hi, ive been diagnosed with discoid lupus and sever anemia for about 3 months (although had symptoms and investigations for several years)
ive got lots of questions, such as what to expect? i feel so tired, my eyes sting alot and my muscles and bones ache alot especially when i wake up - is it all connected? - my hair loss scares me and im really not sure how to manage all the stuff i feel (physically and emotionally)
im seeing a dermatologist but she doesnt seem interested in these other symptoms. Actually she hasnt really given me much info - some steroids and told me to avoid the sun - that in itself is life changing!
anyone got any advice about where to get some of these questions answered, should i change my diet etc