Hi lovely Lupies,
After chatting to Diane (EDD) about rashes recently I thought she and some of you might be interested to see the progression of a head to toe rash I had 10 years ago which led to my diagnosis of SLE.
It all started with a fungal toenail for which my GP prescribed Terbinafine tablets. After being on it for a month a few spots started appearing on my back. We were due to go to Canada for 3 weeks to visit several friends on Vancouver Island. My GP gave me a cream to use and wished me a happy holiday.
Well even on the day we arrived the rash began to spread (first photos) so I stopped the Terbinafine straight away, but 4 days later it had got worse and extremely itchy and unbearable (middle photos). So our holiday was spent back and forth to doctors, hospital, and dermatologist. The rash merged together as seen in the last photos and was all over my body, arms, legs and even face. I felt so awful with it and unbearably itchy and hot. 😩 I drank cool camomile tea with honey and hubby spread honey all over my back before I took a cool bath or shower 2 or 3 times per day. It meant we couldn’t stay with friends as we’d intended, because I needed to keep spreading honey or Dermavate on the rash and keep showering.
So our holiday was ruined, but as hubby (ever the optimist) said it was a blessing in disguise because if this had never happened I might never have been diagnosed and the ‘mystery illnesses’ and symptoms I’d been having for many years might never have been explained. The Canadian dermatologist suspected SLE but tests he needed to do to confirm it wouldn’t have developed/matured before we were due to return to UK. So the Dermy in my local hospital here continued the testing for SLE and it was confirmed.
It is now in my notes that I have an allergy for Terbinafine but isn’t it weird that it took a whole month before the rash began?🤷🏼♀️ It is probably also why it took so long for it to get out of my system again.
Has anybody else had a similar experience?
Hoping you are all as well as can be.
Love and hugs,