Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2021

Help us improve LUPUS UK's website accessibility

We want to hear from you! If you have lupus or know a loved one who has lupus and finds our website accessibility difficult, please let us know what we can do...

We want to hear from you! If you have lupus or know a loved one who has lupus a...

Chanpreet_Walia

LUPUS UK•3 years ago

3 Replies

Fnd or lupus?

Hi just wondering if anyone can help me I started having symptoms after the birth of my second child last year. Then i was seen by a neurologist who diagnosed...

Hi just wondering if anyone can help me I started having symptoms after the birt...

Haylz2109

•3 years ago

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Attention HealthUnlocked community! 💚 HU App retiring Friday 24th September

HealthUnlocked's first iOS app for mobile phones will be retiring this Friday, 24th September. You will no longer be able to...

HealthUnlocked's first iOS app for mobile phones will be retiring this Friday, 2...

Chanpreet_Walia

LUPUS UK•3 years ago

7 Replies

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Blood blisters on skin!

I have been diagnosed with Lupus as many of you know and Sjogrens, fibromyalgia, costochondritis and Raynaud’s. Over the last few weeks I have started...

I have been diagnosed with Lupus as many of you know and Sjogrens, fibromyalgia,...

Bowenlady

•3 years ago

21 Replies

Up up and away

Spotted this hot air balloon this afternoon looking like a huge berry from a tree! I’m almost hoping a giant black bird swoops down to gobble it up 🦅

Spotted this hot air balloon this afternoon looking like a huge berry from a tre...

Hidden

•3 years ago

3 Replies

Plaquenil and possible drug interaction to antibiotics

Hi! Last week I knew something else was off, but it wasn't until Friday, that I knew it was a UTI. Excruciating pain, fever, constant painful trips to the...

Hi! Last week I knew something else was off, but it wasn't until Friday, that I...

Pumpkin2009

•3 years ago

6 Replies

Flare up and PCR Covid Test

Would anyone suggest taking a PCR Covid test during a Lupus flare up that comes with a low-grade fever? Could this have an affect on the results?

Would anyone suggest taking a PCR Covid test during a Lupus flare up that comes ...

UKMoss

•3 years ago

7 Replies

Another Med to try

Hey everyone, So a lot has happened in the last few months for me. I retried methotrexate again and it had to be stopped due to raised liver enzymes again....

Hey everyone, So a lot has happened in the last few months for me. I retried m...

LouLamb

•3 years ago

20 Replies

So upset

After 18 months of in an out of hospital and for tests and scans etc because they suspected SLE/ some autoimmune problem Recently went for bloods and on the...

After 18 months of in an out of hospital and for tests and scans etc because the...

BabyOleg

•3 years ago

49 Replies

Different generics of hydroxychloroquine causing itching

Hi everyone need some advice ! Been on plaquenil for almost 12 years . Started out with the brand no issues . Then the generics . Have taken generic Watson ,...

Hi everyone need some advice ! Been on plaquenil for almost 12 years . Started o...

Jances13

•3 years ago

10 Replies

Hot hands and other weirdness

OK guys, weird question time: For the past 9-12 months I have experienced ‘hot hands’ on and off, does anyone else get this? My hands turn bright red (see...

OK guys, weird question time: For the past 9-12 months I have experienced ‘hot h...

MusicalFurbaby

•3 years ago

37 Replies

Love and thanks

Good morning friends, Thank you for all of your lovely messages. I feel loved and very blessed to have an online family who get what we are all going......

Good morning friends, Thank you for all of your lovely messages. I feel loved an...

Greentomatoes

•3 years ago

4 Replies

Subacute Lupus Erythematosis??

Recently diagnosed with subacute lupus erythematosis but Dermatologist says only skin involvement. Rheumatologist only did APS test for sticky blood. Not sure...

Recently diagnosed with subacute lupus erythematosis but Dermatologist says only...

Minimouse1

•3 years ago

20 Replies

We need this approval here in the UK

My mentor spotted this article on monoclonal antibody status in the US and shared it - thought it was encouraging. We need this approval here!...

My mentor spotted this article on monoclonal antibody status in the US and share...

ShannonB

•3 years ago

3 Replies

Tacrolimus side effects

Hello I was diagnosed with membranous nephropathy which causes protein leackage through urine. I was wondering about your experience with common side effects...

Hello I was diagnosed with membranous nephropathy which causes protein leackage ...

Jabrahk

•3 years ago

2 Replies

SLE & Covid

Morning, I’m double vaccinated and got my positive covid result this morning. I have been floored since Thursday. Swinging temp, tonsillitis, cough, plus lupus...

Morning, I’m double vaccinated and got my positive covid result this morning. I ...

Greentomatoes

•3 years ago

19 Replies

Regarding the booster jag

Hi I’m looking for advice on the booster vaccine as I have lupus both of them rheumatoid arthritis, asthma,copd ,osteoporosis, epilepsy,angina and tachycardia...

Hi I’m looking for advice on the booster vaccine as I have lupus both of them rh...

Liz2468

•3 years ago

4 Replies

Cute Caption Competition No 2.

Hello everyone Can you believe its a month since the first caption competition so here is No. 2. I hope you enjoy it as much as i did reading them. Its a 95...

Hello everyone Can you believe its a month since the first caption competition s...

misty14

•3 years ago

47 Replies

University and DSA

Hi everyone, This year I am completing my PGCE in primary education at university. I wanted to know if anyone here has applied for DSA Support and if so what...

Hi everyone, This year I am completing my PGCE in primary education at universi...

Turquoise1999

•3 years ago

10 Replies

Tales from the riverbank ...

If having a performing seagull who picks up balls wasnt enough. About a week ago a one eyed cat arrived in our garden and wont leave (the picture is showing...

If having a performing seagull who picks up balls wasnt enough. About a week ago...

jimbo1605

•3 years ago

20 Replies

Third covid jab

Has anyone received the third covid jab yet?, not the standard booster one , I’m in the group that falls into the immunosuppressant category but I’ve still not...

Has anyone received the third covid jab yet?, not the standard booster one , I’m...

jani4063

•3 years ago

13 Replies

Leaky gut? New arthritis treatment

I can’t remember where I saw it but I read something about a new discovery that leaky gut is linked to arthritis and some gut medications being used for...

I can’t remember where I saw it but I read something about a new discovery that ...

Redfox25

•3 years ago

5 Replies

But You Look OK

I agree with heatherevans28 under Susazannah16. If you read my earlier post on this to Suzannah16, I say I have lupus and other conditions, got Covid and have...

I agree with heatherevans28 under Susazannah16. If you read my earlier post on ...

Pumpkin2009

•3 years ago

3 Replies

Share your experiences of shielding during the pandemic in this new research study

Hi everyone, A team of researchers are studying the experiences of people who shielded during the COVID-19 pandemic. If you are living with a rare autoimmune...

Hi everyone, A team of researchers are studying the experiences of people who sh...

Paul_Howard

Partner•3 years ago

1 Reply

Poor little Mira 🐶

Hi Folks for everyone that has been following Mira,s story, she is now almost 18 months and yesterday we had her spayed - she is feeling very sorry for herself...

Hi Folks for everyone that has been following Mira,s story, she is now almost 18...

svfarmer

•3 years ago

71 Replies

Experimental immunotherapy Cures autoimmune disease

Article includes a link to the New England Journal of Medicine...

Piscesdreamer

•3 years ago

5 Replies

Sinus associated with Lupus flare

Does sinus infection trigger Lupus flare? If so, is there a home remedy or does it require antibootics?

Does sinus infection trigger Lupus flare? If so, is there a home remedy or does ...

UKMoss

•3 years ago

3 Replies

How odd !

So my GP is still not offering in person appointments and hasn’t been since March last year despite government advice that they should do so again NOW. Amusing...

So my GP is still not offering in person appointments and hasn’t been since Marc...

Hidden

•3 years ago

23 Replies

PIP, covid and SLE

I have just read that long covid patients are getting PIP, which is so similar to SLE that the average person would not know the difference, whereas I have...

I have just read that long covid patients are getting PIP, which is so similar ...

suzannah16

•3 years ago

48 Replies

Sublingual gland

Hi All, Sorry for not posting I've not been feeling too great for a while but I wanted to check if anyone has had what I have right now. A sublingual gland has...

Hi All, Sorry for not posting I've not been feeling too great for a while but I ...

Insomniacette

•3 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2021

Help us improve LUPUS UK's website accessibility

Fnd or lupus?

Attention HealthUnlocked community! 💚 HU App retiring Friday 24th September

Blood blisters on skin!

Up up and away

Plaquenil and possible drug interaction to antibiotics

Flare up and PCR Covid Test

Another Med to try

So upset

Different generics of hydroxychloroquine causing itching

Hot hands and other weirdness

Love and thanks

Subacute Lupus Erythematosis??

We need this approval here in the UK

Tacrolimus side effects

SLE & Covid

Regarding the booster jag

Cute Caption Competition No 2.

University and DSA

Tales from the riverbank ...

Third covid jab

Leaky gut? New arthritis treatment

But You Look OK

Share your experiences of shielding during the pandemic in this new research study

Poor little Mira 🐶

Experimental immunotherapy Cures autoimmune disease

Sinus associated with Lupus flare

How odd !

PIP, covid and SLE

Sublingual gland

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