Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2022

Cutie Time Again!

Hello everyone Just thought i would show you this picture of a beautiful duckling about to catch his dinner!. It was such a good photo that its won a Birds...

Hello everyone Just thought i would show you this picture of a beautiful ducklin...

misty14

•2 years ago

52 Replies

Study to assess whether past medical history of RTIs or harmful environmental factors contributes to development of rheumatic diseases

We have been asked to share a survey with our community which is being conducted by researchers from the Rheumatology Department of the Medical University of...

We have been asked to share a survey with our community which is being conducte...

Alida_Bennett

Partner•2 years ago

4 Replies

New kitten Milo 😍

Thought I'd share a pick of lil' Milo who has decided she wants to live in my jacket permanently. 😂 Rough time at the moment still, and many others have it...

Thought I'd share a pick of lil' Milo who has decided she wants to live in my ja...

LottieLou96

•2 years ago

17 Replies

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lupus erythematosus tumidus (LET)

Hello to everyone . I was wondering if someone as being diagnose with Tumidus? . I have lesions on my neck . Thanks to all .

Hello to everyone . I was wondering if someone as being diagnose with Tumidus?...

Johntum

•2 years ago

1 Reply

Finally been retired on ill health aged 43!!!

Hi all, so I've been struggling with sle and APS mainly joints and ridiculous fatigue for a long time now and really struggling with just my 12 hrs a wk...

Hi all, so I've been struggling with sle and APS mainly joints and ridiculous fa...

Sara_A

•2 years ago

24 Replies

Doctors don't listen, so frustrated

When I was much younger I went through a treatment to desensitize me to UV light. The dermatologist said it was likely I had discoid lupus. This was maybe 15...

When I was much younger I went through a treatment to desensitize me to UV light...

Freyagoo

•2 years ago

16 Replies

Tattoo

I am thinking of getting some Tattoo artwork done. Worried about infection, having a reaction. I know everyone reacts/ heals differently but any lupies out...

I am thinking of getting some Tattoo artwork done. Worried about infection, havi...

Naturelle12

•2 years ago

7 Replies

Lupus and back pain

Hey all, does anyone suffer with back pain? I’ve always had back problems, but they’re gradually getting worse, I’ve always put it down to bad posture and...

Hey all, does anyone suffer with back pain? I’ve always had back problems, but t...

SWinNorfolk

•2 years ago

2 Replies

Moving and recent Drs visits

Well finally hit our time frame, listed our house, and moved. It’s been a stressful few weeks but it’s over and I’m thankful. Just before that we went to UCLA...

Well finally hit our time frame, listed our house, and moved. It’s been a stress...

JennaShi

•2 years ago

2 Replies

In case you need a smile ! 🌹🌷💐

I really couldn’t resist posting this ! Caption has got to be “ what’s the big deal it’s my garden I’ll flash what I like “ 😂😂😂

I really couldn’t resist posting this ! Caption has got to be “ what’s the big d...

Tiggywoos

•2 years ago

37 Replies

A sight to behold

I’m sharing this calming soothing picture of peace that I took in the highlands last month. The air was so clean and fresh it was almost fizzy. Hope it calms...

I’m sharing this calming soothing picture of peace that I took in the highlands ...

Hidden

•2 years ago

18 Replies

Sunny weather and flares, help!

Am I the only one that flares up in this heat like there is no tomorrow!!! Cold weather not many flares for me, but heat and sun.. well that looks like a big...

Am I the only one that flares up in this heat like there is no tomorrow!!! Cold ...

Ilovepuppies88

•2 years ago

39 Replies

Withdrawal

Hi is anyone got experience with withdrawal from Hydroxychloroquine?

Sandrakee

•2 years ago

4 Replies

Any side effect from beetroot juice?

Hello, I have been trying to drink a glass of beetroot juice daily and I get unwell soon after I drink and stay that way all day long. This is very puzzling as...

Hello, I have been trying to drink a glass of beetroot juice daily and I get unw...

Paprika60

•2 years ago

11 Replies

I saw this news about a new test

https://lnkd.in/g7bktG79 I hope you can open it as I copied from LinkedIn

EG74

•2 years ago

9 Replies

Help! Hay fever and cutaneous lupus

I am really suffering and so fed up of waking up to face yet another day of feeling so rubbish. I didn’t develop hay fever until last year and it is ruining...

I am really suffering and so fed up of waking up to face yet another day of feel...

Raven_claw

•2 years ago

2 Replies

Is it possible to avoid weight gain on steroids!

Hi everyone Ive been started on a prednisolone 10mg for 3 weeks for lupus flare. I know its only a short course but Ive been trying my best to loose weight at...

Hi everyone Ive been started on a prednisolone 10mg for 3 weeks for lupus flare...

Shann07

•2 years ago

7 Replies

Legs cramps and ageing

I too have put on a couple of stones in weights and I am really suffering leg and hand cramps recently. I’m on HCQ and Methotrexate. My calf muscle felt like...

I too have put on a couple of stones in weights and I am really suffering leg an...

BK47

•2 years ago

11 Replies

Moving hospital trust: Rheumy (kind of) first appt. tips

The reason why I've said 'kind of' is due to the fact that I'm moving my care to a different hospital trust, so I've already communicated with...

The reason why I've said 'kind of' is due to the fact that I'm moving my care to...

Amakura

•2 years ago

19 Replies

MY OPINIONS ON THE EFFECTS OF HYDROXYCHLORAQUIN (OR LET'S CALL IT JUST HC

In 2012 I was taken to Addenbrooke's hospital in Cambridge with severe skin rash - particularly on my back, where skin was peeling like sunburn and leaving red...

In 2012 I was taken to Addenbrooke's hospital in Cambridge with severe skin rash...

SLEEPINGDOG

•2 years ago

18 Replies

Update reappointment with Eye Consultant post cataract surgery.

Dear All, Photo is my quilting of my current quilt I am doing very slowly due to my eyes. Just to update all of you . Yesterday has been a horrendous day for...

Dear All, Photo is my quilting of my current quilt I am doing very slowly due to...

KnitSewPurl

•2 years ago

13 Replies

Hydroxychloroquine, h plyori and antibiotics

Hi all I've been taking 200mg of hydroxychloroquine for the last 4 years and everything is pretty stable with my health. Though recently I've had a lot of...

Hi all I've been taking 200mg of hydroxychloroquine for the last 4 years and eve...

Dacceber

•2 years ago

3 Replies

Struggling to get a diagnosis.

Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results...

Hello, I have been suffering with what I believe are all symptoms of lupus, apa...

Ryane96

•2 years ago

6 Replies

Are you 18 or older and diagnosed with a skin condition by a doctor?

We have been asked to support a study by Cardiff University into patient perceptions of medical photography of dermatological conditions. The study is in the...

We have been asked to support a study by Cardiff University into patient percept...

Alida_Bennett

Partner•2 years ago

10 Replies

Pip review

I’m am worried and stressed already, got my form to update my Pip yesterday and advice shop doesn’t do face to face appoints I’ve been shaking and crying since...

I’m am worried and stressed already, got my form to update my Pip yesterday and ...

Loraine14

•2 years ago

9 Replies

Hydroxychloroquine toxicity

After much pushing on my part to see a hospital ophthalmologist for an eye check up because I take Hydroxychloroquine, at a recent visit to Specsavers it was...

After much pushing on my part to see a hospital ophthalmologist for an eye check...

61Annie

•2 years ago

30 Replies

What should happen now?

Hello, thank you for taking the time to read - I had a cardiac device (ICD, like a pacemaker) fitted in 2017 and since then, my health has graduallydeclined...

Hello, thank you for taking the time to read - I had a cardiac device (ICD, lik...

PawPad

•2 years ago

9 Replies

Your views needed for a LUPUS UK-funded research project - Investigating neurological & mental health symptoms in lupus and related diseases

LUPUS UK is funding Cambridge University to carry out a research study into neurological and mental health symptoms experienced by people with lupus and...

LUPUS UK is funding Cambridge University to carry out a research study into neur...

Paul_Howard

Partner•2 years ago

29 Replies

Experiences with Cyclophosphamide

My Consultant is considering adding a course of cyclophosphamide to my treatment plan. I am reading as much as I can about it but am keen to know how people...

My Consultant is considering adding a course of cyclophosphamide to my treatment...

SnowSeeker19

•2 years ago

5 Replies

Skin problems

I have cutaneous lupus and find Cetaphil face wash works and use Aveeno cream as a moisturiser. Good luck.

I have cutaneous lupus and find Cetaphil face wash works and use Aveeno cream as...

enajgnorts

•2 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2022

Cutie Time Again!

Study to assess whether past medical history of RTIs or harmful environmental factors contributes to development of rheumatic diseases

New kitten Milo 😍

lupus erythematosus tumidus (LET)

Finally been retired on ill health aged 43!!!

Doctors don't listen, so frustrated

Tattoo

Lupus and back pain

Moving and recent Drs visits

In case you need a smile ! 🌹🌷💐

A sight to behold

Sunny weather and flares, help!

Withdrawal

Any side effect from beetroot juice?

I saw this news about a new test

Help! Hay fever and cutaneous lupus

Is it possible to avoid weight gain on steroids!

Legs cramps and ageing

Moving hospital trust: Rheumy (kind of) first appt. tips

MY OPINIONS ON THE EFFECTS OF HYDROXYCHLORAQUIN (OR LET'S CALL IT JUST HC

Update reappointment with Eye Consultant post cataract surgery.

Hydroxychloroquine, h plyori and antibiotics

Struggling to get a diagnosis.

Are you 18 or older and diagnosed with a skin condition by a doctor?

Pip review

Hydroxychloroquine toxicity

What should happen now?

Your views needed for a LUPUS UK-funded research project - Investigating neurological & mental health symptoms in lupus and related diseases

Experiences with Cyclophosphamide

Skin problems

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2022

Cutie Time Again!

Study to assess whether past medical history of RTIs or harmful environmental factors contributes to development of rheumatic diseases

New kitten Milo 😍

lupus erythematosus tumidus (LET)

Finally been retired on ill health aged 43!!!

Doctors don't listen, so frustrated

Tattoo

Lupus and back pain

Moving and recent Drs visits

In case you need a smile ! 🌹🌷💐

A sight to behold

Sunny weather and flares, help!

Withdrawal

Any side effect from beetroot juice?

I saw this news about a new test

Help! Hay fever and cutaneous lupus

Is it possible to avoid weight gain on steroids!

Legs cramps and ageing

Moving hospital trust: Rheumy (kind of) first appt. tips

MY OPINIONS ON THE EFFECTS OF HYDROXYCHLORAQUIN (OR LET'S CALL IT JUST HC

Update reappointment with Eye Consultant post cataract surgery.

Hydroxychloroquine, h plyori and antibiotics

Struggling to get a diagnosis.

Are you 18 or older and diagnosed with a skin condition by a doctor?

Pip review

Hydroxychloroquine toxicity

What *should* happen now?

Your views needed for a LUPUS UK-funded research project - Investigating neurological & mental health symptoms in lupus and related diseases

Experiences with Cyclophosphamide

Skin problems

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

What should happen now?