As a male, is there any advice or info that is around about men who have it?

[AngelGabriel]

Thankyou

[Tigerlily4]

Hi Gabriel - have a look around: lupusuk.org.uk/ There are also a few guys in this forum who might respond

[AngelGabriel]

Thankyou tiger, much love

[janiceray]

Contact Lupus uk. they do have men contacts also some leaflets they could send you.

[Thaddeus]

Hello Gabriel

We certainly are in the minority and tend to be overlooked a tad. But no worries, my experience of the online support groups and forums is that you will be very well recieved. In general we have the same issues as any other sufferer, but obviously without the risk of miscarriage.

I some ways socially it might be tougher, -explaining to friends and workmates, or not as the case usually is.

Lupus is a very personal illness in that we each have out own personal version of it. Male of Female -It is what it is.

[Phantom2]

Hi, just wanted to welcome you to the %10 Club. Lupus UK has a lot of info available to male patients.

Hope you can have a good holiday season

[Paul_Howard Partner LUPUS UK]

Hiya,

We have a factsheet specifically for Men with lupus, which you can read here - lupusuk.org.uk/images/pdf/1...

We also have some trained telephone contacts that are male. If you'd like to speak with another male that has lupus then I can send you a telephone number. Just let me know.

As you'll see, there are a few men here in the HealthUnlocked community that you can connect with too.

[lupuswriter]

Hi, I realized I left out the name of the research article in my original comment a couple of minutes ago. Am re-posting with the name of the article (published in 2012). Hope this is informative. The article is well-sourced and examines gender differences in lupus.

The authors make the point that understanding gender differences may help scientists develop effective medications for individual patients.

Article: Gender Differences in the Pathogenesis and Outcome of Lupus and of Lupus Nephritis. Name of the research journal is: Clinical and Developmental Immunology. Authors are: Julie Schwartzman-Morris and Chaim Putterman.

Good Luck!

[LloydE]

i can remember the days when most Lupus books of over 300 pages or so would have half a page dedicated to men with Lupus. And that half page would be very condescending. We are definately overlooked, however the way i see it, is it effects men much in the same way it effects women. Symptons and problems women have can be exacly the same as problems that i have had (excluding problems with pregnancy of course lol).

Rather than hide the fact that 90% of sufferers ar women, its usually the 1st thing i tell people about Lupus. The biggest problem it seems with men with Lupus is whether people (or oneself) think you are less of a man because (as far as i am concerned) we have a woman's disease to me it does not make a difference if i was the only male sufferer in the world. i am a man as much as any other man, and having Lupus has never changed that.

[pirate-yaker]

Hi - I don't post often, probably because I'm not too ill (all relative). I was diagnosed in Y2k but have probably had it for years longer, just didn't realise the markers.

Take any medication prescribed, sometimes it takes a long time to take effect and to make progress.

Stick with the forum there is some pretty good advice and support here.

Most of all stay positive - I managed to get back into sport but it took a long time.

All the best

Malcolm

[AngelGabriel]

Thankyou Glad to know that theres men and women who I can chat to. I've had chats with family which they just ridicule me, which stresses me out, leaves me ill for days after. This time last year I was really ill. Over christmas, I was on a drip, plied with medication and was very ill. I found out about 4yr ago, after I left my wife, which from then has just made me how my family put it 'erratic' psychopathic? Schitzo etc, its really hard to stay calm