Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for July 2012

Immune system low please help?

I visited clinic a few weeks ago and the azathioprine has been stopped and the hydroxy has been halved. This was because I had chest infections ie. immune...

I visited clinic a few weeks ago and the azathioprine has been stopped and the h...

artgirl

•12 years ago

3 Replies

newby experiences

Hi ,like I said ,I am new to all this,and only found out about lupus 4 months ago via a facebook message but having read about the signs and symptoms I am...

Hi ,like I said ,I am new to all this,and only found out about lupus 4 months ag...

nadine66

•12 years ago

22 Replies

R.I.P. Wilma .....

I came across a page on facebook called Loot for Lupus it is run by a lovely family who are raising money for us lupus sufferers all money goes to lupus uk....

I came across a page on facebook called Loot for Lupus it is run by a lovely fam...

heatherx

•12 years ago

2 Replies

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R.I.P. Wilma ...

I came across a page on facebook called Loot for Lupus it is run by a lovely family who are raising money for us lupus sufferers all money goes to lupus uk....

I came across a page on facebook called Loot for Lupus it is run by a lovely fam...

heatherx

•12 years ago

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Just for fun... Namegiving!

I’ve been reading a lot of posts lately from frustrated people who just can’t take it anymore. I fall into this category. Since last November, I’ve been out 5...

I’ve been reading a lot of posts lately from frustrated people who just can’t ta...

SRamkin

•12 years ago

16 Replies

Weight gain without meds?

I was diagnosed with SLE nephritis last year and although I haven’t been on any meds other than Plaquenil since a year now, I feel like I am gaining weight by...

I was diagnosed with SLE nephritis last year and although I haven’t been on any ...

SRamkin

•12 years ago

8 Replies

Has anybody had problems with periods? I've not had any since my baby over a year ago but GP not worried. Is this normal I'm not on any meds

lauraa11en

•12 years ago

3 Replies

I am so mad and sick of my family. I try to do the right thing but I feel like since I had Systemic Lupus Every move I make is WATCHED

I am sick of it, I just want to not feel for a while! I have had lupus for almost 5 years now and I had steroid phycosis and drug addicition and alcohol due to...

I am sick of it, I just want to not feel for a while! I have had lupus for almos...

krisdy

•12 years ago

12 Replies

Enough now please xx

Hi all hope u all doing ok ..... I don't come.on here often but i really want t scream ....... I HATE THIS ... LUPUS ......... sorry but i really do .... Love...

Hi all hope u all doing ok ..... I don't come.on here often but i really want t ...

discoqueen

•12 years ago

6 Replies

im diagnosed with connective tissue disease, poss Lupus. Does anybody else have pain in their jaw? It gets so bad it prevents me eating.

lauraa11en

•12 years ago

11 Replies

Does any1 get extreme tiredness with a bad thirst?

I'm not sure whether it's down to the Lupus or the meds?

Lisa78

•12 years ago

9 Replies

News & Views - Summer 2012 - OUT NOW

The postman has visited and collected the thousands of magazines that our fantastic volunteers packed into envelopes yesterday. If you’re a member, then you...

The postman has visited and collected the thousands of magazines that our fantas...

Paul_Howard

Partner•12 years ago

5 Replies

Specific type of pain - like I've crazily over exercised the day before?

I'm still trying to get diagnosed, does this sound familiar? All I have to do is one different thing... like for instance, I adopted a cat, so I spent some...

I'm still trying to get diagnosed, does this sound familiar? All I have to do...

Blueberry

•12 years ago

6 Replies

LUPUS New Drug

First New Lupus Drug in 50 Years: Benlysta Gains FDA Approval Just found out about this tonight, anyone else reading about it.........ao exciting !!!

First New Lupus Drug in 50 Years: Benlysta Gains FDA Approval Just found out...

tulip47

•12 years ago

10 Replies

I thought it was my own private nightmare

Wow its real. Finding this web site and community has been like a bomb going off in my brain. I thought i was in my own private nightmare untill I recently...

Wow its real. Finding this web site and community has been like a bomb going off...

efur

•12 years ago

9 Replies

Is there a support group in West Lancashire or Liverpool area?

j7blupus

•12 years ago

3 Replies

Lupus Coffee and Chat in South Devon

All welcome to come to : Paignton Coffee and Chat for July From 10.30 am Wednesday 18th July 2012 The Palace Hotel The Esplanade Paignton We...

All welcome to come to : Paignton Coffee and Chat for July From 10.30 am W...

Chivvy

•12 years ago

2 Replies

Thinning hair and trying to cover it up!! ;-)

Sadly,I'm sure there are many of you out there with thinning hair, has anyone found a solution or a disguise? I've looked into hair transplant - yes I'm at...

Sadly,I'm sure there are many of you out there with thinning hair, has anyone fo...

BetsieBoo

•12 years ago

10 Replies

Anyone got good pain relief from fibromyalgia?

I'm struggling to get fibro pain under control.. I treat lupus pain with oral morph and tramsdol but this is not working for my fibro pain. I'd be really...

I'm struggling to get fibro pain under control.. I treat lupus pain with oral mo...

BetsieBoo

•12 years ago

5 Replies

Anti depressants?

My GP put me on Citalapram but then rang and said not to take them as they interact with other drugs I'm on, instead she gave me Fluoxetine but the...

My GP put me on Citalapram but then rang and said not to take them as they inter...

mol61

•12 years ago

8 Replies

Urnie

Has anybody experienced foamy. Urnie before

lpatterson

•12 years ago

14 Replies

"Despite Lupus" by Sara Gorman. Anyone read it?

Its a book by a woman in the US who was diagnosed with Lupus and the steps she took to rebuild her life. Wondering if anyone has read it or can recommend,...

Its a book by a woman in the US who was diagnosed with Lupus and the steps she t...

crusher

•12 years ago

5 Replies

Help with petitions, some of us have great care and some not so good.

Three of these petitions are related to thryoid issues, which seems prevalent with autoimmune, and the other one, just help with the downright awful culture...

Three of these petitions are related to thryoid issues, which seems prevalent wi...

MaryF

•12 years ago

4 Replies

Can anybody help with the below question.

. Does anybody with Lupus suffer with this problem.Consultants thought it might be secondary Raynauds,but this has be discounted.Have had conduction test but...

. Does anybody with Lupus suffer with this problem.Consultants thought it might...

Loopy-loo

•12 years ago

11 Replies

Benefits??

As some of you know I am struggling with working a fairly physical job with lupus and Hughes syndrome and am seriously thinking about leaving work as every day...

As some of you know I am struggling with working a fairly physical job with lupu...

Hayz24

•12 years ago

8 Replies

non-connective tissue disorder

i kind of feel abit lost-i dont fit in to a category lol-my rheumy thinks i have a non specific connective tissue disorder and 2 ndry fibro. does this mean i...

i kind of feel abit lost-i dont fit in to a category lol-my rheumy thinks i have...

moss

•12 years ago

1 Reply

Update from Clairebear

Well I managed a week back at work. I work with children so it was lovely to see all those happy little faces smiling back at me. It was good to keep busy,...

Well I managed a week back at work. I work with children so it was lovely to see...

Clairebear

•12 years ago

7 Replies

Jolting through the night.

I keep having my whole body or limbs, arms and legs like physicaly jolting through the nights anyone any ideas?

I keep having my whole body or limbs, arms and legs like physicaly jolting throu...

Butterbean

•12 years ago

10 Replies

the outcome of cyclophosphomide

pls those that have undergone cyclophosphomide treatment can you tell me if you got better after the six months treatment.

pls those that have undergone cyclophosphomide treatment can you tell me if you ...

ijeasike

•12 years ago

35 Replies

Am I alone?

Currently I feel as if I am going slightly crazy. 3 years ago I was diagnosed with SLE with renal involvement, APS, Raynauds, Fibromyalgia and multiple...

Currently I feel as if I am going slightly crazy. 3 years ago I was diagnosed wi...

Alupie

•12 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2012

Immune system low please help?

newby experiences

R.I.P. Wilma .....

R.I.P. Wilma ...

Just for fun... Namegiving!

Weight gain without meds?

Has anybody had problems with periods? I've not had any since my baby over a year ago but GP not worried. Is this normal I'm not on any meds

I am so mad and sick of my family. I try to do the right thing but I feel like since I had Systemic Lupus Every move I make is WATCHED

Enough now please xx

im diagnosed with connective tissue disease, poss Lupus. Does anybody else have pain in their jaw? It gets so bad it prevents me eating.

Does any1 get extreme tiredness with a bad thirst?

News & Views - Summer 2012 - OUT NOW

Specific type of pain - like I've crazily over exercised the day before?

LUPUS New Drug

I thought it was my own private nightmare

Is there a support group in West Lancashire or Liverpool area?

Lupus Coffee and Chat in South Devon

Thinning hair and trying to cover it up!! ;-)

Anyone got good pain relief from fibromyalgia?

Anti depressants?

Urnie

"Despite Lupus" by Sara Gorman. Anyone read it?

Help with petitions, some of us have great care and some not so good.

Can anybody help with the below question.

Benefits??

non-connective tissue disorder

Update from Clairebear

Jolting through the night.

the outcome of cyclophosphomide

Am I alone?

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