After 18 months of in an out of hospital and for tests and scans etc because they suspected SLE/ some autoimmune problem
Recently went for bloods and on the slip it states :diagnosis: undifferentiated inflammatory condition.
Today I receive a letter from rheumatology to say this....
1. Joint pains, intermittent eyelid swelling, very dry eyes and intermittent itchy rash over anterior chest, intermittent pyrexia, fatigue, chest symptoms with cough (normal CT chest), hair fall, Raynaud’s phenomenon
2. Previous episode of fixed dilation left pupil with ptosis at the end of May 2021,
Your blood work is normal/negative and there for we have ran all our tests and cannot find a diagnosis.
We will give you an open appointment for a year incase your joints swell again and you want to be seen for this.
We wish you all the best for the future.
What I don’t get is also, The eye hospital told me I have episcleritis, but the rheumatology say The eye hospital told her everything is fine.
I have received an appointment for dermatology in 2 weeks but rheumatology said they will be happy to refer me if I have any further problems with my skin. (Which clearly they already have)
How can there be nothing wrong? After all this..... I feel so upset and I don’t no if it’s because they have given up on me or because I am left to deal with the symtoms alone...
Any advice would be useful right now. I feel like a flat piece of cardboard