Hi to you guys in here!
Reaching out whilst I wait (yet again) for test results. I have had an interesting past 5-6 years with everything from awful backache and sore joints, stomach/ bowel issues, deafness, loss of taste, weird rashes that come and go, and blood tests that keep swinging all over the place. Last March 2020 my digestive system went into freefall, and not being able to see anyone was told I had IBS and I should follow the FODMAP diet - did this, gave up gluten (for good) - and nothing changed at all, then in July my symptoms got worse and worse, to the point I lost 2 stones in weight, lost quite a lot of hair on my head, random swollen glands, sore back and my kidneys started to show they were really really not happy, absolutely tired all the time, mouth as dry as a pharoah's sock and had super dry eyes, was checked for Sjogrens and they did a scan on my kidneys, which didn't really show anything out of the ordinary, Still troubled with symptoms I finally got a proper face to face, where my GP finally decided that they should think out of the box - and send me to rheumatology. After waiting an eternity I finally saw someone in rheumatology, who was really kind and helpful, listening to me reeling off all my symptoms and showing pictures of the random rashes I have had. Upshot is I had X-rays of my hands and a spine MRI. Spine MRI was 5 weeks ago, I called rheumatology secretary after 3 weeks to see if there was any results, to be told that the scan would need to be seen by the MSK radiologist at the next MDT meeting to see how best to treat me. So after the date they told me, I called again - and they said they will be sending me a letter after the MSK radiologist has dictated it and he only works 1 day a week! AGGGGHHHH!!!! So frustrating as I can't sleep a whole night through at the moment, my back is literally killing me!
Sorry for the long post - but I just want to know what's going on - and try to get on with my life! Anyone else had these issues?