Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2013

Palpitations and chest pain

Does anyone else get this? Had it all night and couldn't sleep, feel dizzy and breathless and my chest hurts on the left hand side, having palpitations. Had...

Does anyone else get this? Had it all night and couldn't sleep, feel dizzy and b...

joannebond360

•11 years ago

15 Replies

sight and smell queries

morning everyone! my first query is; summer this year has been my worst ever regarding all my lupus symtoms but im concerned about my sight as several times...

morning everyone! my first query is; summer this year has been my worst ever r...

caninecrazy

•11 years ago

8 Replies

I have SLE and sjrojens/rheumatoid arthritis/osteperosous/ I am also a Hep B carrier. My lupus has been going haywire for past 2 years but m

Snowdragon

•11 years ago

1 Reply

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Operation done update

Firstly I want to thank everyone who replied to my last post and all their kind wishes. Unfortunately things didn't progress as promisingly as I thought. I...

Firstly I want to thank everyone who replied to my last post and all their kind ...

Carolha

•11 years ago

9 Replies

Confused what is ESA?

Hi everyone I am seriously trying not to sound dumb (not working lol). What is ESA?? I know it is some form of benefit - but it is confusing. I have finally...

Hi everyone I am seriously trying not to sound dumb (not working lol). What is ...

esky

•11 years ago

8 Replies

Is anyone hypersensitive to sounds, smells and light? Head is driving me mad with bad headaches and painful, numb scalp

Can't stand noise, smells are really strong especially chemicals, eyes hurt in bright light. Just want to curl up in a dark, quiet room

Can't stand noise, smells are really strong especially chemicals, eyes hurt in b...

Simmer

•11 years ago

8 Replies

What is expected with a Gastroscopy? What is it?

I had an appointment with my liver consultant last week. There was a bit on the bottom of the letter that said to be prepared for any admissions but I think...

I had an appointment with my liver consultant last week. There was a bit on the ...

overnighthearingloss

•11 years ago

9 Replies

Is anyone else waking in the night and having a sweet taste in the mouth, I brush my teeth before bed so it can't be that. Feeling sick.

Gillyg

•11 years ago

2 Replies

I suffer from horrendous, painful mouth ulcers, during a flare. Are they an SLE symptom and any suggestions for effective treatment, please.

Hidden

•11 years ago

17 Replies

Dead arms and pins and needles make sleep uncomfortable... should I be worried?

I find that when I sleep I put one arm under my pillow to prop up my head to make me more comfortable. Over the last year I find that when I do this my arm...

I find that when I sleep I put one arm under my pillow to prop up my head to mak...

wotshernameagain

•11 years ago

5 Replies

Dreadful back pain, is this a symptom?

Hello everybody, I have a terrible back pain in my lower back, just to the right of my spine. I have lots and lots of other auto immune diseases and it looks...

Hello everybody, I have a terrible back pain in my lower back, just to the right...

anniesensi

•11 years ago

21 Replies

Do you use any smartphone apps to help manage your lupus?

We don't have a guest blogger for this month, so instead I'm putting together a list of smartphone and tablet apps that are helpful for different aspects of...

We don't have a guest blogger for this month, so instead I'm putting together a ...

Paul_Howard

Partner•11 years ago

7 Replies

Body said no to work but it didn't stop the guilt

Friday my alarm went off then I rode the snooze button until 30 mins before I had to be at work. I then tried to gather as much strengths and energy to do...

Friday my alarm went off then I rode the snooze button until 30 mins before I ha...

wotshernameagain

•11 years ago

4 Replies

Does anyone have alot of kidney pain?? With no obvious cause??

Hi Does anyone else but me have alot of kidney pain, without any obvious cause? I have had this for ages, but there doesnt seem to be any cause. It is...

Hi Does anyone else but me have alot of kidney pain, without any obvious cause?...

esky

•11 years ago

16 Replies

Food intolerance testing

Hey gang Just wanted to ask a quick question about food intolerance testing. Has anyone had it done? I've been doing some reading and I've seen that if you...

Hey gang Just wanted to ask a quick question about food intolerance testing. Ha...

natal1a

•11 years ago

2 Replies

Hi new here. Does anyone take Methotrexate. If so please could you let me know your experience??

Hi everyone I am a newbie here - please be gentle. I would like to know if anyone on this site takes Methotrexate and if so please could they help me by...

Hi everyone I am a newbie here - please be gentle. I would like to know if anyo...

esky

•11 years ago

12 Replies

Can being under fluorescent lights make your head ache and feel burnt?Having problems at work due to this. Feel ok during day when no lights

Simmer

•11 years ago

8 Replies

Struggling emotionally - Counseling support needed

Hi all, I was diagnosed with Lupus Nephritis about 2 months ago and it has really changed a lot for me. I feel I have a whirlwind of emotions all the time...

Hi all, I was diagnosed with Lupus Nephritis about 2 months ago and it has rea...

rooks1984

•11 years ago

5 Replies

Does anyone know if fibromatosis (breast lump) has any connection to lupus?

clova

•11 years ago

12 Replies

lupus nephritis

how many episodes of nephritis have you had? ive had it once so far 2 years ago stage 4,will it always happen again with a flare?

how many episodes of nephritis have you had? ive had it once so far 2 years ago ...

poodlegal

•11 years ago

10 Replies

Free lupus journal!

I went to this link (lupus check.com) filled out a quick form and they sent me a very nice lupus journal. It has calendars, pages to write symptoms or thoughts...

I went to this link (lupus check.com) filled out a quick form and they sent me a...

CyndyHP

•11 years ago

7 Replies

Do you ever feel normal again?

I have been unwell for 3 years but finally after taking steroids and plaquenil found some releif from symptoms and actually have a bit of a life. I still get...

I have been unwell for 3 years but finally after taking steroids and plaquenil f...

joannebond360

•11 years ago

26 Replies

Over 50 female with lupus willing to share her story needed for article NOW CLOSED

***Please note this is now closed to applicants. Thank you to everybody that expressed an interest. You will be contacted if they are interested in your...

***Please note this is now closed to applicants. Thank you to everybody that exp...

Paul_Howard

Partner•11 years ago

7 Replies

I have on occasion in the past experienced 'burning sensation in my feet'. Today as I write this, my feet tingle and feel like they are hot

I am taking 5mg of prednisone - this sensation started a few months back. Has anyone experienced this. I have lupus (sle) since 30 yrs or so ago.

I am taking 5mg of prednisone - this sensation started a few months back. Has a...

Malteser

•11 years ago

25 Replies

West Midlands Lupus Group Meeting

West Midlands Lupus Group ( http://www.westmidlandslupus.co.uk/ ) Lupus Drop-In Meeting , All Wellcome - Russells Hall Hospital, Dudley, 2 - 4pm tomorrow,...

West Midlands Lupus Group ( http://www.westmidlandslupus.co.uk/ ) Lupus Drop-I...

fabwheelie

•11 years ago

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does anyone get migraines when taking nithidipine? Don't know if it is mis spelt

lowicklady55

•11 years ago

3 Replies

ATOS limited capability for work - I now understand everyone's concerns !!!

I have been unable to work for the past 13 years so have filled out many a form for incapacity benefit and DLA. Although the previous forms were very long at...

I have been unable to work for the past 13 years so have filled out many a form ...

tiredmum

•11 years ago

8 Replies

Help please!! I have applied for DLA and appealed twice, now its going to a tribuneral !!! No fight left in me

I really cant be bothered to fight anymore, im on methorixate now and that still doesnt appear to be enough for the DLA to award me. Any tips please?? im...

I really cant be bothered to fight anymore, im on methorixate now and that still...

beckybooboo

•11 years ago

4 Replies

How do you deal with photosensitivity?

I became very photosensitive in late December early January: grey days, tungsten & hallogen lights. Particular red shape on face with leg & backache. It has...

I became very photosensitive in late December early January: grey days, tungsten...

flo_IarFachYrHaf

•11 years ago

14 Replies

Managing my Lupus without having to work has been so much easier!

I was made redundant back in February of this year, two weeks before my 50th birthday. Having had a boss who was very understanding and ensured that ALL...

I was made redundant back in February of this year, two weeks before my 50th bir...

davinafrost

•11 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2013

Palpitations and chest pain

sight and smell queries

I have SLE and sjrojens/rheumatoid arthritis/osteperosous/ I am also a Hep B carrier. My lupus has been going haywire for past 2 years but m

Operation done update

Confused what is ESA?

Is anyone hypersensitive to sounds, smells and light? Head is driving me mad with bad headaches and painful, numb scalp

What is expected with a Gastroscopy? What is it?

Is anyone else waking in the night and having a sweet taste in the mouth, I brush my teeth before bed so it can't be that. Feeling sick.

I suffer from horrendous, painful mouth ulcers, during a flare. Are they an SLE symptom and any suggestions for effective treatment, please.

Dead arms and pins and needles make sleep uncomfortable... should I be worried?

Dreadful back pain, is this a symptom?

Do you use any smartphone apps to help manage your lupus?

Body said no to work but it didn't stop the guilt

Does anyone have alot of kidney pain?? With no obvious cause??

Food intolerance testing

Hi new here. Does anyone take Methotrexate. If so please could you let me know your experience??

Can being under fluorescent lights make your head ache and feel burnt?Having problems at work due to this. Feel ok during day when no lights

Struggling emotionally - Counseling support needed

Does anyone know if fibromatosis (breast lump) has any connection to lupus?

lupus nephritis

Free lupus journal!

Do you ever feel normal again?

Over 50 female with lupus willing to share her story needed for article NOW CLOSED

I have on occasion in the past experienced 'burning sensation in my feet'. Today as I write this, my feet tingle and feel like they are hot

West Midlands Lupus Group Meeting

does anyone get migraines when taking nithidipine? Don't know if it is mis spelt

ATOS limited capability for work - I now understand everyone's concerns !!!

Help please!! I have applied for DLA and appealed twice, now its going to a tribuneral !!! No fight left in me

How do you deal with photosensitivity?

Managing my Lupus without having to work has been so much easier!

Search posts

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2013

Palpitations and chest pain

sight and smell queries

I have SLE and sjrojens/rheumatoid arthritis/osteperosous/ I am also a Hep B carrier. My lupus has been going haywire for past 2 years but m

Operation done update

Confused what is ESA?

Is anyone hypersensitive to sounds, smells and light? Head is driving me mad with bad headaches and painful, numb scalp

What is expected with a Gastroscopy? What is it?

Is anyone else waking in the night and having a sweet taste in the mouth, I brush my teeth before bed so it can't be that. Feeling sick.

I suffer from horrendous, painful mouth ulcers, during a flare. Are they an SLE symptom and any suggestions for effective treatment, please.

Dead arms and pins and needles make sleep uncomfortable... should I be worried?

Dreadful back pain, is this a symptom?

Do you use any smartphone apps to help manage your lupus?

Body said no to work but it didn't stop the guilt

Does anyone have alot of kidney pain?? With no obvious cause??

Food intolerance testing

Hi new here. Does anyone take Methotrexate. If so please could you let me know your experience??

Can being under fluorescent lights make your head ache and feel burnt?Having problems at work due to this. Feel ok during day when no lights

Struggling emotionally - Counseling support needed

Does anyone know if fibromatosis (breast lump) has any connection to lupus?

lupus nephritis

Free lupus journal!

Do you ever feel normal again?

Over 50 female with lupus willing to share her story needed for article ***NOW CLOSED***

I have on occasion in the past experienced 'burning sensation in my feet'. Today as I write this, my feet tingle and feel like they are hot

West Midlands Lupus Group Meeting

does anyone get migraines when taking nithidipine? Don't know if it is mis spelt

ATOS limited capability for work - I now understand everyone's concerns !!!

Help please!! I have applied for DLA and appealed twice, now its going to a tribuneral !!! No fight left in me

How do you deal with photosensitivity?

Managing my Lupus without having to work has been so much easier!

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Over 50 female with lupus willing to share her story needed for article NOW CLOSED