Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,898 members • 28,227 posts

All posts for November 2012

Another medication!!!

I have tried steroids, Azathroprine, and have been on Methotrexate since March, now that is making me feel sick and have stomach ache! The rheumy nurse said to...

I have tried steroids, Azathroprine, and have been on Methotrexate since March, ...

jamg3916

•12 years ago

3 Replies

Is feeling overwhelmed and struggling to cope day to day part of lupus/polymyositis or likely to subside over time?

Hi I have CTD (SLE/polymyositis) and was diagnosed 2 years ago. I have recently joined Lupus UK and am new to this site aswell. I am positive, and try my...

Hi I have CTD (SLE/polymyositis) and was diagnosed 2 years ago. I have recently...

Renu

•12 years ago

11 Replies

Amitriptyline

another question! I have been taking amitriptyline (10mg) on alternating nights (to avoid having to increase dosage and to prevent what I call the zombie...

another question! I have been taking amitriptyline (10mg) on alternating n...

megs_tom

•12 years ago

12 Replies

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Quinoric problems

I have just experienced more than 2 weeks of severe pain . My prescription was replaced by Quinoric instead of Plaquenil. Doc thought I was flaring but...

I have just experienced more than 2 weeks of severe pain . My prescription was r...

Hidden

•12 years ago

12 Replies

"Recipes for Recovery"

Hi everyone, Just found this really great website with gluten free recipes that I thought you might find helpful. It's called 'recipes for recovery' and the...

Hi everyone, Just found this really great website with gluten free recipes th...

Maya23

•12 years ago

9 Replies

side effects of meds/side effects of lupus ?whats worse???

Hey!hope everyone is keeping good?i have another question ????still pretty new to lupus (well 16yrs)but six months officially,and after trying to fix it my way...

Hey!hope everyone is keeping good?i have another question ????still pretty new t...

brave

•12 years ago

19 Replies

Benefits have stopped

Just been declined for the support group I have been told that I am fit for work even though I can't walk or get out of bed on days I can't prepare a meal etc...

Just been declined for the support group I have been told that I am fit for work...

ebril

•12 years ago

8 Replies

Stroke like symptoms

Hi everyone Please could anyone who has had stroke like symptoms but nothing has shown on scans help me by replying below with your experience or send me a...

Hi everyone Please could anyone who has had stroke like symptoms but nothing h...

janekins

•12 years ago

23 Replies

fibromyalgia can u claim for dla?

carter12

•12 years ago

4 Replies

I am 63 years old am I too old to have Lupus ?I have been diagnosed with FM, but pain in my joints, rash on my cheeks etc , could it be

deja

•12 years ago

14 Replies

DLA and LUPUS

I am going for a DLA Appeal on Friday want to do a good case this time!! I have applied before but Appealing this time I have Consultant letter and GP!!! I am...

I am going for a DLA Appeal on Friday want to do a good case this time!! I have ...

MancRhian

•12 years ago

6 Replies

Is there a way to make life tolerable without all the medication

I was diagnosed in September of last year, but after years of suffering from this without knowing and thinking I was mad I am trying to manage this without...

I was diagnosed in September of last year, but after years of suffering from thi...

Rosey47

•12 years ago

18 Replies

On a lighter note .. Alter Ego ... Do you have one ... ? Have you named them ??

I seem to spend most of my life these days in alter ego mode, so much so I have decided that they really must have a name ... a bit like Princess Regina...

I seem to spend most of my life these days in alter ego mode, so much so I have ...

jemmyjemjem

•12 years ago

8 Replies

plaquenil

Hi everybody, when do you take your Plaquenil? With or without food? Have you had any probs with headache or stomach or anything else? If so,have they...

Hi everybody, when do you take your Plaquenil? With or without food? Have you...

Hidden

•12 years ago

11 Replies

being assertive !

here goes ............. Irecently told my boss that i find it hard when theres meetings after work as i start feeling ill if i do long days. Then last week ,...

here goes ............. Irecently told my boss that i find it hard when theres m...

larissa

•12 years ago

4 Replies

Light sensitivity

Does anyone who suffers with this wear glasses, and if they do, do they find that a tint helps? I find bright light hurts and if it is really sunny, as it was...

Does anyone who suffers with this wear glasses, and if they do, do they find tha...

jamg3916

•12 years ago

8 Replies

Do I tell an employer?

Hey just a quick one really... I am about to start a new job now my Lupus has settled down and my Methotrexate has it under control. I haven't told my employer...

Hey just a quick one really... I am about to start a new job now my Lupus has se...

shay1

•12 years ago

13 Replies

Young sufferers?

I haven't really met anybody a similar age with this condition. I'm 19, and have been "diagnosed" for just under a year. It would be great to meet others of...

I haven't really met anybody a similar age with this condition. I'm 19, and ha...

Becks93

•12 years ago

7 Replies

Tramadol

Hi all,has anyone had bad side effects when taking tramadol.

catb18

•12 years ago

11 Replies

Azathioprine

Hi all, I was wondering what are your experiences with this drug. I just started taking it as a steroid-sparing therapy, but to be honest I'm not sure I'm...

Hi all, I was wondering what are your experiences with this drug. I just st...

artemis5

•12 years ago

6 Replies

sensitive skin /sore skin and lupus???

Hi all,i seem to be going through turmoil at the moment ,the list of symptoms is endless,does anyone suffer this horrid super sensitive skin,like even your...

Hi all,i seem to be going through turmoil at the moment ,the list of symptoms is...

brave

•12 years ago

15 Replies

Biotene Toothpaste???????????

Hi all< I went to pick up my Biotene toothpaste on prescription from the chemist only to be told that this toothpaste/medication has now been put on 'hold'...

Hi all< I went to pick up my Biotene toothpaste on prescription from the chem...

Lulabelle

•12 years ago

4 Replies

st thomas'

I have managed to get my app moved to 3 wks time with my Rheumy after loads of symptoms, fibro, and 3 positive ANA s' I am hopefully gonna get some answers as...

I have managed to get my app moved to 3 wks time with my Rheumy after loads of s...

larissa

•12 years ago

3 Replies

Tummy pain

Just wondering if anyone gets tummy/side pain/discomfort while taking steroids or more coming off steroids. I've been on them for my breathing more that my...

Just wondering if anyone gets tummy/side pain/discomfort while taking steroids o...

copdber

•12 years ago

2 Replies

Can I have children? as periods are regular but have unprotected sex?

Hi, I am 22 years old and have SLE LUPUS. I have suffered very badly, specifically in september 2011 - december 2011. I was in hsopital for many months. I want...

Hi, I am 22 years old and have SLE LUPUS. I have suffered very badly, specifical...

gemzi

•12 years ago

20 Replies

Does anyone else have Lupus chilblains on the finger

I have very painful Lupus chilblains on the fingers and no cream has helped so far prescription or over the counter

I have very painful Lupus chilblains on the fingers and no cream has helped so f...

pep1954

•12 years ago

5 Replies

Medical Records

Hi to everybody on here. I wonder if anybody could help me with something. Today i received a letter regarding my Employment Support Allowance telling me they...

Hi to everybody on here. I wonder if anybody could help me with something. Today...

paula36

•12 years ago

9 Replies

Positive yesterday. Shock today.....

My partner is leaving me. He can't cope with my illness and with taking on my role of main carer to my two girls. His mother is negative and has encouraged...

My partner is leaving me. He can't cope with my illness and with taking on my ...

purple-lou

•12 years ago

32 Replies

Travel sickness

I suffered with travel sickness really badly as a child (as do a lot of children) and my mam always thought I would grow out of it but it stayed with me until...

I suffered with travel sickness really badly as a child (as do a lot of children...

megs_tom

•12 years ago

8 Replies

Confused newly diagnosed

Hi have just been told the good news I have Lupus and Sjogrens syndrome after suffering for so long, no-one picked up on it until I got a new Doctor. I don't...

Hi have just been told the good news I have Lupus and Sjogrens syndrome after su...

Shanti

•12 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2012

Another medication!!!

Is feeling overwhelmed and struggling to cope day to day part of lupus/polymyositis or likely to subside over time?

Amitriptyline

Quinoric problems

"Recipes for Recovery"

side effects of meds/side effects of lupus ?whats worse???

Benefits have stopped

Stroke like symptoms

fibromyalgia can u claim for dla?

I am 63 years old am I too old to have Lupus ?I have been diagnosed with FM, but pain in my joints, rash on my cheeks etc , could it be

DLA and LUPUS

Is there a way to make life tolerable without all the medication

On a lighter note .. Alter Ego ... Do you have one ... ? Have you named them ??

plaquenil

being assertive !

Light sensitivity

Do I tell an employer?

Young sufferers?

Tramadol

Azathioprine

sensitive skin /sore skin and lupus???

Biotene Toothpaste???????????

st thomas'

Tummy pain

Can I have children? as periods are regular but have unprotected sex?

Does anyone else have Lupus chilblains on the finger

Medical Records

Positive yesterday. Shock today.....

Travel sickness

Confused newly diagnosed

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