Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for December 2012

Possible new option for CNS lupus, lupus nephritis, and lupus polyarthritis

Came across this information yesterday and thought it was interesting. Perhaps someone on this site may find it helpful. I have pasted the blog I posted, in...

Came across this information yesterday and thought it was interesting. Perhaps ...

lupuswriter

•12 years ago

3 Replies

Funny GP

Ok, GP's 2day 2 make sure I had enough pain relief & warfarin etc 2 last over the festive period. Mentioned that my muscles & tendons etc seem 2 b getting...

Ok, GP's 2day 2 make sure I had enough pain relief & warfarin etc 2 last over th...

Sher78

•12 years ago

25 Replies

Amazing occupational therapists...

I have just had a visit from a wonderful occupational therapist. She made us feel human! At last, some positive input. It has exhausted me but was well worth...

I have just had a visit from a wonderful occupational therapist. She made us fee...

purple-lou

•12 years ago

7 Replies

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Lack of understanding

I dont even know where to begin trying to explain this...... I work full time which is at times a massive struggle, I've been open and honest with my...

I dont even know where to begin trying to explain this...... I work full time ...

Hidden

•12 years ago

6 Replies

Occasional vibration type feeling in brain

Hi Got such great responses to my left leg problem that I thought I would ask about another issue that has emerged and that is a very short, yet noticeable...

Hi Got such great responses to my left leg problem that I thought I would ask a...

Chablis

•12 years ago

5 Replies

Another glass of wine??

Today was neither good nor bad, lights finally on the outside Christmas tree ready to light. Unfortunately half way through the task I had a sugar dip, you...

Today was neither good nor bad, lights finally on the outside Christmas tree rea...

KathinAyrshire

•12 years ago

18 Replies

Thankyou!

im quite new on this wonderful site, i have asked a few questions and have recieved very helpful answers. i just wanted to say a BIG BIG thankyou to you all...

im quite new on this wonderful site, i have asked a few questions and have recie...

caninecrazy

•12 years ago

5 Replies

URGENT advice needed please. CNS involvement both legs?

Only been on drugs to cope with flares for last seven months, no 'maintenance' drugs. For last five months, slowly getting worse involvement for both legs....

Only been on drugs to cope with flares for last seven months, no 'maintenance' d...

KathinAyrshire

•12 years ago

16 Replies

December's Blog Topic - Fatigue

The Topic of the Month for December is Fatigue. Fatigue is one of the most common symptoms experienced by lupus patients and it is also often described as one...

The Topic of the Month for December is Fatigue. Fatigue is one of the most commo...

Paul_Howard

Partner•12 years ago

5 Replies

Occupational Therapy

This is more in praise of OT than a question. Of all the professionals I have had dealings with the OT folks have been the most helpful and supportive. They...

This is more in praise of OT than a question. Of all the professionals I have h...

jamg3916

•12 years ago

14 Replies

Left leg problems

Hi folks, I have an increasingly worrying issue with my left leg as after short easy walks, it is seizing up. Feels like the tendons and muscles just stop...

Hi folks, I have an increasingly worrying issue with my left leg as after short ...

Chablis

•12 years ago

8 Replies

Has anyone had ataxia

My son has been unwell and has ataxia for the 2nd time is this common in Lupus?

Emma73

•12 years ago

2 Replies

University Hell! Help!

Hi Guys Sorry to bother you with the same question, again. I moved to the UK in September to study, having already being diagnosed with Lupus in another...

Hi Guys Sorry to bother you with the same question, again. I moved to the...

SRamkin

•12 years ago

23 Replies

Loss of appetite & unintentional weight loss

Since taking a bad flare / infection about 6 weeks ago I have lost my appetite and have lost over 2 stone. To complicate matters I am also Coeliac which...

Since taking a bad flare / infection about 6 weeks ago I have lost my appetite a...

Hidden

•12 years ago

10 Replies

whooping cough and flu like symptoms

Two weeks ago i came down with a cough and fever, the doctor said that it would either be whooping cough or bacterial infection. I was given antibitoics which...

Two weeks ago i came down with a cough and fever, the doctor said that it would ...

imzi

•12 years ago

5 Replies

Mycophenolate

I had to come off Azathioprine after it affected my White Cell Count. I was put on Mycophenolate (Cellcept) 2 weeks ago How long did it take for anyone else to...

I had to come off Azathioprine after it affected my White Cell Count. I was put ...

Hidden

•12 years ago

4 Replies

ADVISE PLEASE

i won my dla appeal and tribuanal 2 years ago , low care ,however i felt it was a good start they actual y accepted i need help and yes you have guessed it i...

i won my dla appeal and tribuanal 2 years ago , low care ,however i felt it was ...

kittykat68

•12 years ago

10 Replies

Realisation

I think it is finally hitting me that this thing is never going to go away. Not only it isn't going away, it will go progressively worse. I will retain fat...

I think it is finally hitting me that this thing is never going to go away. Not...

Purpletop

•12 years ago

17 Replies

My achievements today

A good day today, got all the decorations up and ready to switch on apart from the outside tree, the flipping wind and rain made it too dangerous to go up the...

A good day today, got all the decorations up and ready to switch on apart from t...

KathinAyrshire

•12 years ago

15 Replies

Chest Infections and Methotrexate

On my 3rd chest infrection since the end of September, Today as l was so poorly l phoned the emergency health line for advise, their Dr rang back asked me a...

On my 3rd chest infrection since the end of September, Today as l was so poorly ...

lucy-may

•12 years ago

5 Replies

Does anyone else have Shrinking Lung Syndrome as a complication of their SLE Lupus

Does anyone out there sugger from a rare complication of SLE Lupus called Shrinkng Lung Syndrome. I have been diagnosed with this. My diagphram does not...

Does anyone out there sugger from a rare complication of SLE Lupus called Shrink...

Hidden

•12 years ago

16 Replies

Oh what joy......

Had a very painful foot for some time now, but it was getting worse. Blamed it on our Lupi friend as you do with anything that hurts. Today decided to...

Had a very painful foot for some time now, but it was getting worse. Blamed it o...

Hidden

•12 years ago

5 Replies

You guys could diagnose me but the consultant won't!

Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time...

Well I got a letter yesterday from the consultant telling me that despite the AN...

Angelcake

•12 years ago

14 Replies

Feeling selfish.

My stepson is here for the weekend, he is a lovely lad, but he is full of cold and has been off school all week. I can't help feeling cross and...

My stepson is here for the weekend, he is a lovely lad, but he is full of cold a...

frog

•12 years ago

10 Replies

How do I get a second opinion?

I have been diagnosed with systemic lupus and put on quinoric for five months with absolutely no effect, flares take use of both hands big style! Not taken...

I have been diagnosed with systemic lupus and put on quinoric for five months wi...

KathinAyrshire

•12 years ago

8 Replies

ringing in the ear?

hi do any of you fellow lupus or sjogrens sufferers suffer from tinnitus, especially in one ear, its driving me batty at the moment.

hi do any of you fellow lupus or sjogrens sufferers suffer from tinnitus, especi...

rockchic

•12 years ago

16 Replies

i get gout when i don't drink

i normally drink a couple of cans of lager most nights but what i have noticed emerging is a pattern that if i don't have a cuople of cans of lager for say 3...

i normally drink a couple of cans of lager most nights but what i have noticed ...

pharook

•12 years ago

3 Replies

Swollen Ankle

Hi all. Woke up this morning with a sore and swollen ankle, no swelling in the other ankle. No swelling in the leg but a bruise on the calf. Thing is i cant...

Hi all. Woke up this morning with a sore and swollen ankle, no swelling in the o...

caz59

•12 years ago

5 Replies

My son is being messed about when it comes to a diagnosis. Too many doctors conflicting advice

Hi my son is 19 and has been in hospital for 2 weeks. He is now in rehab getting the strength back in his legs. In July he had myocarditis and then...

Hi my son is 19 and has been in hospital for 2 weeks. He is now in rehab gettin...

Emma73

•12 years ago

4 Replies

LUPUS UK ....A VIRUS?????

Is it my pc or is there a problem on their site? WHATEVER I CLICK ON GETS ME A VIAGRA SITE...........no,it's not funny. Tried Contact, but the same...

Is it my pc or is there a problem on their site? WHATEVER I CLICK ON GETS...

Hidden

•12 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2012

Possible new option for CNS lupus, lupus nephritis, and lupus polyarthritis

Funny GP

Amazing occupational therapists...

Lack of understanding

Occasional vibration type feeling in brain

Another glass of wine??

Thankyou!

URGENT advice needed please. CNS involvement both legs?

December's Blog Topic - Fatigue

Occupational Therapy

Left leg problems

Has anyone had ataxia

University Hell! Help!

Loss of appetite & unintentional weight loss

whooping cough and flu like symptoms

Mycophenolate

ADVISE PLEASE

Realisation

My achievements today

Chest Infections and Methotrexate

Does anyone else have Shrinking Lung Syndrome as a complication of their SLE Lupus

Oh what joy......

You guys could diagnose me but the consultant won't!

Feeling selfish.

How do I get a second opinion?

ringing in the ear?

i get gout when i don't drink

Swollen Ankle

My son is being messed about when it comes to a diagnosis. Too many doctors conflicting advice

LUPUS UK ....A VIRUS?????

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