Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for January 2021

Cancer stable and on prohibitor

Hi there Is there anyone on Niraparib who does still have the cancer? Mine in behaving at the moment! I have been on Niraparib since August and my CA125...

Hi there Is there anyone on Niraparib who does still have the cancer? Mine in ...

Lesinbeds

•3 years ago

12 Replies

Parp inhibitor

Just had my last chemo session. Carbo /caylex. 😁😁😁. Ct scan next Tuesday. Then hopefully olaparib.. Anybody on that parp. How you coping on it

Just had my last chemo session. Carbo /caylex. 😁😁😁. Ct scan next Tuesday. Th...

patricia54053

•3 years ago

17 Replies

Online groups, talks and workshops with Ovacome this week

Hello All This is to let you know about the Ovacome online events taking place this week. Ask your questions: Early menopause with Dr Sarah Ball - Tuesday 19...

Hello All This is to let you know about the Ovacome online events taking place t...

OvacomeSupport

Partner•3 years ago

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Hernia

I had my op for oc4 back in February I have now been told I have a hernia due to op it's just above left hand side of my belly button has anyone else had...

I had my op for oc4 back in February I have now been told I have a hernia due to...

Madmolly

•3 years ago

23 Replies

After 1st recurrence and 6th chemo, what's next?

My mother just finished her 4th chemo. We continued with Doxitaxel and carboplatin after favorable result of her ct scan post 3rd chemo. The doctor was...

My mother just finished her 4th chemo. We continued with Doxitaxel and carboplat...

Kwiskwos

•3 years ago

3 Replies

Parks.

Hi ladies , I've had my fourth cycle ,very bad side effects ,on day 12 and still feeling very weak .Oncologist has said I'd most likely go onto a parp after...

Hi ladies , I've had my fourth cycle ,very bad side effects ,on day 12 and sti...

fendweller

•3 years ago

20 Replies

Niraparib approval !

In the paper yesterday big headline Quantum leap in fight against Ovarian Cancer. I eagerly read it only to find that Niraparib had been approved by the...

In the paper yesterday big headline Quantum leap in fight against Ovarian Cancer...

rosebine

•3 years ago

3 Replies

Fenbendazole

Hi there! Wondering if anyone has information about the use of Fenbendazole with ovarian cancer? Thanks! :)

Hi there! Wondering if anyone has information about the use of Fenbendazole with...

Kairosmoment

•3 years ago

2 Replies

Reaction from avastin

Has anyone got hives from a v a i s t i a n use contribute I did a few years ago and I might be going back on it again because it does help

Has anyone got hives from a v a i s t i a n use contribute I did a few years ago...

mlbronk

•3 years ago

1 Reply

Research into the psychological impact of COVID-19 on women undergoing treatment for ovarian cancer

Hello, everyone A few months ago we shared some information about a research project being undertaken at the University of Nottingham. Here is the outline...

Hello, everyone A few months ago we shared some information about a research pro...

OvacomeSupport

Partner•3 years ago

4 Replies

Letrozole

Hello Ladies, Looking for some advice and any feedback on your experience of Letrozole. I am stage 3 HGS and have just finished my chemo and underwent...

Hello Ladies, Looking for some advice and any feedback on your experience of Let...

Robbo16

•3 years ago

15 Replies

Experience with palliative radiation?

I asked oncologist if palliative radiation to one particular tumor might be a temporary solution to some breathing issues I am having (see below). However, I...

I asked oncologist if palliative radiation to one particular tumor might be a t...

Natsmb

•3 years ago

5 Replies

Rucarapib itching

Just started on my third week on this PARP and I am going mad with itching. Did take a antihistamine last night which helped but dont like taking these...

Just started on my third week on this PARP and I am going mad with itching. Did...

Lizzieanne

•3 years ago

16 Replies

Rubraca supplements

Is any one on Rubraca and taking Supplements. If so, what are they and does your Oncologist approve?

Is any one on Rubraca and taking Supplements. If so, what are they and does your...

win_56

•3 years ago

5 Replies

Hair loss and Abraxane

Hello I am currently having chemo for ovarian cancer. I had a reaction to paclitaxel do I am on Abraxane instead. My Doctor told me my hair wouldnt fall out...

Hello I am currently having chemo for ovarian cancer. I had a reaction to pacli...

Gemma-A

•3 years ago

8 Replies

Niraparib availability in Scotland - your comments needed

Hello All The Scottish Medicines Consortium (SMC) are considering making niraparib available as follows: "As monotherapy for the maintenance treatment of adult...

Hello All The Scottish Medicines Consortium (SMC) are considering making nirapar...

OvacomeSupport

Partner•3 years ago

2 Replies

CA125 rising but PET scan clear

Hello friends, I am post surgery 14 months, post chemo over six months. On a clinical trial getting Olaparob, durvalumab and bevacizumab. CTs every three...

Hello friends, I am post surgery 14 months, post chemo over six months. On a cli...

Louise62

•3 years ago

8 Replies

Now to try topotecan

Hello everyone, I’m new here and wonder if anyone has had a similar experience. I was diagnosed with probable ovarian cancer in September 2019, although the...

Hello everyone, I’m new here and wonder if anyone has had a similar experience. ...

Fishfinger4

•3 years ago

11 Replies

In focus: exercise - cardio

Hello This month in our ‘Health in Focus’ posts we’re looking at exercise for people diagnosed with ovarian cancer. Today we’ll look more closely at...

Hello This month in our ‘Health in Focus’ posts we’re looking at exercise for pe...

OvacomeSupport

Partner•3 years ago

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Break in Avastin

HI Everyone Has anyone got any thoughts or experience of a break in their Avastin cycle... Briefly I had my 4th infusion on 4th December 2020 then found out I...

HI Everyone Has anyone got any thoughts or experience of a break in their Avasti...

pants22

•3 years ago

7 Replies

Update on can I get some input on others experiences with ascites

First of all, ladies, I wanted to send out a very big heartfelt thank you for all of your feedback and concern. Without your input and experiences I don't know...

First of all, ladies, I wanted to send out a very big heartfelt thank you for al...

Natsmb

•3 years ago

2 Replies

Please help

Hi there, I am hoping you can help me. I have had 2 internal ultrasound and my gynaecologist referred me for MRI and CA125 test. I get the MRI tests back...

Hi there, I am hoping you can help me. I have had 2 internal ultrasound and my g...

BBDEBS

•3 years ago

13 Replies

Thank you!

I posted last week asking for advice because my surgery has been cancelled. This is just a quick note to thank everyone for your extremely helpful...

I posted last week asking for advice because my surgery has been cancelled. Thi...

rightfromthestart

•3 years ago

17 Replies

NIRAPARIB

HI EVERYONE MY SIS STARTED ON NIRAPARIB 200MG.. HAD NAUSEA/VOMITING, HIGH BP, PALPITATION..REDUCED TO 100MG... STILL HAD PLATLET 59.. STOPPED FOR A WEEK...

HI EVERYONE MY SIS STARTED ON NIRAPARIB 200MG.. HAD NAUSEA/VOMITING, HIGH BP, PA...

Harp-1

•3 years ago

4 Replies

Niraparib(Zejula) failed. What now?

Hello ladies, I have not posted anything yet but have been following the posts for several months and learned a lot from them. I was diagnosed with with...

Hello ladies, I have not posted anything yet but have been following the posts f...

Marienka

•3 years ago

19 Replies

Changes to surgery

Hello All We know this is a really worrying time as the NHS manages the current wave of the Covid-19 pandemic. There have been some conversations in the forum...

Hello All We know this is a really worrying time as the NHS manages the current...

TheOvacomeTeam

Partner•3 years ago

3 Replies

Online groups, talks and workshops with Ovacome this week

Hello All This is to let you know about the Ovacome online events taking place this week. London Ovarian Cancer Support Group (previously meeting at Maggie's...

Hello All This is to let you know about the Ovacome online events taking place t...

OvacomeSupport

Partner•3 years ago

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Debulking surgery

I have an appointment with the surgeon on Wednesday to discuss having the debulking operation looking for advice on what questions to ask.

I have an appointment with the surgeon on Wednesday to discuss having the debulk...

tisha10

•3 years ago

9 Replies

I’m 22 having pain in my ovary could this be ovarian cancer?

Hello, A few years ago I had a scan which told me I had a small cyst on my ovary. It didn’t cause much discomfort and was told it would be fine. I recently...

Hello, A few years ago I had a scan which told me I had a small cyst on my ovar...

Ryaheath

•3 years ago

4 Replies

Re: Soya Milk & Soy foods : plant estrogens (phyto-estrogens)

Re: Soya Milk & Soy foods : Contains plant estrogens (phyto-estrogens).... Hello there, i've finished 6 cycles of Chemo and interval debulking surgery and my...

Re: Soya Milk & Soy foods : Contains plant estrogens (phyto-estrogens).... Hello...

Doughnut21

•3 years ago

16 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2021

Cancer stable and on prohibitor

Parp inhibitor

Online groups, talks and workshops with Ovacome this week

Hernia

After 1st recurrence and 6th chemo, what's next?

Parks.

Niraparib approval !

Fenbendazole

Reaction from avastin

Research into the psychological impact of COVID-19 on women undergoing treatment for ovarian cancer

Letrozole

Experience with palliative radiation?

Rucarapib itching

Rubraca supplements

Hair loss and Abraxane

Niraparib availability in Scotland - your comments needed

CA125 rising but PET scan clear

Now to try topotecan

In focus: exercise - cardio

Break in Avastin

Update on can I get some input on others experiences with ascites

Please help

Thank you!

NIRAPARIB

Niraparib(Zejula) failed. What now?

Changes to surgery

Online groups, talks and workshops with Ovacome this week

Debulking surgery

I’m 22 having pain in my ovary could this be ovarian cancer?

Re: Soya Milk & Soy foods : plant estrogens (phyto-estrogens)

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