I have been attending a pain management group as I have spondylosis and disk problems in my back and neck. They talked about de conditiong as you tend to do less because of the pain. I explained I had muscle weakness as part of my lupus, she said it was the same.
It made me feel lazy as I am unable to work anymore due to lupus and how it affects me. So they made us run through a couple of gentle exercises yesterday, after a few seconds of the first exercise, (raising your elbow to your shoulder. I have weakness in my right arm and both legs.) my arm dropped and refused to move at all, then I felt dizzy as if I was going to pass out. I did try the other exercises, but they involved lifting legs, my legs won't due to the weakness.
My husband picked me up and I had to go to bed. Today I am so weak, I can barely keep my eyelids open, and my body is like lead. Next week we are supposed to run through the exercises properly as if in a class. No one else in the group has lupus or any similar illness. The physio doesn't seem to get, how it affects me. So am I unusal? Or do other lupies react similarly? I understand the need to maintain a level of activity and not to get weak from a flare. I do try, but it is very hard.
I can walk with a walker which I try to do as exercise. However moving specific muscle groups is an absolute no no for me, due to the weakness. Repetitive movement is impossible. Unable to iron etc due to this. Do others find this? I am being tested for a muscle weakness disease as well.