Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2012

lupus doing my head in

lupus really effects my mental state today is frustration day .found it so hard to walk and breath today its left me knackered .the other day it was crying day...

lupus really effects my mental state today is frustration day .found it so hard ...

nipy

•12 years ago

4 Replies

bouncing back!

Well I'm very happy to say that I feel so much better and more like my old self since recovering from my reaction to steroids! My consultant phoned me...

Well I'm very happy to say that I feel so much better and more like my old self ...

Maya23

•12 years ago

6 Replies

So depressed, feel like a fraud, no further forward, what a rubbish year.

Was at another rhuemy appointment yesterday and even though I had a positive anticoagulant blood test, apparently this still does not provide evidence for...

Was at another rhuemy appointment yesterday and even though I had a positive ant...

goingaroundthetwist

•12 years ago

4 Replies

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Does anyone else get bitten by bugs really bad this time of year and then swell up and then blister from it?

Is this just me and is it related to SLE or am I just an attraction to insects? my boddy has 9 bites on it today from an evening walk and they are all swollen...

Is this just me and is it related to SLE or am I just an attraction to insects? ...

Butterbean

•12 years ago

11 Replies

just learning

hi, ive been diagnosed with discoid lupus and sever anemia for about 3 months (although had symptoms and investigations for several years) ive got lots of...

hi, ive been diagnosed with discoid lupus and sever anemia for about 3 months (a...

ddwb

•12 years ago

3 Replies

Latest rheumatology appointment... Now I really don't know what to think!!!!!

Hey everyone I joined a few weeks ago and have posted some questions before about how hard it is to get a diagnosis / to figure out what's going on etc....

Hey everyone I joined a few weeks ago and have posted some questions before a...

natal1a

•12 years ago

4 Replies

Carpal Tunnel Syndrome

In need of advice...I was diagnosed with SLE at the age iof 17...some 24 years ago, and until recently ( 4 years ago) received no treatment except for...

In need of advice...I was diagnosed with SLE at the age iof 17...some 24 years a...

cathbw

•12 years ago

5 Replies

Who is the most wellknown doctor specialized with SLE in LONDON????

Chinar

•12 years ago

3 Replies

What is the latest successful treatment for SLE???

Chinar

•12 years ago

1 Reply

Hi i suffer with SLE,COPD and Pulmonary Fibrosis i have to take lots of meds and was wondering if i can get these free ?

I would be greatful if anyone could advise me please and if so how do i go about getting this please Thankyou x

I would be greatful if anyone could advise me please and if so how do i go about...

Angie_webb

•12 years ago

4 Replies

Magesium

I just started takin magesium i not sure if i am takin the right doseage is any body on these

I just started takin magesium i not sure if i am takin the right doseage is any ...

lpatterson

•12 years ago

3 Replies

can anyone help with the below please

i was diagnosed with having DLE last year having had a skin biopsy done however im seen every 3 months by a dermatologist . I suffer with violent headaches,...

i was diagnosed with having DLE last year having had a skin biopsy done however ...

happyhoops

•12 years ago

15 Replies

camerond@parliament.uk

please email no 10 at above email and tell him how bad disable people are having their cuts, some are receiving nothing at all. Email now. let everyone you...

please email no 10 at above email and tell him how bad disable people are having...

sousse

•12 years ago

Be the first to reply

Why have the government fone this to disable people.

Why can'nt all disable people make sure that the rich boys in no10 know how they all fell about the 365 days esa rule, it has just happened to my husband on...

Why can'nt all disable people make sure that the rich boys in no10 know how they...

sousse

•12 years ago

6 Replies

This petition is reaching the end of it's life

I feel very strongly about this petition. Dr Pal was a junior doctor in Staffordshire, who bravely blew the whistle early on in the awful catastrophe which...

I feel very strongly about this petition. Dr Pal was a junior doctor in Stafford...

MaryF

•12 years ago

Be the first to reply

anyone have Lupus and Fibromyalgia??

I've been diagnosed with SLE and Lupus Nephritis for some 10 years now and whilst my kidney problems have improved I have other symptoms which are getting...

I've been diagnosed with SLE and Lupus Nephritis for some 10 years now and whils...

frizzylizzy1974

•12 years ago

18 Replies

Hello, I have SLE and keep getting struck down by horrific pain in my upper back that radiates round to my chest and stomach.

It is so bad I can hardly bear it and I have been admitted to hospital once because I thought I was havign a heart attack. Now the docs say they think it is...

It is so bad I can hardly bear it and I have been admitted to hospital once beca...

Natalie31

•12 years ago

1 Reply

I am being tested for Lupus, I already have MS and am in the progressive stage.

Does anybody know about a link with MS and Lupus, I realise they are both auto immune. I'm scared - I have to admit it. I have had serious clotting problems...

Does anybody know about a link with MS and Lupus, I realise they are both auto i...

anniesensi

•12 years ago

18 Replies

circulation

i have raynard issues but last few days my veins in feet been really itchy. very red and swollen looking feet. any ideas

i have raynard issues but last few days my veins in feet been really itchy. very...

moss

•12 years ago

4 Replies

lower back pain driving me mad

is there anyone out there with lupus and lower back pain any advice please

nipy

•12 years ago

15 Replies

i've got a really bad pain under my left side ribs !

it woke me up this morning and although its eased its still there . Ihad this the other day too and dissappeared for a day ! any ideas !?

it woke me up this morning and although its eased its still there . Ihad this t...

larissa

•12 years ago

1 Reply

Can anyone recommend a rheumatologist in the Sheffield/Derby area?

I'd appreciate any recommendations for a rheumatologist who is particularly good at dealing with sle. Ideally in the Sheffield or Derby area but would be happy...

I'd appreciate any recommendations for a rheumatologist who is particularly good...

Petey

•12 years ago

7 Replies

Sle support groups near Bakewell?

Are there any sle support groups near Bakewell/Chesterfield/Derby/Sheffield?

Petey

•12 years ago

6 Replies

Macular Degeneration (AMD) I've now got this horrible disease

Has anyone with Lupus have Macular Degeneration (AMD) Dry..I have just been diagbosed with this in both eyes, I went to the Hydroxychlorequine clinic for an...

Has anyone with Lupus have Macular Degeneration (AMD) Dry..I have just been diag...

fj14

•12 years ago

7 Replies

Methotrexate

Is anyone on Methotrexate and how do they find it. Any advice would be helpful

witch2

•12 years ago

8 Replies

Advice please,

I know a lot of you also suffer from heat intolerance, but for some unknown reason mine has been taken to the extreme this year. I know the sun triggers a...

I know a lot of you also suffer from heat intolerance, but for some unknown reas...

tiredmum

•12 years ago

10 Replies

Dare I mention - the "C" word!

Christianity! I just wanted to share with you that the recent blogs by another member on this site, ref - faith and christianity, which proved personally...

Christianity! I just wanted to share with you that the recent blogs by anothe...

going2Balright

•12 years ago

19 Replies

Help please

Does anyone know if there are any places to go for financial help whilst ill and off work? I completed the ESA formd three weeks ago but have heard nothing...

Does anyone know if there are any places to go for financial help whilst ill and...

Tibby3a

•12 years ago

5 Replies

Help employment rights?

Hello i have SLE and suffer with depression and panic attacks i work 30 hours a week. I was pulled into the office to say they think ive had to much time off...

Hello i have SLE and suffer with depression and panic attacks i work 30 hours a ...

danie

•12 years ago

10 Replies

hi im emma and have lupus

i im emma and have lupus i am suffering really bad at the moment but more so with my joints all of them they sweel up like a balloon and i cant move them is...

i im emma and have lupus i am suffering really bad at the moment but more so wit...

emmajean30

•12 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2012

lupus doing my head in

bouncing back!

So depressed, feel like a fraud, no further forward, what a rubbish year.

Does anyone else get bitten by bugs really bad this time of year and then swell up and then blister from it?

just learning

Latest rheumatology appointment... Now I really don't know what to think!!!!!

Carpal Tunnel Syndrome

Who is the most wellknown doctor specialized with SLE in LONDON????

What is the latest successful treatment for SLE???

Hi i suffer with SLE,COPD and Pulmonary Fibrosis i have to take lots of meds and was wondering if i can get these free ?

Magesium

can anyone help with the below please

camerond@parliament.uk

Why have the government fone this to disable people.

This petition is reaching the end of it's life

anyone have Lupus and Fibromyalgia??

Hello, I have SLE and keep getting struck down by horrific pain in my upper back that radiates round to my chest and stomach.

I am being tested for Lupus, I already have MS and am in the progressive stage.

circulation

lower back pain driving me mad

i've got a really bad pain under my left side ribs !

Can anyone recommend a rheumatologist in the Sheffield/Derby area?

Sle support groups near Bakewell?

Macular Degeneration (AMD) I've now got this horrible disease

Methotrexate

Advice please,

Dare I mention - the "C" word!

Help please

Help employment rights?

hi im emma and have lupus

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