been turned down twice (after appeal) for Mobility although I have the lower Living allowance as I burn myself often when cooking. Since then my pain...

I have been turned down twice (after appeal) for Mobility although I have the lo...

Hidden

•11 years ago

5 Replies

please ...no more

hello everyone, im feeling very low still. my lupus wont ease up on me no matter what I try. im constantly worried about money and have asked CAB and my local...

hello everyone, im feeling very low still. my lupus wont ease up on me no matte...

caninecrazy

•11 years ago

10 Replies

I just wondering if anyone had a problem wiv dental care

I am in wheel chair due to many reason not sure if its coz lupus anyway I cant lay on my back at all coz I get shooting pains in my back n I cant lay on dental...

I am in wheel chair due to many reason not sure if its coz lupus anyway I cant l...

shakylove

•11 years ago

7 Replies

RASH; HELP

CAN ANYONE TELL ME WHAT THIS RASH IS I GOT LAST WEEK, IT IS ON MY FACE, ARMS, LEGS. ONLY SINCE THE SUN CAME OUT. I HAVE PUT ON SUNSENSE ( SPE 50+ UVA&UVB BROAD...

CAN ANYONE TELL ME WHAT THIS RASH IS I GOT LAST WEEK, IT IS ON MY FACE, ARMS, LE...

loveme

•11 years ago

20 Replies

fed up and struggling to cope.

Sorry but I just needed to have a moan and get things off my chest. I've been in terrible pain and am suffering with my depression because of lack of money. I...

Sorry but I just needed to have a moan and get things off my chest. I've been in...

lillyanne

•11 years ago

6 Replies

Thinking of stopping my steroids

I'm considering stopping my steroid medication. Scared of damaging my liver and kidneys. I want to try a herbal approach any suggestions??

I'm considering stopping my steroid medication. Scared of damaging my liver and ...

Tiamonet

•11 years ago

5 Replies

Grrrrrrrr. The dermatologist was my last hope....

I finally got to see the dermatologist about the redness on my nose and cheeks. I had had three months worth of antibiotics and creams after the doctor...

I finally got to see the dermatologist about the redness on my nose and cheeks. ...

melodypond

•11 years ago

5 Replies

Lupus and ivf treatment

Hi is there anyone out there whose had or going through ivf treatment?

heda123

•11 years ago

6 Replies

Link to USA lupus advert & rheumy appt check list

My sister in the USA has seen this advert by glaxosmithkline on her tv a lot just recently It's a great advert: check it out! Can't they make a uk version?...

My sister in the USA has seen this advert by glaxosmithkline on her tv a lot jus...

Barnclown

•11 years ago

6 Replies

Well today I went to my first lupus support group in Glasgow ..had a great time talking to experienced members with lupus will defo go back.

michellew

•11 years ago

2 Replies

Is there any genuine treatments using stem cell treatment for lupus?

Most of stemcell are scams etc...but is there any evidence that works or may work in the future

Most of stemcell are scams etc...but is there any evidence that works or may wor...

rougegirl

•11 years ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2013

Gallbladder lupus and fibromyalgia crp

Operation done!

Does hair loss worsen when being in a sunny climate?

Hi. Iv been told last week I have lupus, fibromyalgia and Sjögren's syndrome. I also have poly cystic ovary syndrome.

Contant severe mouth ulcers, what do you use to help?

Hydroxychloroquine

Does anyone take Hydroxychloroquine, and do you feel the benefits of it?

anyone on acetylcysteine?

I'm new to this site

Mesentric vasculitus with lupus sle. Does anyone else suffer this.

Blue Badge Assessment - What do I do????

fighting for pension

Plaquenil 400mg taken at once or split into 200mg twice a day?

Whats everyones target inr rate when on warfarin?is it different when you have lupus?

heart palpatations/irregular beats

Operation

Im off to China any advice.

What alternative therapies have folk found helpful & effective in managing their Lupus symptoms & flares?

Just sent for the forms for pip does anyone have experience of this process and how did you get on?any advice please.

Turned down for Mobility

please ...no more

I just wondering if anyone had a problem wiv dental care

RASH; HELP

fed up and struggling to cope.

Thinking of stopping my steroids

Grrrrrrrr. The dermatologist was my last hope....

Lupus and ivf treatment

Link to USA lupus advert & rheumy appt check list

Well today I went to my first lupus support group in Glasgow ..had a great time talking to experienced members with lupus will defo go back.

Is there any genuine treatments using stem cell treatment for lupus?

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