Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2013

innoculations and lupus/ lupus like syndromes

can anyone advise me if there has ever been an research conducted into a correlation of people having imunisations especially hep b and then developing lupus/...

can anyone advise me if there has ever been an research conducted into a correla...

scoobydoo1

•11 years ago

18 Replies

Really fed up and struggling to remain positive with latest lupus flare

I'm in the midst of my most recent lupus and for the first time since my 2005 diagnosis I am struggling to maintain my positive attitude. Since my 3rd flare...

I'm in the midst of my most recent lupus and for the first time since my 2005 di...

jk2503

•11 years ago

7 Replies

Does anyone else have a problem with dry skin, my hands and feet are so dry that they peel and crack, no matter how much moisturiser I apply

Thank you to everyone who replied, great advice thanks x

jackjack2

•11 years ago

9 Replies

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Looking for advice???

I work with mum's and babies and one of my mums has told me her older child has just broken out with chicken pox, she is waiting on the baby breaking out. I am...

I work with mum's and babies and one of my mums has told me her older child has ...

jacamac

•11 years ago

6 Replies

What benefit can I claim.

I have had my ESA Benefit stopped, and my housing benefit a week before the letter arrived. I did my health assessment and scored 0/15. I showed a letter...

I have had my ESA Benefit stopped, and my housing benefit a week before the lett...

Paulwg

•11 years ago

7 Replies

At The End of My Tether!

All of us suffer with severe depression with this rubbish illness and to me that's what puts the nail in the coffin for me I bloody hate it day in day out I...

All of us suffer with severe depression with this rubbish illness and to me that...

Danielle2419

•11 years ago

7 Replies

Do any of you have PNH? Peripheral Nerve Hyperexcitability (constant twitching) which I am told can be linked to autoimmune diseases...

Hi if you can help - I was just wondering if PNH constant twitching was a symptom people suffer from with Lupus? I have PNH which so far have been told is...

Hi if you can help - I was just wondering if PNH constant twitching was a sympto...

trueman

•11 years ago

11 Replies

Ref: question about last Friday and GP referring me to a specialist

Just to let you all know, checking up with you doctor works. If you read my question about being referred to a specialist about my gallbladder it will give...

Just to let you all know, checking up with you doctor works. If you read my que...

Carolha

•11 years ago

7 Replies

What medicine will I have to take for Lupus &Hughes?

What sort of medicines will I have to take for lupus? I'm a newbie. What foods should I avoid? I'm on warfrin as have Hughes. Is there anything I should avoid?

What sort of medicines will I have to take for lupus? I'm a newbie. What foods s...

Tonkawoman69

•11 years ago

7 Replies

Tinnitus is driving me nuts!!!! Any self help suggestions please.

I know there is not a lot you can do about tinnitus but this constant buzzing noise is starting to drive me loopy!!! I used to have it on and off in both...

I know there is not a lot you can do about tinnitus but this constant buzzing no...

tiredmum

•11 years ago

13 Replies

PainGone range

Has anybody tried the PainGone range of products for pain relief? If so, did they work? Don't want to be on painkillers for the rest of my days so wondering...

Has anybody tried the PainGone range of products for pain relief? If so, did the...

Catlady56

•11 years ago

6 Replies

DLA help !!!!!

OK here goes, i am filling in the dreaded booklet and i've got to the bit that i need to describe my illnesses I have gone totally blank about how to describe...

OK here goes, i am filling in the dreaded booklet and i've got to the bit that i...

larissa

•11 years ago

8 Replies

the quest for pred and plaquenil..

well, been on the meds for 2 weeks and have noticed a mixed bag, feel better than before but not as good as when I started the pred. brain fog kinda gone but...

well, been on the meds for 2 weeks and have noticed a mixed bag, feel better tha...

scoobydoo1

•11 years ago

6 Replies

Has anyone else had liver problems following a lupus flare

I have had lupus for over 30 years, very rarely drink, have now been told I have autoimmune hepities AIH. No one checked my liver functions for several years...

I have had lupus for over 30 years, very rarely drink, have now been told I have...

juneybells

•11 years ago

9 Replies

Feeling fed up

Hi all it's been a while since I was last on hear but Iv been going through bad times :-( after such bad head pain I go for a ct scan on Wednesday hope thay...

Hi all it's been a while since I was last on hear but Iv been going through bad ...

traceyd

•11 years ago

14 Replies

Are 1mg or 1/2 mg prednisolone tablets prescribed in the ukt?

Am on a taper, started just over a week go. Been given 2.5mg gastro resistant coated prednisolone tabs by my rheumy/gp. Started on 10mg for 7 days as...

Am on a taper, started just over a week go. Been given 2.5mg gastro resistant c...

Barnclown

•11 years ago

17 Replies

Pain in the butt...

First day of half term and I am in pain...knees, legs, hips, lower back and every muscle in my legs hurts when I walk. ..so I rest ...but I can't sit still....

First day of half term and I am in pain...knees, legs, hips, lower back and ever...

uzi41

•11 years ago

4 Replies

Bruising, and pain !!

I am sat here in mega pain at the moment, i have no answers to what i have all they can tell me after 5 years is that i do have an antiphospholipid ??...

I am sat here in mega pain at the moment, i have no answers to what i have all t...

trace66

•11 years ago

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Not sure I want to take any meds after readingn all the side effects

I am not sure if I should be here or Ra site as they aren't too sure which one or combo I have. I am not on any meds even after a year of trying to get a...

I am not sure if I should be here or Ra site as they aren't too sure which one o...

Someonesmother

•11 years ago

5 Replies

I have freezing hands & feet a lot. Virtually all day.

Smileylisa1969

•11 years ago

10 Replies

ANA titres

Rheumatologist has said that as my ANA is only ever around 140 titre positive that it has no clinical significance. Can anyone explain titres?

Rheumatologist has said that as my ANA is only ever around 140 titre positive th...

MadMatilda

•11 years ago

6 Replies

Is methotrexate better option in the long term than increasing steroids?

Hi everyone! Just found this site which is so helpful. Finding that lots of my symptoms and feelings are shared by so many others. After diagnosis I got...

Hi everyone! Just found this site which is so helpful. Finding that lots of my s...

saranne

•11 years ago

11 Replies

Pass the parcel

hi been awhile since been on here only because I didn't and still don't know where I belong.totally sick of being passed from pillar to post at hospital next...

hi been awhile since been on here only because I didn't and still don't know whe...

letslaugh63

•11 years ago

1 Reply

Erythromelalgia

Hi All, Can any body advise on the above condition. Thanks, Maureen x

Loopy-loo

•11 years ago

4 Replies

Ferritin 8, B12 165, but HB now normal at 13,5 so doctor says I don't need iron infusion. Anyone have similar experience?

KatieA

•11 years ago

1 Reply

How many of you are long-term insomniacs?

Maybe this should be a poll...... and I'm intrigued to know how other friends on here "spend" the hours awake. For a lot of my adult life, I've had...

Maybe this should be a poll...... and I'm intrigued to know how other friends on...

Looby

•11 years ago

16 Replies

Last Friday the GP was referring me to a specialist, I phoned today to find the request sat on the admins desk and still not been dealt with

Don't know if you remember but last Friday I had an urgent scan on my gallbladder which showed I had stones. Telephoned my doctor to advise him what had been...

Don't know if you remember but last Friday I had an urgent scan on my gallbladde...

Carolha

•11 years ago

1 Reply

Any Mycophenalate experience anyone?

Spoken to my rheumy nurse as I was having a bad flare. I started Myco about six weeks ago and had upped the dose to 1g twice a day. I have had no side effects...

Spoken to my rheumy nurse as I was having a bad flare. I started Myco about six ...

DaleDiva

•11 years ago

4 Replies

Response to exercise for lupies?

I have been attending a pain management group as I have spondylosis and disk problems in my back and neck. They talked about de conditiong as you tend to do...

I have been attending a pain management group as I have spondylosis and disk pro...

dizzy2

•11 years ago

6 Replies

failed dla appeal :(

Just returned home after my appeal for DlA and I feel like I've spent the afternoon being interrogated by the Gestapo. It was horrible and they made me feel...

Just returned home after my appeal for DlA and I feel like I've spent the aftern...

lillyanne

•11 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2013

innoculations and lupus/ lupus like syndromes

Really fed up and struggling to remain positive with latest lupus flare

Does anyone else have a problem with dry skin, my hands and feet are so dry that they peel and crack, no matter how much moisturiser I apply

Looking for advice???

What benefit can I claim.

At The End of My Tether!

Do any of you have PNH? Peripheral Nerve Hyperexcitability (constant twitching) which I am told can be linked to autoimmune diseases...

Ref: question about last Friday and GP referring me to a specialist

What medicine will I have to take for Lupus &Hughes?

Tinnitus is driving me nuts!!!! Any self help suggestions please.

PainGone range

DLA help !!!!!

the quest for pred and plaquenil..

Has anyone else had liver problems following a lupus flare

Feeling fed up

Are 1mg or 1/2 mg prednisolone tablets prescribed in the ukt?

Pain in the butt...

Bruising, and pain !!

Not sure I want to take any meds after readingn all the side effects

I have freezing hands & feet a lot. Virtually all day.

ANA titres

Is methotrexate better option in the long term than increasing steroids?

Pass the parcel

Erythromelalgia

Ferritin 8, B12 165, but HB now normal at 13,5 so doctor says I don't need iron infusion. Anyone have similar experience?

How many of you are long-term insomniacs?

Last Friday the GP was referring me to a specialist, I phoned today to find the request sat on the admins desk and still not been dealt with

Any Mycophenalate experience anyone?

Response to exercise for lupies?

failed dla appeal :(

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