"Recipes for Recovery"

[Maya23]

Hi everyone,

Just found this really great website with gluten free recipes that I thought you might find helpful. It's called 'recipes for recovery' and the person who created it has M.E.

Here's the link:

recipes4recovery.com

Hope you are keeping well,

Dryad x

[Purpletop]

This is brilliant, thank you for sharing, Dryad!

[mstr]

Hi Dryad, these look fab......thank you

[brave]

Dyrad thankyou!!!we spoke recently about gluten free !and how undiagnosed gluten intolerance can lead to autoimmune disease ,absolutley the case for me,thankyou ,brave

[brave]

dyrad......../hope you dont mind me asking?do you know much about adrenal fatigue?have i already asked you this?sorry if i have my brain is frazzled LOL!im reading more and more and wander if most of my symptoms are adrenal related?or i should just accept lupus?or did adrenal fatigue lead to lupus?or vice versa?From what i read its a very tricky problem to ammend?basically it seems like we need to lie in a quiet room ,take adrenal supplements ,balance our hormones,avoid all stress in any form ,meditate ,avoid any foods that we react too etc etc!how can we do this ?thats not life !im wandering if small changes can help or is it just a waste of time as unless we put the whole recovery plan together how can we expect results?thankyou for listening brave

[Maya23]

Hi brave

Yes I think that adrenal exhaustion is the trigger for me. I think that's why I'm so much worse (adrenal fatigue symptoms) before my period, like today, I woke up with extreme vertigo and I can hardly walk I'm swaying all over the place lol! I'm having to lay low in a quiet room and try not to move my eyes to much (can still type though!!) I had a stressful evening and this is the result. My adrenals can not deal with stress. I am frazzled!

I am used to this as before I was dx with lupus the dx was ME and this is a common feature of that illness. Not sure still whether it was really lupus all along though. I've found that if I alter my lifestyle like you say -avoid stress, balance hormones, meditate, eat clean foods - I'm becoming forced to live like a buddhist monk!! Which is good for the soul I suppose...

I you also very empathic? I find that I seem to soak up other people's emotions like a sponge so if I'm around an angry/depressed/negative person it's unbearable. I like to keep myself to myself for this reason, but I do like to have a life too! It's a very thin tight-rope walk living with lupus in my experience, the smallest puff of wind can throw you off balance!

One strategy I've developed is to make sure my health and my home and family are all running fairly smoothly before I even think about leaving the house and giving my energy out to others. I am a housewife/mum/self-employed artist & garden designer so I can pick and choose how I spend my time, but my health and family always come first. I could never hold down a job, I wouldn't last a week.

It's nice to chat to you, so do ask more questions..

xx

[Maya23]

Here's what the lupus site says about diet and supplements:

Fish oil has anti-inflammatory properties. This has been documented in patients with rheumatoid arthritis & in animal models of SLE. Eating several fish meals a week is equivalent to taking several extra aspirins. It will never cure the disease but might bring about a modest improvement in wellbeing. Fish oil capsules are appropriate substitutes, but they can irritate the stomach, & it takes 8-10 capsules a day to substitute for one fish meal.

One food supplement to stay clear of is alfalfa sprouts. They contain an amino acid known as L-canavanine, which increases inflammation in patients with autoimmune disease. All members of the legume family contain L-canavanine, but it is highly concentrated in alfalfa sprouts.

Alfalfa is an ingredient in many food products, & some 'natural' vitamin remedies contain alfalfa, & should probably be avoided by patients with SLE.

Echinacea should probably be avoided by lupus patients, the herb boosts the immune system, & therefore boosts the autoantibodies that are our enemies. Echinacea appears in many herbal remedy preparations, so always read the label. Avoid any product that claims to boost the immune system.

Corticosteroids can raise blood sugar, serum cholesterol, & triglyceride levels & increase blood pressure. Therefore, steroid-dependent patients who require a dose of more than 10mg of prednisone a day should decrease their sugar, salt & fat intake.

Some Chinese herbal remedies contain sulfa derivatives & other substances that trigger allergic reactions in most lupus patients.

REMEMBER - always consult your physician before using any non-prescription remedies

I also take Turmeric for it's anti-inflammatry properties.

[Voutton]

Thank you so much for sharing although we have a wider choice nowadays ,the food is still full of additives which I am allergic to .So will give this a go Have a good day

[Voutton]

Dear Dyad I like your comments and agree with the the fact that You are what you eat even though I have Lupus I can do so much to help myself by what I eat Pity not everyone is so understanding when they can tuck into all the crap excuse languages of the day and have no ill effects I'm not saying I'm totally without symptons but so much better when I stay clear of food triggers I love red meat but it does not love me so my choice do I go back to being in a wheelchair or not . Another thing I must say is that if you give off negative vibes you attract negative people people So giving off positive vibes attracts a police person that only enhances your life Try reading Louisa L Hay The Power of Positive Thinking taking out of that what applies to your life .All the best

[Maya23]

Hi Voutton, yes I have also read one of Louise Hay's books many years ago called 'you can heal your life' it was very inspiring. I agree that if you give out negative energy then you attract that into your life, so I try to keep positive. I've also learned that it's important for me to also acknowledge the more difficult emotions and not deny them, but take responsibility for them and have compassion for myself. Easier said than done! Learning good self-care is an important skill for us.

I've been trying out lots of vegetarian and vegan recipes from Hugh Fernley's cook book 'River cottage veg everyday', and not only are we eating more veg and less meat, but we are saving money too. Good quality meat is very expensive these days so we buy a lot less and just get the best chicken we can afford and make it last.

I'm inspired that you've found that avoiding red meat has kept you out of a wheelchair -that's amazing! Wishing you all the best x