joint pains

[scottty]

my mum dad moved upto scotland 5 weeks ago and now its just leave me and my 3 teens been back at the hospital today to be told that iam going in to have a hip replacrment thenn he doing my left hip then my knee caps i would like to cry but i cant is this normal i feel like i have no feelings for others

[tintin49]

hi scotty i am sorry to haer that you are feeling so sad about your family and having to face major surgery. things are pretty bad now but when its all done you will have a better quality of life and less pain. i am sure that many forum members will be able to put it more eloquently but a big hug x

[Hidden]

Scotty, this is a massively difficult time - not just for your but for your children. I know you'll be putting a brave face on things in front of them, which must be SO hard when you are in so much pain. The practicalities of all this: washing cooking cleaning shopping - must be weighing heavily on your mind right now. It's a time to call in any favours your are owed - or to just blatantly ask for help from your friends. Even though your mum and Dad have moved away - if you tell them you have to go to hospital, wouldn't they come and help for a bit, while you are laid up? Could you sit down with your kids and work out a rota that lets the basics get done but leaves a little time for each of them to still do their own stuff (I know this is not as straightforward as it sounds, but if they feel they're involved it will be easier for them).

I can't imagine how lonely you must feel right now or how much pain you must be in each day. Things can get better. Just hang in there.

[mstr]

Hi Scotty, certainly not the news you wanted to hear I am thinking of you and hope that your teenagers step up to the mark for you as needed. I think our children/teenagers can often surprise us and if they see that you are so poorly they will want to help you. In terms of practical help some ideas may include shopping on line, asking the family to help prepare lots of food for the freezer for when you come out of hospital. I hope you are truly spoilt with lots of good dvd's to watch and magazines bought for you so that you are able to just convalese when you get out of hospital.

Sending you a hug and much strength to get through this very difficult time xx

[caz59]

Hello Scotty. Join the club my love. I have been through what you are waiting to go through. I had a left hip resurface in 2010. A resurface is not a complete hip replacement, they try to save most of the bone around the hip joint. In 2011 i had a total hip replacement as there was not alot of bone they could save. I am now waiting for a total left shoulder replacement.

Its alot to contend with i know. It seems your life is going to be hospitals and operations and thats all youve got to look forward to in life. I used to think of all what was coming up for me and i tell you it overwhelmed me. I spoke to my GP as i was in such a state. He advised me to look at one op at a time very hard i know. I put the ops in 3 boxes and took 1 out my left hip op then i locked the other 2 ops in their boxes and tried to concentrate on the 1 op and put the other 2 on the back burner until it was time to get the next op out. It worked to an extent, thoughts are hard to keep at bay but you will drive yourself mad thinking about all of them at once. Give it a go, It may help you a little bit. And think when you get each one out of the way you are going to be pain free. This is what got me through. Hope ive helped love and hugs Caz59 x

[scottty]

thank you for all your kind words i will give it a try as it feels like its never ending xx

[nicky1234 in reply to scottty]

the thing with the feelings is your mum and dad were your surport by them just being around.

when my mum passed away my world came to an end

everything meant nothing not sure if it was a nervous breakdown,

i know your situation is differnt, but it seems by having no feelings you are protecting yourself from all the hurt and pain you are going through. x

[Purpletop]

Oh, you poor thing, what a trying time you're having! Why do you have to have these ops, have you been trouble with them for long, are they due to lupus? It is concerning that you're not being able to "feel", I suppose it is a protective mechanism against overwhelming stress but at the same time it might be slight depression, maybe you ought to mention this to your GP? You probably feel like you are in a black hole at the moment, it must be so upsetting. I hope all ops go well and you have a speedy recovery.

[scottty]

i had ops all my life but it wasnt till about 8 years ago when thay tested me for lupus and it came back positive last night was my worst night i shaking with the cold and i couldnt breath right my chest was like a bebys rattle i had to wake my son up to help me it scared me

[Purpletop in reply to scottty]

I can't breathe right sometimes, still haven't found out why - what does your GP say?

[scottty]

it happen before i ended in hospital with pleurisy my son was going to call for a ambulance he say its not happening all the time

[rabet]

i had pleurisy last may the pain was realy very bad had some testslast aug now have fibrocios of the lungs has any one else got this problem

[carmeline]

Scotty, I understand how you feel. It is normal dear but don't give up, keep on soldiering on. I do have a good reason to cry and not worry how others feel in their own pain, but than I think there are much worst people than me. I know I will be on the pilocarpine again soon. See I do have sjogren joint pain, mussle pain, graves desease, two hip replacements that are the recall, breast cancer that thank god I am in remission. Had a stent resent put in so now have heart issues . My list goes on and on and I do get down from time to time, but you know what I get stronger and keep on going. The one thing I hate is the needles in my hand as they never can find a vein. By the way I be I am 59.

I do hope that this will encourage you to hand in there and be strong

[tynebrand]

have had both hips and knee a bit of discomfort but no pain wonderful

[flow4]

I had my hip replaced last year when my boys were 19 and 15. I was terrified and incredibly stressed out beforehand - I did a lot of crying. You will need some help in the first week or two, but it will not be as bad as you think. It's FANTASTIC to wake up and find that awful grinding pain is just GONE!

I got a lot of support from this Facebook group: m.facebook.com/profile.php?...

There's also a useful website called Bonesmart.

Good luck!

[flow4 in reply to flow4]

Oops, I just realised this thread is 3 years old!