Does anyone suffer recurrent kidney infections? - LUPUS UK

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Does anyone suffer recurrent kidney infections?

gillypom profile image
7 Replies

I seem to having kidney infection after kidney infection. As soon as I stop the antiobiotics, 2-3 days later, I have a fever and the infection is back. I just cannot seem to get on top of the infections

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gillypom profile image
gillypom
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7 Replies
Tigerlily4 profile image
Tigerlily4

That's a difficult and alarming one for sure. Are you presently taking any drug that impacts your immunity Gilly?

gillypom profile image
gillypom

Hi. I am on methotrexate, predisnalone and plaquenil. i am being weaned off slowly of predisnalone. I have an appointment on Thursday with a Urologist so will see what happens then. Thank you for replying, just feeling a little low at the mo

artemis5 profile image
artemis5

Hi Gillypom, seems like the antibiotics just don't work as they should and your infection is not cleared entirely. Can I ask which atibiotics were you prescribed?

gillypom profile image
gillypom

Hi artemis. I had a culture test and the antibiotics prescribed are levofloxacin. They seem to be working and I feel that I am back to normal, then within a couple of days, its back again. I just wonder if I need a longer course? Thank you for replying, I appreciate it.

artemis5 profile image
artemis5

To me it seems like either the dose or the time of treatment is not right ,because clearly the infection gets reactivated once the treatment is over. Norally antibiotics will not kill all bacteria but will kill majority of them and the rest will get cleared by the immune system. Unfortunately with the immunosupressive therapy that you are on your immune system might not be able to contain the infection and so the therapy should be prolonged. Do you rememeber by any chance which bacterial strains came up in the culture?

gillypom profile image
gillypom

Thats good, that is what I am thinking too. I do not have the report of the culture test but I am back at the hospital on Thursday and can request it. Thank you so much for your help :)

kizzame profile image
kizzame

Hi gillypom,I am going through exactly the same,I got my Urologist appointment through for the 24 Jan,I was put on antibiotics did the course also and feel great for a day or two then back again,this has gone on since August last year,till I said to my doctor I can't go on like this anymore that was about a month ago on some more pills at the moment called Nitrofurantoin,apparently stronger than I had before,I do know they make your wee a brown muddy colour glad they warned me about that lol,just wanted to wish you luck with your appointment and hopefully we will both get to the bottom of this for our infections......no pun ment then lol Angie x

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