Hi I have CTD (SLE/polymyositis) and was diagnosed 2 years ago. I have recently joined Lupus UK and am new to this site aswell. I am positive, and try my best to fight lupus and cope with it. I swim regularly to stay active and maintain muscle strength. Infact swimming for me is my coping mechanism. However, alot of days are a real struggle in terms of energy levels, mobility struggles, feeling unable to cope with pressures of daily life with a young family (children aged 5 and 8). I am hoping things get better overtime. I have just come off steroids after two years (whippee) and am now on hydroxicholoriquine and aziothioprine. I feel on edge alot of the time because I get shattered as the day goes on but whether the anxiety/inability to cope is likely to subside I don't know. I wonder if feeling like this is actually due to lupus or reacting to and learning to live with this overwhelming illness. Could be both. Any thoughts please? I try to pace myself, and to get rest while kids are at school and now may start yoga to see if that will help keep me calm and relaxed! Renu
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.