I was diagnosed with SLE back in 2010, I was 34. After 8 weeks of extreme joint pain etc, (I hadn't bothered going to the doctors, just thought it was a virus!) I ended up in A and E and was diagnosed within a day of being in hospital. Anyway, 2 years down the line, first year hellish, second slightly better and so far, apart from a few days here and there of real bad joint pain etc (every day i am achy and stiff somewhere!) my meds seem to be working (touch wood) my main problem seems to be depression, I am so sad all the time, lonely and have no one to talk too. Don't get me wrong my family are fantastic but I just don't want them to see me struggling.. It's bad enough when it's physical let alone emotional. I have 2 young children, who are 6 and 8 and have even been struggling to put on a brave face in front of them. It was my consultant who said depression can be a factor, I have been up and down for years, even before I was diagnosed. My relationship is on the rocks, I hate where we have just moved too, I'm further away from everyone. I feel totally isolated, have no motivation, and feel constantly tired and fed up I dont want to or like using lupus as an excuse, but does anyone else feel like this or has felt like this? Sorry just joined this site and needed to get this of my chest!
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