Benylsta?

[Lily77]

Hi, does anybody have experience or knowledge of Benylsta? Did it make you feel better? Or did you experience side effects? I believe that it is more widely prescribed in the US. I would be most grateful for your thoughts.

[Tanitani]

I tried it for a year . It didn't help me. Made me too skinny too.

[ShannonB in reply to Tanitani]

What symptoms were you having that they hoped it would help?

[Lily77 in reply to ShannonB]

Hi Shannon, thank you very much for replying to my post. I am actually asking on behalf of someone else rather than myself. In my experience (see my profile) the key lupus symptoms are painful/stiff muscles and joints and fatigue.

[Tanitani in reply to ShannonB]

Constant Fatigue and frequent flare ups

[Lily77 in reply to Tanitani]

Hi Tantani, thank you very much for replying to my post. I am sorry that the Benylsta did not help. Can I ask did it reduce/suppress your appetite?

[Tanitani in reply to Lily77]

Yes

[Lily77 in reply to Tanitani]

Thank you that's very helpful.

[ShannonB]

Following. I’m curious too. I’ve never been offered it and my lupus is not well managed. I wonder if it’s an option.

[Tanitani in reply to ShannonB]

Im sure it is an option . You have to ask your rheumatologist. It didnt work for me but maybe it would work for you