Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for December 2012

Downward spiral.

I am feeling increasingly anxious about my health and have been getting distressed very easily. Saw rheumy today and urine tested positive for glucose so loads...

I am feeling increasingly anxious about my health and have been getting distress...

jo100

•12 years ago

15 Replies

Treading in treacle

One of those days when you push and push and feel as if you have been on the go all day and in the evening you see what you have achieved, absolutely nothing...

One of those days when you push and push and feel as if you have been on the go ...

KathinAyrshire

•12 years ago

6 Replies

Told not to worry. Haha!

Attended hospital last week and saw new doc who seems nice. For the last couple of months having real problems with my left hand, which gp thought was cts....

Attended hospital last week and saw new doc who seems nice. For the last couple ...

Scoobydoo

•12 years ago

4 Replies

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Does anyone suffer recurrent kidney infections?

I seem to having kidney infection after kidney infection. As soon as I stop the antiobiotics, 2-3 days later, I have a fever and the infection is back. I...

I seem to having kidney infection after kidney infection. As soon as I stop the...

gillypom

•12 years ago

7 Replies

After blood tests my Dr thinks I may have SLE Lupus. Has anyone experienced poor memory and tripping up?

I seem to match up perfectly with many of the symptoms I've never really talked about previously, just learned to live with the constant ache in my groin, hip,...

I seem to match up perfectly with many of the symptoms I've never really talked ...

Really

•12 years ago

14 Replies

Seronegative Mixed Connective Tissue Disease advice please?

I am yet to have a definitive diagnosis as I seem to be able to test negative to all auto immune tests. I have a long history of urticaria, and stiffness in...

I am yet to have a definitive diagnosis as I seem to be able to test negative to...

Hidden

•12 years ago

11 Replies

my hip replacement snapped 3 years ago and the are going to take that out due to infection. am i entitled to a blue bag or any benefits?

Hidden

•12 years ago

1 Reply

As a male, is there any advice or info that is around about men who have it?

Thankyou

AngelGabriel

•12 years ago

10 Replies

Dizziness - anyone found out why?

Most of us seem to suffer with dizziness once in a while. If you've raised that with your doctors, have they've given you any explanation for it, other than...

Most of us seem to suffer with dizziness once in a while. If you've raised that...

Purpletop

•12 years ago

29 Replies

ESA and DLA what will happen next year? my updates

Just a quick up date on my ESA and DLA awards. Hope this can help others who are lucky enough to be able to claim both at the moment. After another meeting...

Just a quick up date on my ESA and DLA awards. Hope this can help others who ar...

sabine

•12 years ago

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Disability Living Allowance - a very important petition for those in the UK

http://epetitions.direct.gov.uk/petitions/38182 Mary F

MaryF

•12 years ago

11 Replies

Born With Disease?/Developed Disease?

Would being born with lupus be easier to accept than devloping lupus twenty years or so into a lifetime???if we didnt know any different ,would lupus be easier...

Would being born with lupus be easier to accept than devloping lupus twenty year...

brave

•12 years ago

47 Replies

advice please

hello everyone! i had my hosp appt yesterday and saw my rhuemmy nurse (which im pleased about as my specialist isnt helpful) i took with me a list of new...

hello everyone! i had my hosp appt yesterday and saw my rhuemmy nurse (whic...

caninecrazy

•12 years ago

12 Replies

How many of you have been advised to stop driving?

I have Lupus and APS, and my rheumy many years advised me to stop driving due to spells of dizziness and slow reaction time due to brain fog. This resulted in...

I have Lupus and APS, and my rheumy many years advised me to stop driving due to...

tiredmum

•12 years ago

6 Replies

Affirmations

Just wondering what affirmations / sayings people have to help them to deal with being unwell ,especially rough times when flaring !?

Just wondering what affirmations / sayings people have to help them to deal with...

larissa

•12 years ago

7 Replies

joint pains

my mum dad moved upto scotland 5 weeks ago and now its just leave me and my 3 teens been back at the hospital today to be told that iam going in to have a hip...

my mum dad moved upto scotland 5 weeks ago and now its just leave me and my 3 te...

scottty

•12 years ago

15 Replies

Re festive season

Thank you all for the xmas wishes back. Isn't it lovely to have such a caring community:) I also very much appreciated your mention of where you are, gives...

Thank you all for the xmas wishes back. Isn't it lovely to have such a caring c...

Hidden

•12 years ago

4 Replies

Curious!

Hi everybody I would be very interested to hear which medi/s is or has been working for YOU? What improvement did it bring? Hope you can all enjoy a...

Hi everybody I would be very interested to hear which medi/s is or has been w...

Hidden

•12 years ago

7 Replies

Weight gain from steroids

Hi everyone, I was put onto a huge dose of Prednisolone some years ago because I was diagnosed with auto-immune hepatitis. I had been referred because...

Hi everyone, I was put onto a huge dose of Prednisolone some years ago b...

norma52

•12 years ago

6 Replies

Dreaded depression!

I was diagnosed with SLE back in 2010, I was 34. After 8 weeks of extreme joint pain etc, (I hadn't bothered going to the doctors, just thought it was a...

I was diagnosed with SLE back in 2010, I was 34. After 8 weeks of extreme joint ...

Twilo76

•12 years ago

28 Replies

Festive Season

I would like to wish each and every one of you a very happy festive season. May your problems and pains be very small and your happiness and humor overspill...

I would like to wish each and every one of you a very happy festive season. May ...

Hidden

•12 years ago

19 Replies

Lupus + Marfan + Ehlers-Danlos? Syndrome. My rheumy is convinced that this is what I'm suffering from (having tests etc).

Does anyone know anything about this? She told me it's very rare (about 1 in 200,000). I've been stuck in front of a psych (without being asked or told). At...

Does anyone know anything about this? She told me it's very rare (about 1 in 200...

jayniey

•12 years ago

15 Replies

How common it is for a lupus patient with often migraines to have a stroke?

ribitribi

•12 years ago

8 Replies

Reducing steroids Symptons

I've been on predisolone and now they are taking me off them by reducing the amounts every month. Although they have been amazing the one big down side is lack...

I've been on predisolone and now they are taking me off them by reducing the amo...

Voutton

•12 years ago

7 Replies

I D ?

Just wondering if anyone wears a medical tag ?

larissa

•12 years ago

12 Replies

CNS...what is it like?

Having read a little bit about CNS I was wondering if anyone who suffers with this could expand on how it affects you, what some of the symptoms might be....I...

Having read a little bit about CNS I was wondering if anyone who suffers with th...

jamg3916

•12 years ago

5 Replies

Trying so hard not to be defined by my illness but it just seems to be seeping into every part of my life...

So latest bit of news? Got "let go" from my job due to the severity of the lupus flares this year. My sickness levels were sky high, mainly due to seizures as...

So latest bit of news? Got "let go" from my job due to the severity of the lupus...

karlyt

•12 years ago

4 Replies

Is it possible to suffer with Arthritis in one's jaw? I can't shut my mouth properly!

I haven't been able to sleep for around 5 nights now, as I have what feels like arthritic pain all throughout my body. My knees and hips are playing up, which...

I haven't been able to sleep for around 5 nights now, as I have what feels like ...

karlyt

•12 years ago

5 Replies

Do you know someone who needs of deserves a brand new garden?

We've received this today from Spun Gold TV; ITV1’s hit series “Love Your Garden” starring Britain’s favourite gardener, Alan Titchmarsh, is back....

We've received this today from Spun Gold TV; ITV1’s hit series “Love Your ...

Paul_Howard

Partner•12 years ago

4 Replies

Wheelchairs - after 10 years my boneshaker has got to be replaced!!

I have found that for the last few months I have been unable to leave the house without my wheelchair. However it is very old, big and uncomfortable. I keep...

I have found that for the last few months I have been unable to leave the house ...

tiredmum

•12 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2012

Downward spiral.

Treading in treacle

Told not to worry. Haha!

Does anyone suffer recurrent kidney infections?

After blood tests my Dr thinks I may have SLE Lupus. Has anyone experienced poor memory and tripping up?

Seronegative Mixed Connective Tissue Disease advice please?

my hip replacement snapped 3 years ago and the are going to take that out due to infection. am i entitled to a blue bag or any benefits?

As a male, is there any advice or info that is around about men who have it?

Dizziness - anyone found out why?

ESA and DLA what will happen next year? my updates

Disability Living Allowance - a very important petition for those in the UK

Born With Disease?/Developed Disease?

advice please

How many of you have been advised to stop driving?

Affirmations

joint pains

Re festive season

Curious!

Weight gain from steroids

Dreaded depression!

Festive Season

Lupus + Marfan + Ehlers-Danlos? Syndrome. My rheumy is convinced that this is what I'm suffering from (having tests etc).

How common it is for a lupus patient with often migraines to have a stroke?

Reducing steroids Symptons

I D ?

CNS...what is it like?

Trying so hard not to be defined by my illness but it just seems to be seeping into every part of my life...

Is it possible to suffer with Arthritis in one's jaw? I can't shut my mouth properly!

Do you know someone who needs of deserves a brand new garden?

Wheelchairs - after 10 years my boneshaker has got to be replaced!!

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