Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,924 members • 28,252 posts

All posts for September 2021

Booster versus Third Primary Dose.

Hi everyone, I'm a little confused about this. Are these one and the same? The JCVI report that was kindly posed here was talking about the need for us...

Hi everyone, I'm a little confused about this. Are these one and the same? The ...

CSLO

•3 years ago

34 Replies

Taken ill at the dentist

Hi everyone how are you all? Hope you’re all safe and as well as can be. Sorry I’ve not been posting for the last few days, really busy at work but have been...

Hi everyone how are you all? Hope you’re all safe and as well as can be. Sorry...

Froggie70

•3 years ago

41 Replies

Body itching with HRT

I have Sjgreons and Lupus for over 20 years. I take amongst other tablets hydroxy & azathioprine. I haven't had a period for 2 years but struggled with...

I have Sjgreons and Lupus for over 20 years. I take amongst other tablets hydro...

Mrsdoozer

•3 years ago

10 Replies

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How do u lower blood pressure?

I have cut down on Salt trying exercise etc Anything will help

Mystik

•3 years ago

3 Replies

Live Q&A with Dr Arvind Kaul about Antiphospholipid Syndrome on Thurs 23rd Sept at 3.45pm

Consultant Rheumatologist and GHIC Chairperson, Dr Arvind Kaul, will be live for a Q&A on Thursday 23rd September at 3.45pm about Antiphospholipid Syndrome...

Consultant Rheumatologist and GHIC Chairperson, Dr Arvind Kaul, will be live for...

Chanpreet_Walia

LUPUS UK•3 years ago

Be the first to reply

We want to hear from you - prescription charges in England

Have you avoided taking prescribed medication because of the cost of your prescription, even for a short period of time? Have you suffered any consequences...

Have you avoided taking prescribed medication because of the cost of your prescr...

Chanpreet_Walia

LUPUS UK•3 years ago

11 Replies

A Measure of Health with SLE Lupus

Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary...

Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 4...

UKMoss

•3 years ago

4 Replies

PIP

Hi, I have lupus SLE, this mainly affects my joints and skin. it causes me tiredness and fatigue regularly. I am under the care of Rheumatology and I take a...

Hi, I have lupus SLE, this mainly affects my joints and skin. it causes me tire...

Turquoise1999

•3 years ago

5 Replies

Progress!

I was at work Thursday morning when my GP surgery called me and I couldn’t help but think “here we go!” As I was anticipating it to be regarding my email and...

I was at work Thursday morning when my GP surgery called me and I couldn’t help ...

TeaandToast94

•3 years ago

9 Replies

Walkies on Water

Hello everyone Just had to share this wonderful picture of a dog going for a different kind of walk!. Dog lovers can take their canine companions...

Hello everyone Just had to share this wonderful picture of a dog going for a dif...

misty14

•3 years ago

38 Replies

Messed up with my immunosuppressive medication

Hey, have you ppl ever messed up with your immunosuppressive medications? I mean some mistake like taken it along with other medicines, or failed maintaining...

Hey, have you ppl ever messed up with your immunosuppressive medications? I mean...

Putloo

•3 years ago

6 Replies

MCTD - Covid vaccines

Hi, Can i get some advice or helpful links where i can read about researchs /experiences of people with diagnosis MCTD (mixed connective tissue disease )...

Hi, Can i get some advice or helpful links where i can read about researchs /ex...

showmustgoon84

•3 years ago

15 Replies

White patches on skin

Does anyone have white patches? I understand Vitiligo can be connected to autoimmune diseases. And I have recently noticed several white patches around my...

Does anyone have white patches? I understand Vitiligo can be connected to autoim...

Jolevans

•3 years ago

6 Replies

Ripples and waves

‘Now what did mum say about swimming straight after lunch’ Hope this raises a smile to all in pain today 😀

‘Now what did mum say about swimming straight after lunch’ Hope this raises a sm...

Hidden

•3 years ago

9 Replies

Have you seen this?

Interesting how there seems to be more and more research on how the gut and food relates to autoimmune disorders. Since my diagnosis of Lupus l have gone on a...

Interesting how there seems to be more and more research on how the gut and food...

Cowsaresweet

•3 years ago

3 Replies

Low Sodium

Has anyone had trouble with Low Sodium, I have had severely painful joints, fatigue, hair loss, After a course oF sodium much better, but soon goes low again...

Has anyone had trouble with Low Sodium, I have had severely painful joints, fati...

Lonn

•3 years ago

3 Replies

Alive

Hi all back from what felt like a nightmare and feeling much better. I can officially say that I tested negative on my PCR for covid and my primary thinks it...

Hi all back from what felt like a nightmare and feeling much better. I can offi...

JennaShi

•3 years ago

2 Replies

Help! More Questions on Mast Cells

Hi! I wrote 3 weeks ago about MCAS and got good responses. My tests for gastrin and serotonin came back and ruled out carcinoid tumors which is good. However,...

Hi! I wrote 3 weeks ago about MCAS and got good responses. My tests for gastrin ...

Pumpkin2009

•3 years ago

2 Replies

Flare-up and Covid 19 Vaccine

Does anyone know how long after a flare-up should you get a Covid 19 vaccine?

UKMoss

•3 years ago

7 Replies

Survey on energy limiting chronic illness and disability rights

Disability Rights UK is excited to announce a potential collaboration with Chronic Illness Inclusion. CII has spent four years developing a vision for equality...

Disability Rights UK is excited to announce a potential collaboration with Chron...

Chanpreet_Walia

LUPUS UK•3 years ago

3 Replies

Special eye test

Hi all , can someone tell me what the special eye test is when on Hydroxy I’ve been on it for well over 6 years Rhummy said he will refer me , it don’t look...

Hi all , can someone tell me what the special eye test is when on Hydroxy I’ve ...

whatsit

•3 years ago

15 Replies

Mental health issues from lupus?

Hi everyone, newbie here, I’m 40 years old suffering with lupus complications, including undiagnosed heart stuff, chronic pain, fatigue and brain fog. I’ve...

Hi everyone, newbie here, I’m 40 years old suffering with lupus complications, i...

MusicalFurbaby

•3 years ago

60 Replies

Unable to see private messages in my chat box

I often get an alert that I have a chat message but when I open the link there is no private message found. Anyone know how to remedy this. Thanks!

I often get an alert that I have a chat message but when I open the link there i...

Roarah

•3 years ago

2 Replies

Pregnancy and COVID webinar, Thursday 9th September

Professors at King's College London are hosting a webinar this week on Thursday 9th September about pregnancy and COVID. The webinar is at 3pm BST, register...

Professors at King's College London are hosting a webinar this week on Thursday ...

Chanpreet_Walia

LUPUS UK•3 years ago

Be the first to reply

A mouse called Iris

To make you all smile 😃

Hidden

•3 years ago

19 Replies

Something totally different.

Hello everyone This weeks pic is of a baby elephant following his herd to a water hole in a Game Reserve in Botswana. He loses his footing and the rest of the...

Hello everyone This weeks pic is of a baby elephant following his herd to a wate...

misty14

•3 years ago

35 Replies

Baricitinib??

Hi there Hope you are all doing ok. I was just wondering if any of you guys are taking Baricitinib to treat lupus and how do you feel on it. Has it caused...

Hi there Hope you are all doing ok. I was just wondering if any of you guys are...

Carbar

•3 years ago

5 Replies

Have no idea what I have?!

Hi to you guys in here! Reaching out whilst I wait (yet again) for test results. I have had an interesting past 5-6 years with everything from awful backache...

Hi to you guys in here! Reaching out whilst I wait (yet again) for test results...

meggiemog

•3 years ago

25 Replies

Lupus and menopause treatments

Has anyone taken low dose oestrogen cream to relieve menopause symptoms? I have lupus but not currently medicated. Previously long term chloroquine. Any advice...

Has anyone taken low dose oestrogen cream to relieve menopause symptoms? I have ...

Nomad21

•3 years ago

6 Replies

Blood pressure

Has anyone taken Rampiril for blood pressure and any issues as m worried about taking something new

Has anyone taken Rampiril for blood pressure and any issues as m worried about t...

Mystik

•3 years ago

19 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2021

Booster versus Third Primary Dose.

Taken ill at the dentist

Body itching with HRT

How do u lower blood pressure?

Live Q&A with Dr Arvind Kaul about Antiphospholipid Syndrome on Thurs 23rd Sept at 3.45pm

We want to hear from you - prescription charges in England

A Measure of Health with SLE Lupus

PIP

Progress!

Walkies on Water

Messed up with my immunosuppressive medication

MCTD - Covid vaccines

White patches on skin

Ripples and waves

Have you seen this?

Low Sodium

Alive

Help! More Questions on Mast Cells

Flare-up and Covid 19 Vaccine

Survey on energy limiting chronic illness and disability rights

Special eye test

Mental health issues from lupus?

Unable to see private messages in my chat box

Pregnancy and COVID webinar, Thursday 9th September

A mouse called Iris

Something totally different.

Baricitinib??

Have no idea what I have?!

Lupus and menopause treatments

Blood pressure

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